Connect with others who understand.

  •   Learn from expert-reviewed resources
  •   Real advice from people who’ve been there
  •   People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyLupusTeam Member asked a question 💭
Raigad
May 21
 · 
Be the first to react
MyLupusTeam

Hair loss with lupus SLE is really common, and there are both treatment options and preventive steps that can help. The most important thing to know is that getting lupus under control is the best way to reduce hair loss — when the disease is managed well, hair loss tends to improve too. Medical Treatments

A doctor may Show Full Answer

Hair loss with lupus SLE is really common, and there are both treatment options and preventive steps that can help. The most important thing to know is that getting lupus under control is the best way to reduce hair loss — when the disease is managed well, hair loss tends to improve too. Medical Treatments

A doctor may recommend several options depending on the cause of your hair loss:

- Topical or injectable steroids (like clobetasol) to help stimulate hair regrowth
- Prescription medications such as mycophenolate to control lupus disease activity and improve skin and hair symptoms
- DHEA (a hormone) may be prescribed — though men with lupus are advised not to take it
- If a lupus medication is causing hair loss, your doctor may adjust your treatment plan Vitamins and Supplements

Some MyLupusTeam members have had success with:

- Biotin (Vitamin B7) — available in supplements and naturally in foods
- Folic acid — another B vitamin found in supplements and fortified foods like breads and cereals

Always check with your rheumatologist before starting any supplement, as some can interact with lupus medications. Gentle Hair Care

Protecting your hair from further damage is key:

- Use gentle products like baby shampoo and leave-in conditioner
- Avoid heat styling tools, chemical treatments, and alcohol-based products
- Keep hairstyles loose — avoid tight buns or braids
- Try coconut oil as a conditioner to reduce breakage Reducing Flare Triggers

Since flares can worsen hair loss, managing triggers helps:

- Minimize stress through relaxation techniques, light exercise, or music
- Protect your scalp from UV light with SPF 50+ sunscreen, wide-brimmed hats, or scarves
- Watch for personal triggers like exhaustion or dietary factors Cosmetic Options

For days when hair loss feels more visible, many MyLupusTeam members have found confidence boosters like:

- Clip-in human hair extensions
- Lightweight wigs (one member recommended the Raquel Welch line)
- Scarves and hats, which also double as sun protection

One important note — if hair loss is caused by scarring from discoid lesions, it may not be fully reversible, so early treatment is especially important. Always loop in your rheumatologist or dermatologist when addressing hair loss.

May 21

Related Questions

View All
A MyLupusTeam Member asked a question 💭
Moody, AL

A MyLupusTeam Member asked a question 💭
Grenada, CA