First off, you are absolutely not alone in this β brain fog, slowed thinking, and depression are incredibly common experiences for people living with lupus. The good news is that there are many things that can genuinely help, and fellow MyLupusTeam members have shared some really encouraging strategies.
Here are some Show Full Answer
First off, you are absolutely not alone in this β brain fog, slowed thinking, and depression are incredibly common experiences for people living with lupus. The good news is that there are many things that can genuinely help, and fellow MyLupusTeam members have shared some really encouraging strategies.
Here are some activities that others have found helpful for keeping their minds healthy:
- Journaling β writing thoughts down helps clear mental clutter and process emotions
- Reading β even 30 minutes a day can exercise the mind in a meaningful way
- Music β listening to calming or uplifting music can shift mood quickly
- Creative outlets β knitting, crocheting, adult coloring books, and cooking give the mind a gentle focus
- Gentle movement β walking, chair yoga, swimming, or stretching when able
- Spending time outdoors β fresh air and nature can refresh the mind
- Watching funny movies β laughter really is good medicine π
- Gardening or fishing β peaceful, grounding activities that many find deeply calming For brain fog specifically, memory tools can make a big difference day-to-day:
- Daily planners or notebooks to track appointments and tasks
- Google Calendar reminders set at multiple intervals (a week, a day, an hour, 15 minutes before)
- Simple to-do lists on a smartphone
One MyLupusTeam member shared that buying a daily planner and taking it everywhere β especially to appointments β made a huge difference for them. Sleep is also a big one. Brain fog and low mood can get significantly worse with poor sleep. Some helpful tips include:
- Aiming for 7β8 hours per night
- Avoiding caffeine, nicotine, and alcohol before bed
- Creating a sleep-friendly environment (dark, cool, comfortable)
- Planning short naps during the day when needed
- Scheduling any medications that disrupt sleep earlier in the day
Also, being gentle and patient with yourself matters more than it might seem. As one MyLupusTeam member put it, granting yourself grace and forgiveness helps you return to feeling like yourself more quickly. That's wisdom worth holding onto. π
September 21