Connect with others who understand.

sign up log in
Resources
About MyLupusTeam

Connect with others who understand.

sign up log in
Resources
About MyLupusTeam

Questions & Answers

Get practical advice and insights from people who understand

Don't see your question? ask question
Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
View:

Does Anybody Have Trouble Find Words When They Are Speaking To Someone , Or Have Difficulty Concentrating?

Does Anybody Have Trouble Find Words When They Are Speaking To Someone , Or Have Difficulty Concentrating?

posted January 11, 2015
Last of 1046 replies sign up to view previous answers
A MyLupusTeam Member

I am a Literature teacher. I lecture ALL DAY. This has become an obstacle for me. It's not just that my throat and mouth don't want to make the words, but while they are trying to get their act… read more

posted November 19

Has Plaquenil Helped You?

Has Plaquenil Helped You?

From the beginning of treatment my rheumy put me on 400mg of Plaquenil daily. I take one pill in the morning and one at night. I struggled sticking to my meds and treatment plan for the first couple months or my diagnosis because I was in denial and didn't really believe it so I just recently started taking my medications again as prescribed (I was diagnosed October 2015).

The Plaquenil really upsets my stomach. I get acid reflux and it triggers my GERD and I wake up with a sore throat all… read more

posted January 27, 2016 (edited)
Last of 1531 replies sign up to view previous answers
A MyLupusTeam Member

I no longer take Plaquenil. I’m on Gingraf 100mg capsules. I had a renal transplant last year.

posted March 24

Memory/dizziness

Memory/dizziness

I keep getting head spins and have noticed my memory seems to have just gone. I'll be asked to do something and 2 mins later, I've completely forgotten. Does anyone know if memory fog/loss is mainly during a flare up or does it come back?

posted February 11, 2018
Last of 643 replies sign up to view previous answers
A MyLupusTeam Member

I started to take a cocktail of mushrooms(11:11) to help my memory. I noticed that it is helping me. Medicinal mushrooms has a lot of benefits for the brain. The company is from Canada, Rainbo.com… read more

posted 7 days ago

Reading About Lupus

Reading About Lupus

New to this site :) This is not a question but rather a comment regarding the diagnosis of Lupus and it's symptoms. :)

When I was first diagnosed with Lupus, a ANA test and others I told the Physician, a GP that I would worry about "that" (meaning Lupus) if I ever had any symptoms.

Almost three years later I began having problems walking, using my hands, washing my hair, I lost tolerance to cold in my hands and feet and my cognitive function had really gone south. I went in a few times over… read more

posted October 7, 2014
A MyLupusTeam Member

Being diagnosed with Lupus in 2006 connected a lot of medical 'dots' for me (faulty blood work, the pain that is caused by something that others can not see (therefore doesn't exist- Ha!) However, I… read more

posted November 4, 2019

Memory Loss

Memory Loss

My question is about memory issues. I hear people talk all the time about memory fog but I sometimes feel like that is not accurate for what I am experiencing. I am forgetting simple things like spelling words correctly, finding the right words to make sentences, forgetting names and faces of people I should know and this is the small stuff. I have laughed it off from time to time. I went to eat with my co workers and when the waitress brought our food out I forgot what I ordered! I luckily… read more

posted March 5, 2018
Last of 280 replies sign up to view previous answers
A MyLupusTeam Member

That was one of the first signs that I figure something wasn't quite right with me because I have always had a perfect memory. I used to remember and still kind most of the time remember phone… read more

posted November 12

Does Anyone Have Good Treatments For Mouth Sores?

Does Anyone Have Good Treatments For Mouth Sores?

Does anyone have good treatments for mouth sores? I’ve gotten painful lesions on my tongue and inside my mouth for the last 35 years, and only recently found a couple products that helped. The best one is the over the counter Colgate mouthwash called Peroxyl. You are only supposed to use it for a week, but mine were gone in five days. The other thing I found is L-Lysine, an over the counter protein precursor. I take it daily and after serval weeks it started helping my mouth sores but… read more

posted March 3, 2018
Last of 293 replies sign up to view previous answers
A MyLupusTeam Member

I will have to try that, thank you #CarolynWells

posted October 9

What Are The Signs Of Depression?

What Are The Signs Of Depression?

Lupus and Depression: Knowing the Signs

Life with lupus can be challenging. With symptoms that come and go, disease flares and remissions, and the uncertainty of what each day will bring, it’s normal to experience feelings of unhappiness, frustration, anger, or sadness. It’s also normal to grieve for the loss of the life you had before lupus.

There is a difference between temporary negative feelings and negative feelings that become overwhelming and long-lasting, which may signal a serious but… read more

posted January 15, 2018
A MyLupusTeam Member

Happy 83rd Birthday!

posted January 7, 2020

Do You Look At Your Pee? Kidney Condition Warning Signs

Do You Look At Your Pee? Kidney Condition Warning Signs

Lupus Fact:
Up to 60% of all people with lupus will develop kidney complications.

BEING AWARE
Kidney disease often presents without obvious symptoms. Because of this, it is important to be on the lookout for the following symptoms:
1. Foamy urine
2. Blood in the urine
3. Dark urine
4. Changes in the frequency of urination
5. Water retention or weight gain throughout the body, including the legs and hands

posted January 9, 2018
A MyLupusTeam Member

Many prayers to you,

posted March 10, 2019

What’s An ANA Test?

What’s An ANA Test?

The antinuclear antibody (ANA) test is commonly used to look for autoantibodies that attack components of your cells’ nucleus, or “command” center, triggering autoimmune disorders like lupus.  95% of people with lupus test positive for ANA, but a number of other, non-lupus causes can trigger a positive ANA, including infections and other autoimmune diseases. The ANA test simply provides another clue for making an accurate diagnosis.

For patients with a positive ANA, more tests are usually… read more

posted February 7, 2018
A MyLupusTeam Member

Thank you for taking the time to answer @A MyLupusTeam Member. I hope your pain level goes down and you start to feel a little better 🙏❤️

posted October 19, 2019

Work Through The Burn Or Rest?

Work Through The Burn Or Rest?

I am new to the Lupie world and have a question. On the days, mornings, nights when you are not in a flare but, feeling extreme exhaustion and pain which is better? Do you push through the pain or rest til it passes? I am finding myself washing dishes with a dizzy head and shaking hands, doing laundry on the floor because I cannot stand to fold, and I have started to sleep downstairs more due to the stairs. On the days I'm pushing through I find myself praying that I make it through without… read more

posted January 26, 2016
Last of 254 replies sign up to view previous answers
A MyLupusTeam Member

I'm a wife and Mom to three young boys and dog...I hear you! I have to get in bed midday and rest everyday. I rest when I start to feel like you described. I get extremely exhausted, woozy and even… read more

posted August 7
Already a Member? Log in