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From the beginning of treatment my rheumy put me on 400mg of Plaquenil daily. I take one pill in the morning and one at night. I struggled sticking to my meds and treatment plan for the first couple months or my diagnosis because I was in denial and didn't really believe it so I just recently started taking my medications again as prescribed (I was diagnosed October 2015).
The Plaquenil really upsets my stomach. I get acid reflux and it triggers my GERD and I wake up with a sore throat all… read more
I was on 400 mg of plaque renal A-day from 2010 until 2018 and my roommateologist only took me off of it because I was in I see you for a week with supticemia because of a blood infection from a… read more
Yes I can relate. I struggle to find the word I know I want.
I keep getting head spins and have noticed my memory seems to have just gone. I'll be asked to do something and 2 mins later, I've completely forgotten. Does anyone know if memory fog/loss is mainly during a flare up or does it come back?
I'm almost constantly dizzy and lightheaded. When I walk it usually feels like I'm walking on a slanted floor. I trip and stumble quite a bit. Sometimes a hard fall which usually results in bad… read more
Steroids' mess up your adrenals and then the docs don't understand adrenal fatigue. It is a real problem. Still doing my research on this problem...will keep y'all posted on findings. i am doing… read more
feliz Ano 2023 adelante y un día a la vez 🙏con Dios todo se puede no es fácil pero con fe todo es posible bendiciones 😍
how do people react when you tell them you have Lupus usually get a strange reaction .like Oh my God..I don't want pitty nor do I like that reaction..i was just wanted to know your experiences..
I feel that when I tell people that I’ve always had Lupus (SLE) they can’t believe it because I’ve always been so vivacious and joyful !!
Any ideas to help with insomnia?
Medical marijuana helps! Indica is the best to help fix your sleep. They sell it in chocolate or in oil drops. If you can't afford going to a doctor specialized in this, or the marijuana itself, maybe… read more
Does anyone have good treatments for mouth sores? I’ve gotten painful lesions on my tongue and inside my mouth for the last 35 years, and only recently found a couple products that helped. The best one is the over the counter Colgate mouthwash called Peroxyl. You are only supposed to use it for a week, but mine were gone in five days. The other thing I found is L-Lysine, an over the counter protein precursor. I take it daily and after serval weeks it started helping my mouth sores but… read more
Yes Lysine helps a great deal, but you can also use Tums believe it or not. If I have a really painful sore I put a Tum in my mouth and just let it sit there on the sore until it's pretty much… read more
I've been doing a whole30/paleo approach and its helped SO much.
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