Has anyone successfully weaned off of Plaquenil after being on it since 2014, especially when a rheumatologist recommends stopping due to remission?
Congratulations on achieving remission! That's wonderful news after managing lupus for so long.
Some MyLupusTeam members have successfully stopped Plaquenil, though experiences Show Full Answer
Has anyone successfully weaned off of Plaquenil after being on it since 2014, especially when a rheumatologist recommends stopping due to remission?
Congratulations on achieving remission! That's wonderful news after managing lupus for so long.
Some MyLupusTeam members have successfully stopped Plaquenil, though experiences vary. One member shared they stopped cold turkey due to vision issues and had no significant side effects. However, it's important to know that stopping this medication can increase your risk of flare-ups.
Research shows that people who stop taking hydroxychloroquine are 61 percent more likely to experience a lupus flare sooner than those who continue their medication. Even reducing the dose increases flare risk by 54 percent.
The safest approach is to work closely with your rheumatologist on a tapering plan rather than stopping abruptly. Gradually decreasing your dose helps your body adjust and may reduce flare risk.
Keep in mind that hydroxychloroquine stays in your system for about three months after stopping, so you may not notice changes immediately.
Since you've been in remission and your doctor recommends stopping, ask them about:
- A specific tapering schedule
- Warning signs of a potential flare to watch for
- When to contact them if symptoms return
- Whether you should start any replacement medication
Stay in close communication with your rheumatologist throughout this transition so they can monitor your progress and adjust the plan if needed.
March 16
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