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advised to stop taking Hydroxychloroquine, so my SLE and Sjorgensare left untreated, any advice would be appreciated

October 16
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A MyLupusTeam Member

Please talk to your doctor and ask what other medications they suggest. Also, do your own research to be prepared for the discussion.

October 16
MyLupusTeam

That's a really tough situation, and it's completely understandable to feel concerned about managing your lupus without hydroxychloroquine. The good news is that hydroxychloroquine isn't the only treatment option available for SLE.

It's really important to speak with your rheumatologist as soon as possible about alternative Show Full Answer

That's a really tough situation, and it's completely understandable to feel concerned about managing your lupus without hydroxychloroquine. The good news is that hydroxychloroquine isn't the only treatment option available for SLE.

It's really important to speak with your rheumatologist as soon as possible about alternative treatments. There are other medications that can help manage lupus symptoms, including:

- Immunosuppressants like methotrexate, which can help control inflammation
- Corticosteroids like prednisone or methylprednisolone, which can help manage flares
- Biologics such as belimumab (Benlysta), which are specifically approved for SLE Since stopping hydroxychloroquine can increase the risk of lupus flares, it's especially important to monitor your symptoms closely right now. Watch out for warning signs like:

- Rashes
- Swollen or painful joints
- Fever without an infection
- Extreme tiredness
- Mouth or nose sores

Keep in mind that hydroxychloroquine can stay in your system for around three months after stopping, so some protection may still be present for now.

The most important step is to contact your rheumatologist promptly to discuss a new treatment plan tailored to your situation. You shouldn't have to go without treatment — there are options out there! 💙

October 16

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