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Lupus

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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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Has Plaquenil Helped You?

Has Plaquenil Helped You?

From the beginning of treatment my rheumy put me on 400mg of Plaquenil daily. I take one pill in the morning and one at night. I struggled sticking to my meds and treatment plan for the first couple months or my diagnosis because I was in denial and didn't really believe it so I just recently started taking my medications again as prescribed (I was diagnosed October 2015).

The Plaquenil really upsets my stomach. I get acid reflux and it triggers my GERD and I wake up with a sore throat… read more

A MyLupusTeam Member said:

I've been on plaquenil for 12 years. It has saved me from extreme fatigue. I take both of my tablets of plaquenil together at night before I go to bed.… read more

posted 7 days ago

Memory/dizziness

Memory/dizziness

I keep getting head spins and have noticed my memory seems to have just gone. I'll be asked to do something and 2 mins later, I've completely forgotten. Does anyone know if memory fog/loss is mainly during a flare up or does it come back?

A MyLupusTeam Member said:

Yes!!! The Fog.. I have to write things down . Or ask the same question 2 or 3 times. It gets embarrassing at times. I say it is what it is...

posted 3 days ago

Insomnia

Insomnia

Any ideas to help with insomnia?

A MyLupusTeam Member said:

I see that i answered about a year ago. I was using trazadone but have since moved away from that to help sleep. I now use CBD and medical marijuana, I… read more

posted 3 months ago

How Do People React When You Tell Tr Hem You Have Lupus?

How Do People React When You Tell Tr Hem You Have Lupus?

how do people react when you tell them you have Lupus usually get a strange reaction .like Oh my God..I don't want pitty nor do I like that reaction..i was just wanted to know your experiences..

A MyLupusTeam Member said:

Most have not heard of Lupus. I try to make a point to encourage the to Google this and learn more about it. I also share what I have gone through.

posted 12 months ago

Work Through The Burn Or Rest?

Work Through The Burn Or Rest?

I am new to the Lupie world and have a question. On the days, mornings, nights when you are not in a flare but, feeling extreme exhaustion and pain which is better? Do you push through the pain or rest til it passes? I am finding myself washing dishes with a dizzy head and shaking hands, doing laundry on the floor because I cannot stand to fold, and I have started to sleep downstairs more due to the stairs. On the days I'm pushing through I find myself praying that I make it through… read more

A MyLupusTeam Member said:

Make them aware of what you are going through and ask for their help if possible. Simple things to do to help like bringing their dishes to the sink and… read more

posted 11 months ago

Does Anyone Have Good Treatments For Mouth Sores?

Does Anyone Have Good Treatments For Mouth Sores?

Does anyone have good treatments for mouth sores? I’ve gotten painful lesions on my tongue and inside my mouth for the last 35 years, and only recently found a couple products that helped. The best one is the over the counter Colgate mouthwash called Peroxyl. You are only supposed to use it for a week, but mine were gone in five days. The other thing I found is L-Lysine, an over the counter protein precursor. I take it daily and after serval weeks it started… read more

A MyLupusTeam Member said:

Orajel medicated helps me

posted 16 days ago

Anyone Experience A Leg Rash (little Red Dots)?.

Anyone Experience A Leg Rash (little Red Dots)?.

They are not raised and don't itch or hurt

A MyLupusTeam Member said:

Hello everyone I received over 400 emails from everyone who has Lupus. I am so sorry but, I come here to cut down on some emails. The ones I answer are… read more

posted 8 days ago
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