Questions & Answers
Get practical advice and insights from people who understand
Has Plaquenil Helped You?
Has Plaquenil Helped You?
From the beginning of treatment my rheumy put me on 400mg of Plaquenil daily. I take one pill in the morning and one at night. I struggled sticking to my meds and treatment plan for the first couple months or my diagnosis because I was in denial and didn't really believe it so I just recently started taking my medications again as prescribed (I was diagnosed October 2015).
The Plaquenil really upsets my stomach. I get acid reflux and it triggers my GERD and I wake up with a sore throat all… read more
Does Anybody Have Trouble Find Words When They Are Speaking To Someone , Or Have Difficulty Concentrating?
Does Anybody Have Trouble Find Words When They Are Speaking To Someone , Or Have Difficulty Concentrating?
I am a Literature teacher. I lecture ALL DAY. This has become an obstacle for me. It's not just that my throat and mouth don't want to make the words, but while they are trying to get their act… read more
Memory/dizziness
Memory/dizziness
I keep getting head spins and have noticed my memory seems to have just gone. I'll be asked to do something and 2 mins later, I've completely forgotten. Does anyone know if memory fog/loss is mainly during a flare up or does it come back?
I started to take a cocktail of mushrooms(11:11) to help my memory. I noticed that it is helping me. Medicinal mushrooms has a lot of benefits for the brain. The company is from Canada, Rainbo.com… read more
What Advice Do You Have For Others About Managing Fatigue?
What Do You Find The Most Challenging About Living With Lupus?
Insomnia
How Do People React When You Tell Tr Hem You Have Lupus?
How Do People React When You Tell Tr Hem You Have Lupus?
how do people react when you tell them you have Lupus usually get a strange reaction .like Oh my God..I don't want pitty nor do I like that reaction..i was just wanted to know your experiences..
What Foods Do You Eat To Help Manage Your Condition? Which Ones Do You Avoid?
Does Anyone Have Good Treatments For Mouth Sores?
Does Anyone Have Good Treatments For Mouth Sores?
Does anyone have good treatments for mouth sores? I’ve gotten painful lesions on my tongue and inside my mouth for the last 35 years, and only recently found a couple products that helped. The best one is the over the counter Colgate mouthwash called Peroxyl. You are only supposed to use it for a week, but mine were gone in five days. The other thing I found is L-Lysine, an over the counter protein precursor. I take it daily and after serval weeks it started helping my mouth sores but… read more
