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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
June 30
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MyLupusTeam

Yes, it's actually quite common for the butterfly rash to come and go! Many MyLupusTeam members describe their rash as appearing and then fading, sometimes triggered by specific things.

Common triggers that can bring on or worsen the rash include:

- Sun or UV light exposure
- Heat (like hot showers or physical activity)
- Show Full Answer

Yes, it's actually quite common for the butterfly rash to come and go! Many MyLupusTeam members describe their rash as appearing and then fading, sometimes triggered by specific things.

Common triggers that can bring on or worsen the rash include:

- Sun or UV light exposure
- Heat (like hot showers or physical activity)
- Lupus flares

As one MyLupusTeam member shared, "If I get hot, it pops out, like hot showers or baths or when I get out in the sun." Another noted, "I used to get butterfly rashes, but then it stopped" — showing how unpredictable it can be. The swelling around your right eye is worth mentioning to your doctor, especially alongside the rash. Swelling near the eye can sometimes be linked to active lupus inflammation, and since it's only on one side, your doctor will want to evaluate it properly.

It's always a good idea to track when your rash appears and any accompanying symptoms like the eye swelling, so you can share that pattern with your rheumatologist or dermatologist.

June 30

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