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A MyLupusTeam Member asked a question 💭
Arkansas City, AR

I've struggled to get my ferritin up for years and I'm ready to just try iron infusions. Has anyone had adverse reactions to infusions? I generally and nervous about introducing things into my system unnecessarily because I always worry about it causing a flare. What have your personal experiences been like with iron infusions?

August 20
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A MyLupusTeam Member

Hi Lisa, I had an iron infusion about 3 weeks ago. I am supposed to have more bloodwork on the 9th and I have an appointment a couple of weeks after that. I am feeling better and hopefully my ferritin has increased from a 4.

September 3
MyLupusTeam

Iron infusions are a valid option when ferritin levels just won't budge, and it's completely understandable to feel cautious — especially when living with lupus means your body can be unpredictable with new treatments.

Iron infusions are generally considered safe, but like any infusion, there are some potential reactions to Show Full Answer

Iron infusions are a valid option when ferritin levels just won't budge, and it's completely understandable to feel cautious — especially when living with lupus means your body can be unpredictable with new treatments.

Iron infusions are generally considered safe, but like any infusion, there are some potential reactions to be aware of, including:

- Rash
- Nausea
- Fatigue
- Headache
- Muscle pain
- Facial swelling

These can happen during the infusion or even days afterward, so it's important to let your care team know immediately if anything feels off. The good news is that infusions are always done in a medical setting with healthcare professionals present, so they're equipped to respond quickly if any reaction occurs. That supervision can actually be reassuring when you're worried about flares or unexpected responses.

It's really worth having an open conversation with your rheumatologist before proceeding — they can weigh in on whether iron infusions are appropriate given your specific lupus history and current medications, and may even prescribe pre-treatment medication to reduce reaction risk.

August 20

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