If you haven't tried it, Wendy, icing the area or applying cold compresses may be worth trying. I hope you get relief and that you have seen your rheumatologist about this flare.😘
September 25
The only thing that remotely brings me relieve is gentle massage and my heating pad. I have on specifically for the neck. So sorry you are dealing with this.💜
September 25
Painful lymph node swelling around the trunk and neck is something many people with lupus deal with, especially during flares. One MyLupusTeam member shared, "My lymph nodes under my arms and groin area are so swollen and painful — it's been going on for eight months." So you're definitely not alone in this frustration!
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Painful lymph node swelling around the trunk and neck is something many people with lupus deal with, especially during flares. One MyLupusTeam member shared, "My lymph nodes under my arms and groin area are so swollen and painful — it's been going on for eight months." So you're definitely not alone in this frustration!
Lupus causes the immune system to go into overdrive, triggering inflammation that can make lymph nodes swell. They can pop up in several areas, including:
- Neck and throat
- Underarms
- Groin
- Head As for what can actually help beyond light massage, here are some options worth discussing with your doctor:
- Warm compress or heating pad applied to swollen areas — a MyLupusTeam member noted this helped, especially on the neck
- Stress reduction — one member pointed out that stress makes swelling worse
- Corticosteroids or immunosuppressive medications — your doctor may adjust your treatment to better control the inflammation driving the swelling
- Blood tests or a lymph node biopsy — to rule out other underlying causes if swelling persists
It's really important to let your healthcare team know if the swelling is worsening, painful to touch, or has lasted more than a few weeks. They may need to revisit your current treatment plan.
September 25
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