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Lupus

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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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Has Plaquenil Helped You?

Has Plaquenil Helped You?

From the beginning of treatment my rheumy put me on 400mg of Plaquenil daily. I take one pill in the morning and one at night. I struggled sticking to my meds and treatment plan for the first couple months or my diagnosis because I was in denial and didn't really believe it so I just recently started taking my medications again as prescribed (I was diagnosed October 2015).

The Plaquenil really upsets my stomach. I get acid reflux and it triggers my GERD and I wake up with a sore throat all… read more

A MyLupusTeam Member said:

I have just been put on 200mg twice a day for cutaneous lupus. Originally was happy with it but after 5 weeks noticed heart palpitations that got worse each night to the point I couldn’t get to sleep… read more

posted 21 days ago

Memory/dizziness

Memory/dizziness

I keep getting head spins and have noticed my memory seems to have just gone. I'll be asked to do something and 2 mins later, I've completely forgotten. Does anyone know if memory fog/loss is mainly during a flare up or does it come back?

A MyLupusTeam Member said:

I also have that slurred speech at times. I forget alot of things. Sometimes in a middle of a conversation I forget what we were talking about. I think I am going crazy..

posted 9 days ago

Insomnia

Insomnia

Any ideas to help with insomnia?

A MyLupusTeam Member said:

Benadryl

posted 5 months ago

How Do People React When You Tell Tr Hem You Have Lupus?

How Do People React When You Tell Tr Hem You Have Lupus?

how do people react when you tell them you have Lupus usually get a strange reaction .like Oh my God..I don't want pitty nor do I like that reaction..i was just wanted to know your experiences..

A MyLupusTeam Member said:

They take a step back like they can "catch it" from me!

posted about 2 months ago

Does Anyone Have Good Treatments For Mouth Sores?

Does Anyone Have Good Treatments For Mouth Sores?

Does anyone have good treatments for mouth sores? I’ve gotten painful lesions on my tongue and inside my mouth for the last 35 years, and only recently found a couple products that helped. The best one is the over the counter Colgate mouthwash called Peroxyl. You are only supposed to use it for a week, but mine were gone in five days. The other thing I found is L-Lysine, an over the counter protein precursor. I take it daily and after serval weeks it started helping my mouth sores but… read more

A MyLupusTeam Member said:

My pediatrician once told me mouth sores are just like the ulcers in your stomach. Do 1 dose of mylanta I think that’s a tablespoon that’s what I do and smash 1 Benadryl tablet and mix together… read more

posted 21 days ago

Work Through The Burn Or Rest?

Work Through The Burn Or Rest?

I am new to the Lupie world and have a question. On the days, mornings, nights when you are not in a flare but, feeling extreme exhaustion and pain which is better? Do you push through the pain or rest til it passes? I am finding myself washing dishes with a dizzy head and shaking hands, doing laundry on the floor because I cannot stand to fold, and I have started to sleep downstairs more due to the stairs. On the days I'm pushing through I find myself praying that I make it through without… read more

A MyLupusTeam Member said:

Don't do that to your self. Cloths can wait. Dishes can wait. You gotta take care of your body first. Just go to bed and rest. It will pass eventually

posted 3 months ago

Memory Loss

Memory Loss

My question is about memory issues. I hear people talk all the time about memory fog but I sometimes feel like that is not accurate for what I am experiencing. I am forgetting simple things like spelling words correctly, finding the right words to make sentences, forgetting names and faces of people I should know and this is the small stuff. I have laughed it off from time to time. I went to eat with my co workers and when the waitress brought our food out I forgot what I ordered! I luckily… read more

A MyLupusTeam Member said:

I keep going over and over it in my head or i forget too

posted about 23 hours ago

Anyone Experience A Leg Rash (little Red Dots)?.

Anyone Experience A Leg Rash (little Red Dots)?.

They are not raised and don't itch or hurt

A MyLupusTeam Member said:

I've had Lupus for 6 years now and I listen to all of you and they are some of what I have been thru. Along with the Lupus I had shingles 2times. with that i have had every cream you can think of the… read more

posted 16 days ago
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