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Lupus

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Has Plaquenil Helped You?

Has Plaquenil Helped You?

From the beginning of treatment my rheumy put me on 400mg of Plaquenil daily. I take one pill in the morning and one at night. I struggled sticking to my meds and treatment plan for the first couple months or my diagnosis because I was in denial and didn't really believe it so I just recently started taking my medications again as prescribed (I was diagnosed October 2015).

The Plaquenil really upsets my stomach. I get acid reflux and it triggers my GERD and I wake up with a sore throat… read more

A MyLupusTeam Member said:

I have been on plaquenil for 20 yrs & just started on Methotrexate 2yrs ago. I take a more purified form of folic acid called Methyfolate. You can… read more

posted 24 days ago

Memory/dizziness

Memory/dizziness

I keep getting head spins and have noticed my memory seems to have just gone. I'll be asked to do something and 2 mins later, I've completely forgotten. Does anyone know if memory fog/loss is mainly during a flare up or does it come back?

A MyLupusTeam Member said:

We're all going through a lot of the same..I'm just so tired of feeling this way.

posted 1 day ago

Insomnia

Insomnia

Any ideas to help with insomnia?

A MyLupusTeam Member said:

Warm milk, add tumeric, cinnamon and if you have ghee that would be great.

posted about 2 months ago

How Do People React When You Tell Tr Hem You Have Lupus?

How Do People React When You Tell Tr Hem You Have Lupus?

how do people react when you tell them you have Lupus usually get a strange reaction .like Oh my God..I don't want pitty nor do I like that reaction..i was just wanted to know your experiences..

A MyLupusTeam Member said:

Most have not heard of Lupus. I try to make a point to encourage the to Google this and learn more about it. I also share what I have gone through.

posted 4 months ago

Work Through The Burn Or Rest?

Work Through The Burn Or Rest?

I am new to the Lupie world and have a question. On the days, mornings, nights when you are not in a flare but, feeling extreme exhaustion and pain which is better? Do you push through the pain or rest til it passes? I am finding myself washing dishes with a dizzy head and shaking hands, doing laundry on the floor because I cannot stand to fold, and I have started to sleep downstairs more due to the stairs. On the days I'm pushing through I find myself praying that I make it through… read more

A MyLupusTeam Member said:

Make them aware of what you are going through and ask for their help if possible. Simple things to do to help like bringing their dishes to the sink and… read more

posted 3 months ago

Sweat

Sweat

Does anybody else start sweating for no apparent reason what so ever? I'm mean I shower every day. This is a sweat of my hair completely wet like I just washed it. I went through change long time ago so it isn't that.

A MyLupusTeam Member said:

Yes

posted 3 months ago

Does Anyone Have Good Treatments For Mouth Sores?

Does Anyone Have Good Treatments For Mouth Sores?

Does anyone have good treatments for mouth sores? I’ve gotten painful lesions on my tongue and inside my mouth for the last 35 years, and only recently found a couple products that helped. The best one is the over the counter Colgate mouthwash called Peroxyl. You are only supposed to use it for a week, but mine were gone in five days. The other thing I found is L-Lysine, an over the counter protein precursor. I take it daily and after serval weeks it started… read more

A MyLupusTeam Member said:

MY Mother, use to tell me an old fashion thing--I do not know if it will work for
you. People were using this before they had any anti=biotoc mouth… read more

posted 9 days ago

What Do You All Use For Insomnia???

What Do You All Use For Insomnia???

I can get to sleep but have trouble staying asleep... Wake up several times a night

A MyLupusTeam Member said:

I use trazadone low dose and a heating pad and put heavy pillows on my back to fall asleep on tummy
The earlier I go to bed 5e better I do ... strange… read more

posted 19 days ago
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