Lupus

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Has Plaquenil helped you?

Has Plaquenil helped you?

From the beginning of treatment my rheumy put me on 400mg of Plaquenil daily. I take one pill in the morning and one at night. I struggled sticking to my meds and treatment plan for the first couple months or my diagnosis because I was in denial and didn't really believe it so I just recently started taking my medications again as prescribed (I was diagnosed October 2015).

The Plaquenil really upsets my stomach. I get acid reflux and it triggers my GERD and I wake up with a sore throat… read more

A MyLupusTeam Member said:

Do you eat something when you take your meds?

posted 12 days ago

Memory/dizziness

Memory/dizziness

I keep getting head spins and have noticed my memory seems to have just gone. I'll be asked to do something and 2 mins later, I've completely forgotten. Does anyone know if memory fog/loss is mainly during a flare up or does it come back?

A MyLupusTeam Member said:

Has anyone tried the autoimmune protocol diet? Has it helped? Are there any other diets you have found that have made a difference in how you feel?

posted 5 days ago

Insomnia

Insomnia

Any ideas to help with insomnia?

A MyLupusTeam Member said:

Tried that years ago and it only worked for a short time. Back before the FDA and CDC got involved with everyones medications, I was prescribed Ambien… read more

posted 5 months ago

How do people react when you tell tr hem you have Lupus?

How do people react when you tell tr hem you have Lupus?

how do people react when you tell them you have Lupus usually get a strange reaction .like Oh my God..I don't want pitty nor do I like that reaction..i was just wanted to know your experiences..

A MyLupusTeam Member said:

OH MY BOOK, I WORTE.
"You Look So Good, How Can You Be So Sick"!!!!!
Mickey

posted about 2 months ago

Work through the burn or rest?

Work through the burn or rest?

I am new to the Lupie world and have a question. On the days, mornings, nights when you are not in a flare but, feeling extreme exhaustion and pain which is better? Do you push through the pain or rest til it passes? I am finding myself washing dishes with a dizzy head and shaking hands, doing laundry on the floor because I cannot stand to fold, and I have started to sleep downstairs more due to the stairs. On the days I'm pushing through I find myself praying that I make it through… read more

A MyLupusTeam Member said:

Try to rest/sleep as much as possible

posted about 2 months ago

Sweat

Sweat

Does anybody else start sweating for no apparent reason what so ever? I'm mean I shower every day. This is a sweat of my hair completely wet like I just washed it. I went through change long time ago so it isn't that.

A MyLupusTeam Member said:

I definitely experience this issue on a daily basis. It is embarrassing, awkward, and just plain uncomfortable! In doing some reading on the matter, I… read more

posted about 2 months ago

What do you all use for insomnia???

What do you all use for insomnia???

I can get to sleep but have trouble staying asleep... Wake up several times a night

A MyLupusTeam Member said:

I see a lot of people take melatonin but on the bottle I bought it said not to use if you have an auto immune condition so I looked up Lupus and… read more

posted 22 days ago

Does anyone have good treatments for mouth sores?

Does anyone have good treatments for mouth sores?

Does anyone have good treatments for mouth sores? I’ve gotten painful lesions on my tongue and inside my mouth for the last 35 years, and only recently found a couple products that helped. The best one is the over the counter Colgate mouthwash called Peroxyl. You are only supposed to use it for a week, but mine were gone in five days. The other thing I found is L-Lysine, an over the counter protein precursor. I take it daily and after serval weeks it started… read more

A MyLupusTeam Member said:

I have had lumps/bumps in both my mouth and nose throughout my bouts with lupus (since 2006). Some of the bumps in my mouth were so big you could see… read more

posted 14 days ago
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