Connect with others who understand.

sign up log in
About MyLupusTeam

Lupus

Questions + Answers

Don't see your question? ask question
Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
View:

Has Plaquenil Helped You?

Has Plaquenil Helped You?

From the beginning of treatment my rheumy put me on 400mg of Plaquenil daily. I take one pill in the morning and one at night. I struggled sticking to my meds and treatment plan for the first couple months or my diagnosis because I was in denial and didn't really believe it so I just recently started taking my medications again as prescribed (I was diagnosed October 2015).

The Plaquenil really upsets my stomach. I get acid reflux and it triggers my GERD and I wake up with a sore throat all… read more

A MyLupusTeam Member said:

Dang your. Brave not to take your meds. I was in so much pain and my meds helped with the inflammation

posted 3 days ago

Memory/dizziness

Memory/dizziness

I keep getting head spins and have noticed my memory seems to have just gone. I'll be asked to do something and 2 mins later, I've completely forgotten. Does anyone know if memory fog/loss is mainly during a flare up or does it come back?

A MyLupusTeam Member said:

@FrederickaJ my eldest sister had been keeping up with my injections bc it had been getting so bad. After my last migraineous episode resembling a stroke and nobody could gather names of meds or… read more

posted about 1 month ago

Insomnia

Insomnia

Any ideas to help with insomnia?

A MyLupusTeam Member said:

Benadryl

posted about 1 month ago

How Do People React When You Tell Tr Hem You Have Lupus?

How Do People React When You Tell Tr Hem You Have Lupus?

how do people react when you tell them you have Lupus usually get a strange reaction .like Oh my God..I don't want pitty nor do I like that reaction..i was just wanted to know your experiences..

A MyLupusTeam Member said:

Most have not heard of Lupus. I try to make a point to encourage the to Google this and learn more about it. I also share what I have gone through.

posted over 1 year ago

Does Anyone Have Good Treatments For Mouth Sores?

Does Anyone Have Good Treatments For Mouth Sores?

Does anyone have good treatments for mouth sores? I’ve gotten painful lesions on my tongue and inside my mouth for the last 35 years, and only recently found a couple products that helped. The best one is the over the counter Colgate mouthwash called Peroxyl. You are only supposed to use it for a week, but mine were gone in five days. The other thing I found is L-Lysine, an over the counter protein precursor. I take it daily and after serval weeks it started helping my mouth sores but… read more

A MyLupusTeam Member said:

Magic Mouthwash prescription from your doctor. It is amazing.

posted 18 days ago

Is Anyone Really Sensitive To The Touch? For Instance, My Lower Legs Hurt So Much With The Slightest Amount Of Pressure.

Is Anyone Really Sensitive To The Touch? For Instance, My Lower Legs Hurt So Much With The Slightest Amount Of Pressure.

A MyLupusTeam Member said:

Yes I have the same thing. My skin feels like I have an extremely bad sun burn. Especially my leg. I hate to put on long pants and a bra. And it causes me to have trouble sleeping at night.

posted about 1 month ago

Work Through The Burn Or Rest?

Work Through The Burn Or Rest?

I am new to the Lupie world and have a question. On the days, mornings, nights when you are not in a flare but, feeling extreme exhaustion and pain which is better? Do you push through the pain or rest til it passes? I am finding myself washing dishes with a dizzy head and shaking hands, doing laundry on the floor because I cannot stand to fold, and I have started to sleep downstairs more due to the stairs. On the days I'm pushing through I find myself praying that I make it through without… read more

A MyLupusTeam Member said:

You are so right, PattieMahler. I am suffering today because of doing too much yesterday. I'm starting to ask for more and more help doing things because I hate wasting a whole day recovering the… read more

posted about 1 month ago

What Do You All Use For Insomnia???

What Do You All Use For Insomnia???

I can get to sleep but have trouble staying asleep... Wake up several times a night

A MyLupusTeam Member said:

Tried gummy weed.unlike smoking it, I had a hard time regulating the amount. Start with a very small piece and go from there. I'm gradually coming around to weed for sleep, pain and spasm. Being a… read more

posted about 1 month ago

Anyone Experience A Leg Rash (little Red Dots)?.

Anyone Experience A Leg Rash (little Red Dots)?.

They are not raised and don't itch or hurt

A MyLupusTeam Member said:

I get spots has anyone experience this

posted 4 days ago
Already a Member? Log in
MyLupusTeam My lupus Team

Thank you for signing up.

close