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Lupus

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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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Has Plaquenil Helped You?

Has Plaquenil Helped You?

From the beginning of treatment my rheumy put me on 400mg of Plaquenil daily. I take one pill in the morning and one at night. I struggled sticking to my meds and treatment plan for the first couple months or my diagnosis because I was in denial and didn't really believe it so I just recently started taking my medications again as prescribed (I was diagnosed October 2015).

The Plaquenil really upsets my stomach. I get acid reflux and it triggers my GERD and I wake up with a sore throat all… read more

A MyLupusTeam Member said:

Yes

posted 2 days ago

Memory/dizziness

Memory/dizziness

I keep getting head spins and have noticed my memory seems to have just gone. I'll be asked to do something and 2 mins later, I've completely forgotten. Does anyone know if memory fog/loss is mainly during a flare up or does it come back?

A MyLupusTeam Member said:

Sorry about your fall. Hope you get all the support and help you need. Sending you love and light your way

posted 2 days ago

Insomnia

Insomnia

Any ideas to help with insomnia?

A MyLupusTeam Member said:

I did try some Marijuana gummies in Seattle and I slept well. I definitely can't inhale no matter what. Maybe it will b legal in Tx 1 day.

posted 17 days ago

How Do People React When You Tell Tr Hem You Have Lupus?

How Do People React When You Tell Tr Hem You Have Lupus?

how do people react when you tell them you have Lupus usually get a strange reaction .like Oh my God..I don't want pitty nor do I like that reaction..i was just wanted to know your experiences..

A MyLupusTeam Member said:

Most have not heard of Lupus. I try to make a point to encourage the to Google this and learn more about it. I also share what I have gone through.

posted over 1 year ago

Does Anyone Have Good Treatments For Mouth Sores?

Does Anyone Have Good Treatments For Mouth Sores?

Does anyone have good treatments for mouth sores? I’ve gotten painful lesions on my tongue and inside my mouth for the last 35 years, and only recently found a couple products that helped. The best one is the over the counter Colgate mouthwash called Peroxyl. You are only supposed to use it for a week, but mine were gone in five days. The other thing I found is L-Lysine, an over the counter protein precursor. I take it daily and after serval weeks it started helping my mouth sores but… read more

A MyLupusTeam Member said:

My dentist gave me some Magic mouth wash. And its helped tremendously.

posted 12 days ago

Work Through The Burn Or Rest?

Work Through The Burn Or Rest?

I am new to the Lupie world and have a question. On the days, mornings, nights when you are not in a flare but, feeling extreme exhaustion and pain which is better? Do you push through the pain or rest til it passes? I am finding myself washing dishes with a dizzy head and shaking hands, doing laundry on the floor because I cannot stand to fold, and I have started to sleep downstairs more due to the stairs. On the days I'm pushing through I find myself praying that I make it through without… read more

A MyLupusTeam Member said:

Make them aware of what you are going through and ask for their help if possible. Simple things to do to help like bringing their dishes to the sink and rinse, believe me the if they can help let… read more

posted about 1 year ago

Sweat

Sweat

Does anybody else start sweating for no apparent reason what so ever? I'm mean I shower every day. This is a sweat of my hair completely wet like I just washed it. I went through change long time ago so it isn't that.

A MyLupusTeam Member said:

My wife talked to her rheumatologist about this and started a prescription of glycopyrrolate. Had to experiment with the dosage (too much causes severe dry mouth) but is keeps her sweating in check.

posted 3 months ago

What Do You All Use For Insomnia???

What Do You All Use For Insomnia???

I can get to sleep but have trouble staying asleep... Wake up several times a night

A MyLupusTeam Member said:

I ise zzquil and melatonin 6mg. But it doesn't always help.

posted 13 days ago
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