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A MyLupusTeam Member asked a question 💭
Tucson, AZ

I have lupus, Sjogren's and possible scleroderma (systemic not cutaneous) and have test results concerning for pulmonary hypertension. I had a right heart cath and the cardiologist said the values were within normal limits. However, my rheumatologist said he was basing it on old guidelines and in reality all of my pressures were max of normal or above normal. I have an appointment for a second opinion with a new cardiologist. In the meantime, is anyone here dealing with this issue and is there… read more

January 30
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MyLupusTeam

Does anyone have experience with pulmonary hypertension, and is there treatment available?

It's great that you're getting a second opinion. About 10 percent of people with lupus develop pulmonary hypertension, which occurs when the arteries between the heart and lungs thicken and narrow, making it harder for blood to flow.

Show Full Answer

Does anyone have experience with pulmonary hypertension, and is there treatment available?

It's great that you're getting a second opinion. About 10 percent of people with lupus develop pulmonary hypertension, which occurs when the arteries between the heart and lungs thicken and narrow, making it harder for blood to flow.

Regarding treatment, there are actually options available. Treatments may include:

* Medications to lower blood pressure in the lungs
* Medications to reduce inflammation
* Immunosuppressants to suppress the immune system

In some cases, pulmonary hypertension may improve with immunosuppressants or corticosteroids, though this isn't typical for everyone. There are several types of pulmonary hypertension, and some respond well to treatment.

Treatment often targets the underlying condition that puts stress on the heart. The exact cause in lupus is believed to involve a mix of inflammation, immune system activity, and blood vessel changes.

Your rheumatologist's concern about updated guidelines is valid, and seeking that second cardiology opinion is a smart move. Keep advocating for yourself—you're doing the right thing by pursuing clarity on your diagnosis and treatment options.

January 30

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