Lupus

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1 medium

Has Plaquenil helped you?

From the beginning of treatment my rheumy put me on 400mg of Plaquenil daily. I take one pill in the morning and one at night. I struggled sticking to my meds and treatment plan for the first couple months or my diagnosis because I was in denial and didn't really believe it so I just recently started taking my medications again as prescribed (I was diagnosed October 2015).

The Plaquenil really upsets my stomach. I get acid reflux and it triggers my GERD and I wake up with a sore throat… read more

edited, originally posted about 3 years ago
A MyLupusTeam Member said:

I know this may not be what you want to hear. But I feel your pain I was on medication for years for sleep and anxiety. Just like Oxy's the doctor got… read more

posted 29 minutes ago
8 medium

Insomnia

Any ideas to help with insomnia?

posted about 3 years ago
A MyLupusTeam Member said:

@A MyLupusTeam Member, lupus may not be on the list, but likely most of the symptoms like insomnia, pain etc should be on the list.

posted about 7 hours ago
8 medium

How do people react when you tell tr hem you have Lupus?

how do people react when you tell them you have Lupus usually get a strange reaction .like Oh my God..I don't want pitty nor do I like that reaction..i was just wanted to know your experiences..

posted about 3 years ago
A MyLupusTeam Member said:

Ah long do u hàve

posted about 16 hours ago
2 medium

Memory/dizziness

I keep getting head spins and have noticed my memory seems to have just gone. I'll be asked to do something and 2 mins later, I've completely forgotten. Does anyone know if memory fog/loss is mainly during a flare up or does it come back?

posted about 1 year ago
A MyLupusTeam Member said:

When I'm having a brain fog moment. I usually just stop and take a moment . I tell myself you were washing dishes for example. I make notes and I do one… read more

posted 3 days ago
0 medium

Work through the burn or rest?

I am new to the Lupie world and have a question. On the days, mornings, nights when you are not in a flare but, feeling extreme exhaustion and pain which is better? Do you push through the pain or rest til it passes? I am finding myself washing dishes with a dizzy head and shaking hands, doing laundry on the floor because I cannot stand to fold, and I have started to sleep downstairs more due to the stairs. On the days I'm pushing through I find myself praying that I make it through… read more

posted about 3 years ago
A MyLupusTeam Member said:

Could you tell me where exactly you have the pain? People talk about pain but I know we all have it different places. For me the fatigue is super bad,… read more

posted 6 days ago
9 medium

Sweat

Does anybody else start sweating for no apparent reason what so ever? I'm mean I shower every day. This is a sweat of my hair completely wet like I just washed it. I went through change long time ago so it isn't that.

posted over 2 years ago
A MyLupusTeam Member said:

God bless you

posted 7 days ago
2 medium

What do you all use for insomnia???

I can get to sleep but have trouble staying asleep... Wake up several times a night

posted about 1 year ago
A MyLupusTeam Member said:

That's the story of my life. My doctor wanted to give me Lunesta but I had taken it in the past and I was dizzy the next morning. So I decided not to… read more

posted 11 days ago
4 medium

Insomnia

Is it common for SLE patients to have insomnia? It is always hard for me to fall asleep..

posted about 3 years ago
A MyLupusTeam Member said:

Hi Denise, I had surgery yesterday. And I couldn't sleep last night. But I be so sleepy but I am resting

posted about 2 months ago
4 medium

Is anyone really sensitive to the touch? For instance, my lower legs hurt so much with the slightest amount of pressure.

posted about 1 year ago
A MyLupusTeam Member said:

yes my legs are sensitive and so is my ENTIRE body. it feels like every inch of my skin is being electrocuted at times...especially when i lay down to… read more

posted 8 days ago
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