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July 4
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Answer Summary

Members rallied around someone experiencing over two weeks of migraines linked to lupus, with many agreeing that lupus inflammation, missed... Read more

Members rallied around someone experiencing over two weeks of migraines linked to lupus, with many agreeing that lupus inflammation, missed infusions, stress, TMJ, sinus issues, and cervical spine problems can all contribute to persistent headaches. Several members shared treatments that helped them, including Rizatriptan, Nortriptyline, daily magnesium, dental splints, TMJ surgery, sinus surgery, physical therapy, and newer options like rimegepant and Botox injections. A recurring theme was the importance of seeing a neurologist, identifying personal triggers, and advocating with insurance to access necessary treatments like infusions.

A MyLupusTeam Member

I'm sorry for the pain you're experiencing. Have you consulted your health care team? Are you currently journaling your daily food and water intake? Are you noticing a pattern due to UV exposure?

July 5
A MyLupusTeam Member

Great point, @A MyLupusTeam Member. For those struggling with migraines, it's worthwhile to talk to your doctor and consider TMJ as a possible trigger, although jaw pain is usually noticed. Ask your dentist about tooth wear and whether a night guard would help, as grinding can cause TMJ, which can then trigger migraines.

If sinuses are a factor, there are usually sinus symptoms, but sometimes just pain in the cheeks and/or forehead may occur.

July 8
A MyLupusTeam Member

I had horrible migraines for years, then had TMJ surgery, and it cut them in half. Several years later I had sinus surgery, and all the migraines stopped. I still flare and feel pressure around my jaw and sinus areas, but not enough to trigger migraines now.

July 7
A MyLupusTeam Member

There are some newer migraine treatments, Camille, such as remegapant and botox injections. A neurologist is definitely a good idea.

July 5
A MyLupusTeam Member

Thank you all so much @A MyLupusTeam Member and @A MyLupusTeam Member
I haven't been journaling but so far it doesn't change based on the food I intake however it does give me a strong kick in the head when I don't eat. Lately to get tiny relief I've been drinking way more caffeine then I know but doctors orders..(just soda I'm not a coffee person) to be me temporary comfort. My primary has giving me meds and migraine cocktail (several meds to take when it starts) but it never actually stops. So I have to definitely go and see the neurologist now to hear what they come up with and what I can better do in the future. It's just frustrating because I can't really allow it to keep affecting me at work. I barely can make it a whole day without calling out. They lest two work days I made it but only because I but tooth an nail and just dealt with it. I'm praying but it still gives me a tiny bit of stress 🤦🏾‍♀️😭

July 5

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Houston, TX

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