Connect with others who understand.

  •   Learn from expert-reviewed resources
  •   Real advice from people who’ve been there
  •   People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyLupusTeam Member asked a question πŸ’­
Bryant, AR
September 4
 · 
Reactions
A MyLupusTeam Member

For me I usually attribute it to my fibromyalgia, but Lupus is totally capable of bringing your whole body down. Rest, hydration, your normal meds and any otc meds to treat the system can help. It is important to keep your dr in the loop in case additional intervention like steroids needs prescribing. I hope you find relief soon.πŸ’œ

September 4
A MyLupusTeam Member

I am terrible about tracking symptoms anyone have a good system to keep info together where you can find it again?

September 4
MyLupusTeam

Feeling like your whole body is in a flare is something many people with lupus experience. There are several possible reasons this can happen.

Here are some common causes:

- Lupus flare activity – Widespread symptoms like joint pain, fatigue, fever, rashes, headaches, and muscle aches can all hit at once during a flare
- Show Full Answer

Feeling like your whole body is in a flare is something many people with lupus experience. There are several possible reasons this can happen.

Here are some common causes:

- Lupus flare activity – Widespread symptoms like joint pain, fatigue, fever, rashes, headaches, and muscle aches can all hit at once during a flare
- Fever or infection – Lupus and its treatments can weaken the immune system, making infections more likely, which can feel very similar to a full-body flare
- Stress – Both emotional and physical stress are among the most common flare triggers
- Sun or UV exposure – Photosensitivity affects many people with lupus and can trigger widespread symptoms
- Hormonal changes – Shifts in hormones, including those during menstrual cycles or menopause, can intensify flare symptoms
- Weather changes – Temperature and seasonal shifts can trigger flares for some people

As one MyLupusTeam member described it, "Flares for me begin with fever, body aches, and severe fatigue."

Tracking when these full-body episodes occur and noting any patterns can be really helpful. Sharing those patterns with a rheumatologist is important, as it may signal that a treatment plan needs adjusting.

September 4
A MyLupusTeam Member

Has anyone tried magnesium cream? It was recommended to me by friends. I haven't found it particularly helpful.

September 8
A MyLupusTeam Member

For me: lack of sufficient rest (too many chores/appts); eating the wrong foods (tomato based); STRESS; low nutrient levels (vitamin D, vitamin B).

September 7

Related Questions

View All
A MyLupusTeam Member asked a question πŸ’­
Munford, AL

A MyLupusTeam Member asked a question πŸ’­
Cache, OK

Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data and Privacy policies.
Already a member? Log In