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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
June 3
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MyLupusTeam

That's a really specific and important question! Unfortunately, the available information doesn't include data on how many MyLupusTeam members specifically progressed from cutaneous lupus (SCLE) to systemic lupus erythematosus (SLE).

What is known more broadly is that lupus diagnosis can be a long and winding road. On Show Full Answer

That's a really specific and important question! Unfortunately, the available information doesn't include data on how many MyLupusTeam members specifically progressed from cutaneous lupus (SCLE) to systemic lupus erythematosus (SLE).

What is known more broadly is that lupus diagnosis can be a long and winding road. On average, it takes about six years to receive a definitive lupus diagnosis after symptoms first appear, and around 63% of people eventually diagnosed with lupus will receive at least one misdiagnosis along the way.

For the most accurate statistics on SCLE progression to SLE, it would be worth:

- Speaking directly with a rheumatologist
- Checking resources from the Lupus Foundation of America at lupus.org
- Exploring peer-reviewed research on cutaneous lupus progression

June 3

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Rapid City, SD