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Sometimes I wake with headaches, all of this on top of the other nine lives is as LupusWarriors have! But which doctor should tell of my concerns? Because at this point I only trust my Rheumatologist. The others are hit or miss. I’m sorry but some make me want to walk out mid appointment.
Which doctor should you talk to about your hypoxia, breathing difficulties, and related symptoms?
Your rheumatologist is absolutely the right person to start with, especially since you trust them. They know your complete lupus history and can help coordinate your care with other specialists. Your rheumatologist should be Show Full Answer
Patricia, it sounds like you may have sleep apnea, which causes drops in oxygen level overnight and sudden awakenings. Do you know if you snore and stop breathing while you sleep? Oxygen alone won't treat sleep apnea, and CPAP or biPAP are needed.
Please ask your primary or rheumatologist to order sleep apnea testing for you. The tongue biting is a little more concerning, as it may accompany seizures. Please discuss that possibility with your doctor.
I would definitely start with the doctor that you trust. Take care.
Are you near a medical school by any chance? Youve got to have more than just your rheumatologist baby. A full care team of specialist is absolutely necessary. Look for a close teaching institution. The offer multidisciplinary clinics and the care is always better.
I totally agree! Sleep Apnea can actually be common amount Lupus patients. Its not obstructive, its a little different but the effects are just the same. I'd go back to pulmonary and ask for lupus related Apnea sleep test. My rheumatologist has sent me before. Its worth looking into especially given all the symptoms youre having. We are here for you love!!
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