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Had another bad reaction to covid Vax I rec'd last Wednesday. Another syncope episode and feeling nauseated, cold, bad since. Anyone else?

A MyLupusTeam Member asked a question 💭
Spring Valley, CA
June 22
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A MyLupusTeam Member

I've had Multiple Sclerosis for at least 30 years now and I was only diagnosed with Lupus last week, so I don't have a specialist yet. I've been dealing with syncope episodes for decades, due to multiple sclerosis. My doctor has been treating the syncope episodes as though they were epilepsy, and I've been prescribed Auro-Lamotrigine, which has really helped me with the syncope episodes. When I was experiencing the syncope episodes, I would usually "drop like a 🪨 rock! My head would hit the floor, and because of this I've had several concussions, which have caused me to have some brain injuries!

June 23
MyLupusTeam

So sorry to hear this has happened again — that sounds really rough, especially when you're already managing lupus on top of it all.

Reactions like syncope (fainting), nausea, and feeling cold after a COVID-19 vaccine can happen, and people with lupus may be more sensitive due to their immune system and medications.

A few Show Full Answer

So sorry to hear this has happened again — that sounds really rough, especially when you're already managing lupus on top of it all.

Reactions like syncope (fainting), nausea, and feeling cold after a COVID-19 vaccine can happen, and people with lupus may be more sensitive due to their immune system and medications.

A few things worth knowing:
- Feeling cold can sometimes be linked to lupus itself, certain medications, or how your body responds to immune-stimulating events like vaccines
- Nausea and general unwellness after vaccination can be a sign your immune system is responding — but when symptoms linger for days, that's worth flagging
- Syncope episodes are something your doctor should always be made aware of, especially if they're recurring Since this has happened more than once after a COVID vaccine, it's really important to contact your rheumatologist or doctor as soon as possible. They may want to review your current treatment plan or discuss alternative vaccine options, timing, or pre-medication strategies to help reduce reactions going forward.

Please don't wait it out if symptoms worsen — you deserve to feel supported and safe. 💙

June 22

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