Lupus

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1 medium

Has Plaquenil helped you?

Has Plaquenil helped you?

From the beginning of treatment my rheumy put me on 400mg of Plaquenil daily. I take one pill in the morning and one at night. I struggled sticking to my meds and treatment plan for the first couple months or my diagnosis because I was in denial and didn't really believe it so I just recently started taking my medications again as prescribed (I was diagnosed October 2015).

The Plaquenil really upsets my stomach. I get acid reflux and it triggers my GERD and I wake up with a sore throat… read more

3 mini
A MyLupusTeam Member said:

I also was in denial for 2 years after my diagnosis. I keep getting inflammation in my spine and for 3 years had 3 back surgeries (lamenectomies).… read more

posted 5 days ago
8 medium

Insomnia

Insomnia

Any ideas to help with insomnia?

3 mini
A MyLupusTeam Member said:

Is a lower dose of Trazadone available? Some people are more sensitive to certain medications. I started it two months ago (1 tablet) for the insomnia… read more

posted 16 days ago
8 medium

How do people react when you tell tr hem you have Lupus?

How do people react when you tell tr hem you have Lupus?

how do people react when you tell them you have Lupus usually get a strange reaction .like Oh my God..I don't want pitty nor do I like that reaction..i was just wanted to know your experiences..

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A MyLupusTeam Member said:

Some ask for information about it and some know people who have it. Good time for teaching.

posted about 2 months ago
2 medium

Memory/dizziness

Memory/dizziness

I keep getting head spins and have noticed my memory seems to have just gone. I'll be asked to do something and 2 mins later, I've completely forgotten. Does anyone know if memory fog/loss is mainly during a flare up or does it come back?

5 mini
A MyLupusTeam Member said:

Absolutely !

posted about 2 months ago
0 medium

Work through the burn or rest?

Work through the burn or rest?

I am new to the Lupie world and have a question. On the days, mornings, nights when you are not in a flare but, feeling extreme exhaustion and pain which is better? Do you push through the pain or rest til it passes? I am finding myself washing dishes with a dizzy head and shaking hands, doing laundry on the floor because I cannot stand to fold, and I have started to sleep downstairs more due to the stairs. On the days I'm pushing through I find myself praying that I make it through… read more

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A MyLupusTeam Member said:

Hi, you need to rest yourself as much as you can. And listen to your body, it will let you know when you need to slow down or even lay down to rest! The… read more

posted 3 months ago
9 medium

Sweat

Sweat

Does anybody else start sweating for no apparent reason what so ever? I'm mean I shower every day. This is a sweat of my hair completely wet like I just washed it. I went through change long time ago so it isn't that.

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A MyLupusTeam Member said:

Vitamin D is important for sure.

posted 1 day ago
2 medium

What do you all use for insomnia???

What do you all use for insomnia???

I can get to sleep but have trouble staying asleep... Wake up several times a night

2 mini
A MyLupusTeam Member said:

Marijuana

posted 12 days ago
4 medium

Insomnia

Insomnia

Is it common for SLE patients to have insomnia? It is always hard for me to fall asleep..

3 mini
A MyLupusTeam Member said:

The body's immune response is regulated by cytokines, which act as signaling molecules in immune system and the brain. ... Cytokines also increase and… read more

posted about 2 months ago
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