Lupus

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1 medium

Has Plaquenil helped you?

From the beginning of treatment my rheumy put me on 400mg of Plaquenil daily. I take one pill in the morning and one at night. I struggled sticking to my meds and treatment plan for the first couple months or my diagnosis because I was in denial and didn't really believe it so I just recently started taking my medications again as prescribed (I was diagnosed October 2015).

The Plaquenil really upsets my stomach. I get acid reflux and it triggers my GERD and I wake up with a sore throat… read more

edited, originally posted almost 3 years ago
A MyLupusTeam Member said:

I use the CBD oil 500 mg twice a day and I also use the lotion. I am hoping to stop plaquenil. I did stop methotrexate due to asthma triggers. Predisone… read more

posted 3 days ago
8 medium

Insomnia

Any ideas to help with insomnia?

posted almost 3 years ago
A MyLupusTeam Member said:

I have been having trouble sleeping at night so I mentioned to my doc and he prescribed lunesta and I take it when I begin to feel tired the pill will… read more

posted 18 days ago
8 medium

How do people react when you tell tr hem you have Lupus?

how do people react when you tell them you have Lupus usually get a strange reaction .like Oh my God..I don't want pitty nor do I like that reaction..i was just wanted to know your experiences..

posted almost 3 years ago
A MyLupusTeam Member said:

You don't look sick l hear that all the time

posted about 2 months ago
2 medium

Memory/dizziness

I keep getting head spins and have noticed my memory seems to have just gone. I'll be asked to do something and 2 mins later, I've completely forgotten. Does anyone know if memory fog/loss is mainly during a flare up or does it come back?

posted 10 months ago
A MyLupusTeam Member said:

A flare is generally considered at action which is triggered by an outside source. Such as being out in the sun to long and getting a rash. The sun… read more

posted 2 days ago
0 medium

Work through the burn or rest?

I am new to the Lupie world and have a question. On the days, mornings, nights when you are not in a flare but, feeling extreme exhaustion and pain which is better? Do you push through the pain or rest til it passes? I am finding myself washing dishes with a dizzy head and shaking hands, doing laundry on the floor because I cannot stand to fold, and I have started to sleep downstairs more due to the stairs. On the days I'm pushing through I find myself praying that I make it through… read more

posted almost 3 years ago
A MyLupusTeam Member said:

That was so me a year ago I learned to listen to your body if your body doing all that it’s okay to rest in between things trust me it would keep you… read more

posted 21 days ago
9 medium

Sweat

Does anybody else start sweating for no apparent reason what so ever? I'm mean I shower every day. This is a sweat of my hair completely wet like I just washed it. I went through change long time ago so it isn't that.

posted over 2 years ago
A MyLupusTeam Member said:

I get it all the time!!

posted 22 days ago
2 medium

What do you all use for insomnia???

I can get to sleep but have trouble staying asleep... Wake up several times a night

posted 10 months ago
A MyLupusTeam Member said:

I stay out in front room and watch TV till I get so sleepy I have to fumble to bed. I use a CPAP, Magnesium, chamomile tea and anything I can find to… read more

posted 5 days ago
4 medium

Insomnia

Is it common for SLE patients to have insomnia? It is always hard for me to fall asleep..

posted almost 3 years ago
A MyLupusTeam Member said:

Same here but that’s apart of it

posted 21 days ago
4 medium

Has anyone else experienced insomnia?

I've been going through this long bout of insomnia for months and the doctors are not doing anything about it... GRRRR! I just wanna sleep! I'm up until 4-5am everyday and then I sleep until about 11am at the latest. It's really wearing me thin. When I explain my fatigue to the doc, they tell me I'm depressed and I really don't think I am. I just need adequate rest. When I awake from the few hrs sleep, I'm in pain and want to lay around for hours... help!

posted over 3 years ago
A MyLupusTeam Member said:

have you tried a a weighted blanket? I have one and use it from time to time and found it helps me sleep also helps with pain most of the time.

posted about 2 months ago
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