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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Hi. I have SLE, fibromyalgia and something that can cause blood clots. Does anyone here also have to worry about blood clots?

A MyLupusTeam Member asked a question 💭
April 28
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A MyLupusTeam Member

Hi there. I actually do take a daily 81 mg aspirin for Antiphospholipid Syndrome which my rheumatologist ordered. Have a good day.

August 10
MyLupusTeam

Blood clots are definitely a real concern for many people living with SLE — you're far from alone in this! People with lupus are more than 6.5 times more likely to develop blood clots compared to people without lupus.

One MyLupusTeam member shared, "I've had blood clots twice this year." So yes, this is something many in the Show Full Answer

Blood clots are definitely a real concern for many people living with SLE — you're far from alone in this! People with lupus are more than 6.5 times more likely to develop blood clots compared to people without lupus.

One MyLupusTeam member shared, "I've had blood clots twice this year." So yes, this is something many in the community are navigating too. A big reason for this increased risk is antiphospholipid antibodies, which are common in lupus and can make blood more likely to clot. About a third of people with SLE have these antibodies.

Blood clots can show up in different parts of the body, including:

- Legs — causing swelling, pain, warmth, or skin discoloration
- Lungs — causing shortness of breath and chest pain
- Brain — increasing stroke risk It's really important to watch for warning signs and act quickly if they appear. Sudden one-sided calf pain with swelling, or unexpected shortness of breath and chest pain, are reasons to seek immediate medical attention — don't wait on those!

Talking with your doctor about testing for antiphospholipid antibodies is a great step if you haven't already. Treatment often includes blood thinners, and in some cases, long-term management may be needed.

April 28
A MyLupusTeam Member

Yes I throw superficial clots on my arms and legs I currently have to take baby aspirin 81 mg every day:(💜

August 11
A MyLupusTeam Member

There are three types of anti-phospholipid antibodies that predispose to blood clots, Karen. Just having one (or even more) does NOT mean you will get clots, so try not to worry about it. Some of us with a high-risk profile (triple-positive) may benefit from daily aspirin, which we should discuss with our rheumatologists or hematologists.

April 29
A MyLupusTeam Member

I currently have 3 in my right arm, Dr said that lupus causes inflammation on the veins making them narrow and therefore cause the blood to clot. Mine are very painful to touch red and swollen

April 28

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