Oh my goodness. I know for me warfarin is the only treatment but how do you manage the rest?
July 15
Hi @A MyLupusTeam Member I have APS and FactorVLeidenMutation/APC Resistance 👋🏼😃
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A MyLupus...
July 15
Yes, antiphospholipid syndrome (APS) is actually quite common among people with lupus — you're definitely not alone in this! Between 33% and 50% of people with lupus have antiphospholipid antibodies, and about 10% go on to develop full antiphospholipid syndrome.
One MyLupusTeam member shared: "I was in the hospital for 3 Show Full Answer
Yes, antiphospholipid syndrome (APS) is actually quite common among people with lupus — you're definitely not alone in this! Between 33% and 50% of people with lupus have antiphospholipid antibodies, and about 10% go on to develop full antiphospholipid syndrome.
One MyLupusTeam member shared: "I was in the hospital for 3 weeks and during that time, lupus also attacked my kidneys. So the diagnosis was lupus nephritis, also with having antiphospholipid syndrome." Having antiphospholipid antibodies means the blood is more likely to clot, which raises the risk of:
- Blood clots in veins or arteries
- Stroke
- Miscarriages
- Low platelet counts
About half of lupus patients with antiphospholipid antibodies will develop a blood clot at some point, so it's really important to stay on top of monitoring with a doctor.
If you haven't already been tested or discussed management options with your rheumatologist, that's a great conversation to have — especially since some risks can be reduced with the right treatment plan.
July 15
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