Lupus

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Has Plaquenil helped you?

Has Plaquenil helped you?

From the beginning of treatment my rheumy put me on 400mg of Plaquenil daily. I take one pill in the morning and one at night. I struggled sticking to my meds and treatment plan for the first couple months or my diagnosis because I was in denial and didn't really believe it so I just recently started taking my medications again as prescribed (I was diagnosed October 2015).

The Plaquenil really upsets my stomach. I get acid reflux and it triggers my GERD and I wake up with a sore throat… read more

A MyLupusTeam Member said:

I have been on plasmaquinone, Cellcept and prednisone and was reasonably well controlled for joint pains and stiffness and lung inflammations. After an… read more

posted 10 days ago

Memory/dizziness

Memory/dizziness

I keep getting head spins and have noticed my memory seems to have just gone. I'll be asked to do something and 2 mins later, I've completely forgotten. Does anyone know if memory fog/loss is mainly during a flare up or does it come back?

A MyLupusTeam Member said:

I am always forgetting I get so emotional and start crying

posted 1 day ago

Reading about Lupus

Reading about Lupus

New to this site :) This is not a question but rather a comment regarding the diagnosis of Lupus and it's symptoms. :)

When I was first diagnosed with Lupus, a ANA test and others I told the Physician, a GP that I would worry about "that" (meaning Lupus) if I ever had any symptoms.

Almost three years later I began having problems walking, using my hands, washing my hair, I lost tolerance to cold in my hands and feet and my cognitive function had really gone south. I went in a few times over… read more

A MyLupusTeam Member said:

Lupus Convention in Edmonton, Alberta April 8/17 - informative, speakers, and THE BEST LUPUS BOOKS YOU CAN FIND available for lending - see read more

posted over 2 years ago

What are the signs of Depression?

What are the signs of Depression?

Lupus and Depression: Knowing the Signs

Life with lupus can be challenging. With symptoms that come and go, disease flares and remissions, and the uncertainty of what each day will bring, it’s normal to experience feelings of unhappiness, frustration, anger, or sadness. It’s also normal to grieve for the loss of the life you had before lupus.

There is a difference between temporary negative feelings and negative feelings that become overwhelming and long-lasting, which may signal… read more

A MyLupusTeam Member said:

After reading this I decided it was time for me to get off my you-know-what. When I am depressed I want to isolate and do as little as possible. Right… read more

posted 3 months ago

What’s an ANA test?

What’s an ANA test?

The antinuclear antibody (ANA) test is commonly used to look for autoantibodies that attack components of your cells’ nucleus, or “command” center, triggering autoimmune disorders like lupus. 95% of people with lupus test positive for ANA, but a number of other, non-lupus causes can trigger a positive ANA, including infections and other autoimmune diseases. The ANA test simply provides another clue for making an accurate diagnosis.

For patients with a positive ANA, more tests are usually… read more

A MyLupusTeam Member said:

What a great idea!

posted over 1 year ago

Do you look at your pee? Kidney condition warning signs

Do you look at your pee? Kidney condition warning signs

Lupus Fact:
Up to 60% of all people with lupus will develop kidney complications.

BEING AWARE
Kidney disease often presents without obvious symptoms. Because of this, it is important to be on the lookout for the following symptoms:
1. Foamy urine
2. Blood in the urine
3. Dark urine
4. Changes in the frequency of urination
5. Water retention or weight gain throughout the body, including the legs and hands

A MyLupusTeam Member said:

Many prayers to you,

posted 6 months ago

Work through the burn or rest?

Work through the burn or rest?

I am new to the Lupie world and have a question. On the days, mornings, nights when you are not in a flare but, feeling extreme exhaustion and pain which is better? Do you push through the pain or rest til it passes? I am finding myself washing dishes with a dizzy head and shaking hands, doing laundry on the floor because I cannot stand to fold, and I have started to sleep downstairs more due to the stairs. On the days I'm pushing through I find myself praying that I make it through… read more

A MyLupusTeam Member said:

Rest during pushing yourself will make the flare worse until you wipe out I have 5 kids 3 at home when I try to get everything done and just keep going… read more

posted about 1 month ago

Lupus Awareness

Lupus Awareness

Hi Warriors it’s Sydnee! I am a Lupus Advocate and will be attending the United States Lupus National Summit in Washington D.C. held before the Senate.
I’ve been active promoting Lupus Awareness with a booth setup and giving handouts at church bazaars and health fairs. Formed teams that collected thousands of dollars in donations for the Lupus Awareness Walks and I’ve made phone calls and wrote letters to our legislators in regard to Lupus Awareness.
I’m excited to attend the 2018 National Lupus… read more

A MyLupusTeam Member said:

Thank You Sydnee for speaking up and advocating for us with this difficult illness Lupus....Very much Appreciated!

posted 10 months ago

Are You Waiting for Your SSI Disability Claim to Be Approved??? Inquire About the "Compassionate Allowances List"

Are You Waiting for Your SSI Disability Claim to Be Approved??? Inquire About the "Compassionate Allowances List"

I've been going through the SSID process now for well over two years. This info was passed on to me...I hope that it will be helpful for us Lupies in Waiting!

"The Compassionate Allowances List"

Several years ago, it became apparent to Social Security officials that the long waiting time for decisions on disability applications was causing particular hardship for people who were seriously ill. So the… read more

A MyLupusTeam Member said:

WoW..I wish I had known abt tht whn I 1st applied bck n 2003. I had to survive on $401.00 a month with 2 kid's. I was let go frm my job in May 2003 bcuz… read more

posted over 2 years ago
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