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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
Does Anybody Have Trouble Find Words When They Are Speaking To Someone , Or Have Difficulty Concentrating?
A MyLupusTeam Member asked a question 💭
posted January 11, 2015
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A MyLupusTeam Member

Yes I can relate. I struggle to find the word I know I want.

posted March 12
Has Plaquenil Helped You?
A MyLupusTeam Member asked a question 💭

From the beginning of treatment my rheumy put me on 400mg of Plaquenil daily. I take one pill in the morning and one at night. I struggled sticking to my meds and treatment plan for the first couple months or my diagnosis because I was in denial and didn't really believe it so I just recently started taking my medications again as prescribed (I was diagnosed October 2015).

The Plaquenil really upsets my stomach. I get acid reflux and it triggers my GERD and I wake up with a sore throat all… read more

posted January 27, 2016 (edited)
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A MyLupusTeam Member

I was on 400 mg of plaque renal A-day from 2010 until 2018 and my roommateologist only took me off of it because I was in I see you for a week with supticemia because of a blood infection from a… read more

posted 7 days ago
A MyLupusTeam Member asked a question 💭

I keep getting head spins and have noticed my memory seems to have just gone. I'll be asked to do something and 2 mins later, I've completely forgotten. Does anyone know if memory fog/loss is mainly during a flare up or does it come back?

posted February 11, 2018
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A MyLupusTeam Member

I'm almost constantly dizzy and lightheaded. When I walk it usually feels like I'm walking on a slanted floor. I trip and stumble quite a bit. Sometimes a hard fall which usually results in bad… read more

posted 5 days ago
Reading About Lupus
A MyLupusTeam Member asked a question 💭

New to this site :) This is not a question but rather a comment regarding the diagnosis of Lupus and it's symptoms. :)

When I was first diagnosed with Lupus, a ANA test and others I told the Physician, a GP that I would worry about "that" (meaning Lupus) if I ever had any symptoms.

Almost three years later I began having problems walking, using my hands, washing my hair, I lost tolerance to cold in my hands and feet and my cognitive function had really gone south. I went in a few times over… read more

posted October 7, 2014
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A MyLupusTeam Member

Being diagnosed with Lupus in 2006 connected a lot of medical 'dots' for me (faulty blood work, the pain that is caused by something that others can not see (therefore doesn't exist- Ha!) However, I… read more

posted November 4, 2019
Memory Loss
A MyLupusTeam Member asked a question 💭

My question is about memory issues. I hear people talk all the time about memory fog but I sometimes feel like that is not accurate for what I am experiencing. I am forgetting simple things like spelling words correctly, finding the right words to make sentences, forgetting names and faces of people I should know and this is the small stuff. I have laughed it off from time to time. I went to eat with my co workers and when the waitress brought our food out I forgot what I ordered! I luckily… read more

posted March 5, 2018
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A MyLupusTeam Member

Hi Jennie
I have had Lupus for over 5 years. I have very similar issues with my memory. Your story is helpful to me because I blamed it on my sleep apnea. I keep a detailed calendar on my cell… read more

posted 2 days ago
Does Anyone Have Good Treatments For Mouth Sores?
A MyLupusTeam Member asked a question 💭

Does anyone have good treatments for mouth sores? I’ve gotten painful lesions on my tongue and inside my mouth for the last 35 years, and only recently found a couple products that helped. The best one is the over the counter Colgate mouthwash called Peroxyl. You are only supposed to use it for a week, but mine were gone in five days. The other thing I found is L-Lysine, an over the counter protein precursor. I take it daily and after serval weeks it started helping my mouth sores but… read more

posted March 3, 2018
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A MyLupusTeam Member

Yes Lysine helps a great deal, but you can also use Tums believe it or not. If I have a really painful sore I put a Tum in my mouth and just let it sit there on the sore until it's pretty much… read more

posted January 9
What Are The Signs Of Depression?
A MyLupusTeam Member asked a question 💭

Lupus and Depression: Knowing the Signs

Life with lupus can be challenging. With symptoms that come and go, disease flares and remissions, and the uncertainty of what each day will bring, it’s normal to experience feelings of unhappiness, frustration, anger, or sadness. It’s also normal to grieve for the loss of the life you had before lupus.

There is a difference between temporary negative feelings and negative feelings that become overwhelming and long-lasting, which may signal a serious but… read more

posted January 15, 2018
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A MyLupusTeam Member

Happy 83rd Birthday!

posted January 7, 2020
Do You Look At Your Pee? Kidney Condition Warning Signs
A MyLupusTeam Member asked a question 💭

Lupus Fact:
Up to 60% of all people with lupus will develop kidney complications.

Kidney disease often presents without obvious symptoms. Because of this, it is important to be on the lookout for the following symptoms:
1. Foamy urine
2. Blood in the urine
3. Dark urine
4. Changes in the frequency of urination
5. Water retention or weight gain throughout the body, including the legs and hands

posted January 9, 2018
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A MyLupusTeam Member

Many prayers to you,

posted March 10, 2019
Work Through The Burn Or Rest?
A MyLupusTeam Member asked a question 💭

I am new to the Lupie world and have a question. On the days, mornings, nights when you are not in a flare but, feeling extreme exhaustion and pain which is better? Do you push through the pain or rest til it passes? I am finding myself washing dishes with a dizzy head and shaking hands, doing laundry on the floor because I cannot stand to fold, and I have started to sleep downstairs more due to the stairs. On the days I'm pushing through I find myself praying that I make it through without… read more

posted January 26, 2016
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A MyLupusTeam Member

I'm a wife and Mom to three young boys and dog...I hear you! I have to get in bed midday and rest everyday. I rest when I start to feel like you described. I get extremely exhausted, woozy and even… read more

posted August 7, 2022
What’s An ANA Test?
A MyLupusTeam Member asked a question 💭

The antinuclear antibody (ANA) test is commonly used to look for autoantibodies that attack components of your cells’ nucleus, or “command” center, triggering autoimmune disorders like lupus.  95% of people with lupus test positive for ANA, but a number of other, non-lupus causes can trigger a positive ANA, including infections and other autoimmune diseases. The ANA test simply provides another clue for making an accurate diagnosis.

For patients with a positive ANA, more tests are usually… read more

posted February 7, 2018
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A MyLupusTeam Member

Thank you for taking the time to answer @A MyLupusTeam Member. I hope your pain level goes down and you start to feel a little better 🙏❤️

posted October 19, 2019
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