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Lupus

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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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Has Plaquenil Helped You?

Has Plaquenil Helped You?

From the beginning of treatment my rheumy put me on 400mg of Plaquenil daily. I take one pill in the morning and one at night. I struggled sticking to my meds and treatment plan for the first couple months or my diagnosis because I was in denial and didn't really believe it so I just recently started taking my medications again as prescribed (I was diagnosed October 2015).

The Plaquenil really upsets my stomach. I get acid reflux and it triggers my GERD and I wake up with a sore throat all… read more

A MyLupusTeam Member said:

I no longer take Plaquenil. I’m on Gingraf 100mg capsules. I had a renal transplant last year.

posted 3 months ago

Memory/dizziness

Memory/dizziness

I keep getting head spins and have noticed my memory seems to have just gone. I'll be asked to do something and 2 mins later, I've completely forgotten. Does anyone know if memory fog/loss is mainly during a flare up or does it come back?

A MyLupusTeam Member said:

Yes, I get very frustraded, sometimes I can't handle people talking to fast, which is bad because; English is my second language and I am Spanish.

posted 5 days ago

Insomnia

Insomnia

Any ideas to help with insomnia?

A MyLupusTeam Member said:

Not at all I just decided to work nights when Iam home I stay up to 4am may sleep 3 hrs some months I’ve been up three days straight

posted 5 days ago

How Do People React When You Tell Tr Hem You Have Lupus?

How Do People React When You Tell Tr Hem You Have Lupus?

how do people react when you tell them you have Lupus usually get a strange reaction .like Oh my God..I don't want pitty nor do I like that reaction..i was just wanted to know your experiences..

A MyLupusTeam Member said:

After 6 years, I am answering your question! I am 72 years old and I live in a retirement community. So, everyone is old here so to speak and they know what lupus is. They are for the most part pretty… read more

posted 3 months ago

What Advice Do You Have For Others About Managing Fatigue?

What Advice Do You Have For Others About Managing Fatigue?

A MyLupusTeam Member said:

@A MyLupusTeam Member thank you for posting a picture of the bottle. I’ve had two bad experiences with aloe vera that was supposed to be 100% and organic. I’ll give this a try.

posted about 18 hours ago

Does Anyone Have Good Treatments For Mouth Sores?

Does Anyone Have Good Treatments For Mouth Sores?

Does anyone have good treatments for mouth sores? I’ve gotten painful lesions on my tongue and inside my mouth for the last 35 years, and only recently found a couple products that helped. The best one is the over the counter Colgate mouthwash called Peroxyl. You are only supposed to use it for a week, but mine were gone in five days. The other thing I found is L-Lysine, an over the counter protein precursor. I take it daily and after serval weeks it started helping my mouth sores but… read more

A MyLupusTeam Member said:

I try to avoid the sun and heat in general as much as possible. I've actually been advised to not use any Colgate products because of the fluoride, apparently it's really bad for mouth sores and… read more

posted 8 days ago

Is Anyone Really Sensitive To The Touch? For Instance, My Lower Legs Hurt So Much With The Slightest Amount Of Pressure.

Is Anyone Really Sensitive To The Touch? For Instance, My Lower Legs Hurt So Much With The Slightest Amount Of Pressure.

A MyLupusTeam Member said:

I used to call mentioned like bruises, after I suffered a severe stroke, my Rheumatologist called it tenderness. During the last 3 to 4 years my neurologist and physical therapist call it spams… read more

posted 11 days ago

Memory Loss

Memory Loss

My question is about memory issues. I hear people talk all the time about memory fog but I sometimes feel like that is not accurate for what I am experiencing. I am forgetting simple things like spelling words correctly, finding the right words to make sentences, forgetting names and faces of people I should know and this is the small stuff. I have laughed it off from time to time. I went to eat with my co workers and when the waitress brought our food out I forgot what I ordered! I luckily… read more

A MyLupusTeam Member said:

Look we are in the same boat

posted 5 days ago
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