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A MyLupusTeam Member asked a question 💭
Chalfont, PA

I’m being referred to a urologist yet again but was wondering if a nephrologist would be the better option. Anyone have any advice?

May 18
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A MyLupusTeam Member

This was the symptom that got me referred to the nephrologist. Probably best to be seen by one - if there's nothing there, at least you'll have peace of mind!

May 19
MyLupusTeam

Finding blood in your urine when you have lupus is definitely something worth taking seriously, and it's smart to be asking these questions!

With lupus specifically, blood or protein in the urine can be a sign of lupus nephritis — inflammation in the kidneys caused by lupus. This makes kidney involvement a real consideration Show Full Answer

Finding blood in your urine when you have lupus is definitely something worth taking seriously, and it's smart to be asking these questions!

With lupus specifically, blood or protein in the urine can be a sign of lupus nephritis — inflammation in the kidneys caused by lupus. This makes kidney involvement a real consideration worth exploring. Here's a helpful way to think about the two specialists:

- Urologist — focuses on the urinary tract system broadly, looking for structural or non-lupus-related causes of blood in urine
- Nephrologist — specializes specifically in kidney function and is the go-to doctor when lupus-related kidney involvement is suspected

Since you have lupus, seeing a nephrologist alongside your rheumatologist could be really valuable. A nephrologist can run targeted tests like urinalysis, blood tests measuring kidney function, and if needed, a kidney biopsy to check for lupus nephritis.

That said, it's worth raising this directly with your rheumatologist. They can help determine whether a nephrology referral makes sense given your full picture — and they may want to refer you themselves.

Don't delay on this one. Kidney involvement with lupus is best caught and treated early to prevent further damage.

May 18
A MyLupusTeam Member

Once we're diagnosed with nephritis, we lupies must see nephrology regularly.

May 20
A MyLupusTeam Member

Thanks everyone. I had seen a urologist in the past and all was good. I had also seen a nephrologist that followed me for a few years. He diagnosed me with a glomerularnephritis but felt I was stable. He would do 24 hour urines that showed minor spilling of protein. I will definitely seek a nephrology consult

May 19
A MyLupusTeam Member

I suggest you see a nephrologist, Nancy. If they don't believe it's a kidney issue, it makes sense to see a urologist. Post-menopausal women sometimes have a small amount of blood in the urine due to atrophic vaginitis, which comes with age, but we lupies must take this seriously, especially if the urine protein to creatinine ratio is elevated. Was it?

Obtaining a catheterized urine specimen can help exclude atrophic vaginitis as the cause, and the urologist can do this.

May 19 (edited)

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