Powered By
I have written and read a number of questions and answers that point to using your rheumatologist to help ease this disease that has no cure
Unfortunately from what I have seen in the decade and a half dealing with Lupus is that once you get beyond the plaquenil and the prednisone and maybe in some cases biologics such as Benlysta the regular rheumatologist have few answers or specialist referaks as the disease spreads to your joints and then the arteries and gastro tracks
Consult the… read more
I've developed multiple overlapping disorders and found that rheumatologists want to abandon you at that point. My Internist luckily hasn't. He has made referrals to a new rheumatology group and neurology, because neurology may be the only way my Myocitis issues get addressed.
Vascular surgeons are as important to know as cardiologists.
tap the doctor's network to find your best referrals. The one doctor's use for themselves
What a thoughtful and hard-earned perspective from someone with 15 years of lupus experience — and it really resonates with what many MyLupusTeam members have shared.
You're absolutely right that lupus is a complex, whole-body condition, and a single rheumatologist can't always have all the answers. The standard toolkit of Show Full Answer
Join
Your Privacy Choices
