Have you experienced hair loss and scarring on your scalp?
Yes, many people with lupus have experienced both hair loss and scalring on their scalp. This is actually quite common, especially with certain types of lupus.
A MyLupusTeam member shared: "My scalp is badly scarred, and I have noticeable bald patches." Another member Show Full Answer
Have you experienced hair loss and scarring on your scalp?
Yes, many people with lupus have experienced both hair loss and scalring on their scalp. This is actually quite common, especially with certain types of lupus.
A MyLupusTeam member shared: "My scalp is badly scarred, and I have noticeable bald patches." Another member mentioned, "Now I'm having these lesions pop up on my scalp with surrounding hair loss and they're very tender and swollen."
Scarring alopecia is particularly associated with discoid lupus. When discoid lesions appear on the scalp (which happens in 30-50% of cases), they can cause scarring if left untreated. This scarring can block or destroy hair follicles, leading to permanent hair loss in those areas.
One member expressed the emotional impact: "I now have two bald spots on my head. I have been losing my hair since being diagnosed with lupus. Looks like it's a permanent loss, as I was told my scalp is scarred."
If you're experiencing tender, swollen lesions with hair loss, it's important to seek treatment early. While scarring that's already present can't be reversed, topical steroids and oral medications can help stop the spread of discoid lesions and prevent further damage.
November 14, 2025
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