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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyLupusTeam Member asked a question 💭
Orlando, FL

My moms lips and eyes swell and they get really big! Has anyone else experienced this? What were you given? Did it help? For now she takes Benadryl and was prescribed an Epi Pen. She was diagnosed at 18 and she’s 63 now just for some insight. Thanks for all your help I’m so grateful to find this community. ❤️

September 26, 2023
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A MyLupusTeam Member

LadyE, I'm sure your mom isn't taking ACE inhibitors or ARBs (blood pressure meds), as they are known to cause angioedema. Lupus can definitely cause it, too. Great suggestions from Rebecca!

September 26, 2023
A MyLupusTeam Member

Thanks so much ladies your advice is really spot on. I’ve mentioned perhaps changing her diet and exercising as well. Thanks so much for replying ❤️❤️❤️

September 26, 2023
A MyLupusTeam Member

I had pretty bad angioedema like that when I was first getting diagnosed. I actually saw an allergist before a rheumatologist for it. He recommended cetirizine (zyrtec) and ranitidine (zantac). It worked really well, I stopped having the angioedema and hives. Zantac is no longer on the market, so currently using famotidine (pepcid) in its place, and it seems to work just as well. Currently taking 3 zyrtec and 2 pepcid daily, keeps those issues to a minimum. Of course, I would always recommend speaking with a doctor before adding new medications, even over the counter meds.

September 26, 2023

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