Pulmonary hypertension (PH) is something that does affect some people with lupus — you're definitely not alone in dealing with this. About 10% of people with lupus develop it, so while it's not the most common complication, it's well recognized in the lupus community.
One MyLupusTeam member shared, "I've noticed I've been Show Full Answer
Pulmonary hypertension (PH) is something that does affect some people with lupus — you're definitely not alone in dealing with this. About 10% of people with lupus develop it, so while it's not the most common complication, it's well recognized in the lupus community.
One MyLupusTeam member shared, "I've noticed I've been feeling winded (short of breath) while I'm doing my housework," which is a very relatable early symptom. Pulmonary hypertension happens when the blood vessels between the heart and lungs thicken and narrow, making it harder for blood to flow. This forces the heart to work harder over time.
Symptoms to watch for include:
- Shortness of breath (during activity or at rest)
- Chest pain or pressure
- Fatigue and dizziness
- A fast or pounding heartbeat
- Swelling in the legs, ankles, or stomach
- Fainting
- A blue or gray tint to the skin
Symptoms can start mild and worsen over time, so catching it early matters. Treatment usually focuses on the underlying cause and may include:
- Medications to lower blood pressure in the lungs
- Anti-inflammatory treatments
- Immunosuppressants or corticosteroids (in some cases)
It's really important to keep your care team in the loop about any breathing changes, even ones that seem minor. Don't hesitate to reach out to your doctor if symptoms are getting worse.
September 15
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