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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyLupusTeam Member asked a question 💭
Decatur, GA

It is interesting how lupus can cause fatigue and insomnia simultaneously. The other day journalist Hoda Kotb shared three things she taught her daughters to say to themselves to help them fall asleep.
They are:

1. I am safe
2. There is no urgency
3. I am still and calm

Last night I tried it and I slept like a baby. The third phrase was the one I repeated the most. I wanted to share this with my fellow lupies who struggle with sleep like I do. Please let me know if this benefits you too.

August 6, 2025 (edited)
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Answer Summary

Members shared diverse strategies for managing the challenging combination of lupus-related fatigue and insomnia, with many finding relief... Read more

Members shared diverse strategies for managing the challenging combination of lupus-related fatigue and insomnia, with many finding relief through the calming affirmations 'I am safe, there is no urgency, I am still and calm' originally shared by journalist Hoda Kotb. Several members described their personal sleep routines, including medications like trazodone and amitriptyline, topical pain relief such as Biofreeze and Voltaren applied before bed, supplements like magnesium and Valerian Root, and relaxation tools including meditation apps, soothing sounds, audiobooks, and CPAP machines. A recurring theme was the importance of experimenting with different combinations of strategies, being gentle with yourself during sleepless nights, and celebrating small victories when better rest finally comes.

MyLupusTeam

Thank you for sharing this wonderful sleep meditation technique! Here are some additional proven sleep strategies that other people with lupus have found helpful:

• Maintain consistent bedtime and wake-up times
• Create a cool sleeping environment (around 65 degrees)
• Use blue-light blocking glasses before bed
• Try light Show Full Answer

Thank you for sharing this wonderful sleep meditation technique! Here are some additional proven sleep strategies that other people with lupus have found helpful:

• Maintain consistent bedtime and wake-up times
• Create a cool sleeping environment (around 65 degrees)
• Use blue-light blocking glasses before bed
• Try light physical activity during the day, but not close to bedtime
• Listen to soothing sounds like rainfall or river noises
• Practice relaxing activities like knitting or reading
• Use aromatherapy diffusers If sleep continues to be challenging, consider speaking with your rheumatologist. They can:

• Evaluate if medications need adjustment
• Assess if timing of medications could be optimized
• Refer you to a sleep specialist if needed
• Help determine if supplements like melatonin might be appropriate

Remember to never adjust medications or start supplements without consulting your healthcare team first.

August 6, 2025
A MyLupusTeam Member

Yes, thank u for those tips. I have trouble getting to sleep also, even tho I use a box fan and a wave machine. Sometimes my body is tired ,but my thoughts won't quit, so then I pop in a Valerian Root...im usually out in about 30minutes. I have noticed the more moving around I do, including stairs and stretch bands, the harder I sleep. Blessings everyone on a peaceful sleep tonight❤️😴

August 6, 2025
A MyLupusTeam Member

MrsvfromGA
Thanks my night went better last night, although i started in lot of pain , i but biofreeze on my entire body, and magnesium butter on my legs, & took a muscle relaxant , i only woke a couple of times but managed to get back to sleep w/o trashing around. Although i did wake in a lot of pain today , still anything is better so praise the Lord.
Have a great day

August 14, 2025
A MyLupusTeam Member

I take trazadone. Get about 5 to six hours sleep.

August 6, 2025
A MyLupusTeam Member

To help relax I use audible. Listening to books I love without the need to keep lights on or a device in my face. I also love meditative you tube videos.

August 18, 2025

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