So I haven't had benlysta treatment in almost 3 weeks and I've been feeling sick as ever 💜 stopping any medication so abruptly can create a reaction in the body. Please consult with your doctor before doing so
May 31
Are you wondering what might happen if you stop taking Benlysta (belimumab) after six months?
Stopping Benlysta — even after a period of it working well — can lead to a return or worsening of lupus symptoms. It's really important to never stop taking it without speaking to a doctor first, as abruptly stopping can increase Show Full Answer
Are you wondering what might happen if you stop taking Benlysta (belimumab) after six months?
Stopping Benlysta — even after a period of it working well — can lead to a return or worsening of lupus symptoms. It's really important to never stop taking it without speaking to a doctor first, as abruptly stopping can increase the risk of lupus flares. Here are some withdrawal symptoms that MyLupusTeam members have reported after stopping Benlysta:
- Fatigue — often returning with intensity
- Rashes — especially with sun exposure
- Joint pain — which can worsen over time
- Memory loss and confusion
- Dry mouth
In more serious cases, stopping abruptly has been linked to lupus nephritis or kidney flares. The good news is that research suggests tapering off Benlysta gradually — rather than stopping all at once — can help reduce the risk of flares and withdrawal symptoms.
A doctor may also recommend other medications like hydroxychloroquine (Plaquenil) or prednisone to help manage symptoms during the transition. Always work closely with a rheumatologist to create a safe plan for stopping or pausing Benlysta.
May 30
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