Lupus

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Has Plaquenil helped you?

Has Plaquenil helped you?

From the beginning of treatment my rheumy put me on 400mg of Plaquenil daily. I take one pill in the morning and one at night. I struggled sticking to my meds and treatment plan for the first couple months or my diagnosis because I was in denial and didn't really believe it so I just recently started taking my medications again as prescribed (I was diagnosed October 2015).

The Plaquenil really upsets my stomach. I get acid reflux and it triggers my GERD and I wake up with a sore throat… read more

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A MyLupusTeam Member said:

I’m sorry to hear when things are not working out. I have been on plaquenil for 37 years. It has helped to keep me comfortable all that time. I have had… read more

posted 10 days ago
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Insomnia

Insomnia

Any ideas to help with insomnia?

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A MyLupusTeam Member said:

Tried that years ago and it only worked for a short time. Back before the FDA and CDC got involved with everyones medications, I was prescribed Ambien… read more

posted about 1 month ago
2 medium

Memory/dizziness

Memory/dizziness

I keep getting head spins and have noticed my memory seems to have just gone. I'll be asked to do something and 2 mins later, I've completely forgotten. Does anyone know if memory fog/loss is mainly during a flare up or does it come back?

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A MyLupusTeam Member said:

Mvmsplace >Melissa Lauro. So sorry that your Mom want understand..I think sometimes people say those things for they dont know what to say I do know… read more

posted 5 days ago
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How do people react when you tell tr hem you have Lupus?

How do people react when you tell tr hem you have Lupus?

how do people react when you tell them you have Lupus usually get a strange reaction .like Oh my God..I don't want pitty nor do I like that reaction..i was just wanted to know your experiences..

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A MyLupusTeam Member said:

Some ask for information about it and some know people who have it. Good time for teaching.

posted 3 months ago
0 medium

Work through the burn or rest?

Work through the burn or rest?

I am new to the Lupie world and have a question. On the days, mornings, nights when you are not in a flare but, feeling extreme exhaustion and pain which is better? Do you push through the pain or rest til it passes? I am finding myself washing dishes with a dizzy head and shaking hands, doing laundry on the floor because I cannot stand to fold, and I have started to sleep downstairs more due to the stairs. On the days I'm pushing through I find myself praying that I make it through… read more

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A MyLupusTeam Member said:

I agree with you Vicki. You have to rest, if you don’t you will not only feel exhausted, you will be stealing spoons from the next day.

posted about 1 month ago
9 medium

Sweat

Sweat

Does anybody else start sweating for no apparent reason what so ever? I'm mean I shower every day. This is a sweat of my hair completely wet like I just washed it. I went through change long time ago so it isn't that.

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A MyLupusTeam Member said:

I have the same problem. With very little activity I start sweating even my hair is dripping in winter and summer. I try to do a little bit and rest. It… read more

posted about 1 month ago
2 medium

What do you all use for insomnia???

What do you all use for insomnia???

I can get to sleep but have trouble staying asleep... Wake up several times a night

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A MyLupusTeam Member said:

@ChristineLeBec - Hi. I saw your response and wanted to let you know that melatonin can boost your immune system, exacerbating your lupus. You may want… read more

posted about 1 month ago
4 medium

Insomnia

Insomnia

Is it common for SLE patients to have insomnia? It is always hard for me to fall asleep..

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A MyLupusTeam Member said:

or get a Lava Lamp it seems to make my bedroom more chilled out and use Essential Oils such as Peppermint oil or Lavender with a cup of hot chocolate or… read more

posted 27 days ago
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