My moms lips and eyes swell and they get really big! Has anyone else experienced this? What were you given? Did it help? For now she takes Benadryl and was prescribed an Epi Pen. She was diagnosed at 18 and she’s 63 now just for some insight. Thanks for all your help I’m so grateful to find this community. ❤️
LadyE, I'm sure your mom isn't taking ACE inhibitors or ARBs (blood pressure meds), as they are known to cause angioedema. Lupus can definitely cause it, too. Great suggestions from Rebecca!
Thanks so much ladies your advice is really spot on. I’ve mentioned perhaps changing her diet and exercising as well. Thanks so much for replying ❤️❤️❤️
I had pretty bad angioedema like that when I was first getting diagnosed. I actually saw an allergist before a rheumatologist for it. He recommended cetirizine (zyrtec) and ranitidine (zantac). It worked really well, I stopped having the angioedema and hives. Zantac is no longer on the market, so currently using famotidine (pepcid) in its place, and it seems to work just as well. Currently taking 3 zyrtec and 2 pepcid daily, keeps those issues to a minimum. Of course, I would always recommend speaking with a doctor before adding new medications, even over the counter meds.