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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

I have sle, ehrler danlos and sjogrens .

A MyLupusTeam Member asked a question 💭
Victorville, CA

I have sle, ehrler danlos and sjogrens. I can barely walk the pain is so severe.My wheelchair was taken from me and I am in need of housing and a vehicle, ( mine was stolen), my service dog was also stolen and my wig for my hair loss
Can anyone help me with resources or with obtaing these things.life sleeping and living in the desert eliments is so very hard. I am becoming increasingly I'll and handicapped. I know my time will be here soon if I do not get a home , car and caretaker
I would… read more

July 15, 2024
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A MyLupusTeam Member

I don't know anything about resources in your area. You might want to reach out to your councilman/woman to see if their office can offer support. Also the Lupus Foundation might have a list of local support for you. I will most certainly be praying for you.

July 15, 2024 (edited)
A MyLupusTeam Member

My heart hurts for u, I'm so sorry this is happening and I pray God will send help! You're in my prayers

July 16, 2024
A MyLupusTeam Member

Hello Melinda
I’m sorry to her about your situation. I also found a site for you to look into. I wish you well. I’ll be praying that you have assistance very soon.

July 15, 2024
MyLupusTeam

It sounds like you're dealing with multiple chronic conditions. Here are some key points from the knowledge base about lupus (SLE) and Ehlers-Danlos Syndrome (EDS):

- Lupus (SLE): An autoimmune disease where the immune system mistakenly attacks healthy tissue
- Ehlers-Danlos Syndrome (EDS): A genetic disorder affecting Show Full Answer

It sounds like you're dealing with multiple chronic conditions. Here are some key points from the knowledge base about lupus (SLE) and Ehlers-Danlos Syndrome (EDS):

- Lupus (SLE): An autoimmune disease where the immune system mistakenly attacks healthy tissue.
- Ehlers-Danlos Syndrome (EDS): A genetic disorder affecting collagen, leading to loose joints, stretchy skin, and fragile tissues.
- Common Symptoms: Both conditions can cause joint pain and fatigue, making it hard to differentiate between them.
- Diagnosis and Treatment: Accurate diagnosis is crucial for proper treatment. EDS is managed with pain relievers and physical therapy, while lupus treatment focuses on managing symptoms and slowing progression.

For managing symptoms and treatment, maintaining open communication with your healthcare team is essential. Writing down your symptoms can help provide a detailed report to your doctor.

July 15, 2024

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