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A MyLupusTeam Member asked a question πŸ’­
Tyrone, PA

I had to stop taking it because it was causing extreme nerve pain in my feet. I really didn't feel any real benefit from it anyway, but I did have improvement in my C-Reactive Protein levels and red blood counts. Now I'm wondering if they, too, will revert back to my anemic levels. I was so hoping LDN would help me, but it just didn't. πŸ˜’

June 16
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MyLupusTeam

That's really frustrating, especially when you were seeing some positive changes in your labs. It's completely understandable to feel disappointed when a treatment doesn't work out the way you hoped.

Unfortunately, Low Dose Naltrexone isn't something covered well enough in lupus-specific research to give a confident answer Show Full Answer

That's really frustrating, especially when you were seeing some positive changes in your labs. It's completely understandable to feel disappointed when a treatment doesn't work out the way you hoped.

Unfortunately, Low Dose Naltrexone isn't something covered well enough in lupus-specific research to give a confident answer about what happens to pain or lab levels after stopping it.

What is well understood with lupus medications generally is that when something is helping keep inflammation in check β€” even subtly β€” stopping it can sometimes allow inflammation markers to creep back up. Whether your CRP and blood counts revert would really depend on several factors, including your overall lupus activity and what other treatments you're on.

The most important step right now would be to flag these concerns with your rheumatologist, specifically:

- Whether your CRP and red blood cell levels need monitoring now that you've stopped
- Whether anemia linked to lupus activity needs to be addressed with an alternative approach
- What other options might help manage your pain without the nerve side effects you experienced

You deserve a treatment plan that actually works for you β€” and there are other paths worth exploring with your care team. Don't give up! πŸ’™

June 16

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