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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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Has Plaquenil Helped You?

Has Plaquenil Helped You?

From the beginning of treatment my rheumy put me on 400mg of Plaquenil daily. I take one pill in the morning and one at night. I struggled sticking to my meds and treatment plan for the first couple months or my diagnosis because I was in denial and didn't really believe it so I just recently started taking my medications again as prescribed (I was diagnosed October 2015).

The Plaquenil really upsets my stomach. I get acid reflux and it triggers my GERD and I wake up with a sore throat all… read more

posted January 27, 2016 (edited)
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A MyLupusTeam Member

I no longer take Plaquenil. I’m on Gingraf 100mg capsules. I had a renal transplant last year.

posted March 24

Does Anybody Have Trouble Find Words When They Are Speaking To Someone , Or Have Difficulty Concentrating?

Does Anybody Have Trouble Find Words When They Are Speaking To Someone , Or Have Difficulty Concentrating?

posted January 11, 2015
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A MyLupusTeam Member

I am a Literature teacher. I lecture ALL DAY. This has become an obstacle for me. It's not just that my throat and mouth don't want to make the words, but while they are trying to get their act… read more

posted November 19

Memory/dizziness

Memory/dizziness

I keep getting head spins and have noticed my memory seems to have just gone. I'll be asked to do something and 2 mins later, I've completely forgotten. Does anyone know if memory fog/loss is mainly during a flare up or does it come back?

posted February 11, 2018
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A MyLupusTeam Member

I started to take a cocktail of mushrooms(11:11) to help my memory. I noticed that it is helping me. Medicinal mushrooms has a lot of benefits for the brain. The company is from Canada, Rainbo.com… read more

posted 7 days ago

What Advice Do You Have For Others About Managing Fatigue?

What Advice Do You Have For Others About Managing Fatigue?

posted April 27
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A MyLupusTeam Member

Heavy as un abrazo de oso 🙏y orando por todos

posted October 14

What Do You Find The Most Challenging About Living With Lupus?

What Do You Find The Most Challenging About Living With Lupus?

posted August 31
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A MyLupusTeam Member

That's all you can do is keep on going. No one seems to understand when fatigue hits and you're overtired, especially after they've watched you have the energy of a parent. We have this unseen disease… read more

posted 1 day ago

Insomnia

Insomnia

Any ideas to help with insomnia?

posted January 26, 2016
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A MyLupusTeam Member

Medical marijuana helps! Indica is the best to help fix your sleep. They sell it in chocolate or in oil drops. If you can't afford going to a doctor specialized in this, or the marijuana itself, maybe… read more

posted July 1

How Do People React When You Tell Tr Hem You Have Lupus?

How Do People React When You Tell Tr Hem You Have Lupus?

how do people react when you tell them you have Lupus usually get a strange reaction .like Oh my God..I don't want pitty nor do I like that reaction..i was just wanted to know your experiences..

posted January 21, 2016
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A MyLupusTeam Member

Since I'm African-American, the majority tell me that they knew someone with Lupus. A moderate % say that person is now deceased😥 If they seemed interested I share some of the advances in modern… read more

posted August 29

Does Anyone Have Good Treatments For Mouth Sores?

Does Anyone Have Good Treatments For Mouth Sores?

Does anyone have good treatments for mouth sores? I’ve gotten painful lesions on my tongue and inside my mouth for the last 35 years, and only recently found a couple products that helped. The best one is the over the counter Colgate mouthwash called Peroxyl. You are only supposed to use it for a week, but mine were gone in five days. The other thing I found is L-Lysine, an over the counter protein precursor. I take it daily and after serval weeks it started helping my mouth sores but… read more

posted March 3, 2018
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A MyLupusTeam Member

I will have to try that, thank you #CarolynWells

posted October 9

Is Anyone Really Sensitive To The Touch? For Instance, My Lower Legs Hurt So Much With The Slightest Amount Of Pressure.

Is Anyone Really Sensitive To The Touch? For Instance, My Lower Legs Hurt So Much With The Slightest Amount Of Pressure.

posted February 12, 2018
Last of 285 replies sign up to view previous answers
A MyLupusTeam Member

Yes. Sometimes I can’t stand even a blanket touching me. It’s like my entire body is sore to the touch

posted October 26
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