Lupus

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Has Plaquenil helped you?

Has Plaquenil helped you?

From the beginning of treatment my rheumy put me on 400mg of Plaquenil daily. I take one pill in the morning and one at night. I struggled sticking to my meds and treatment plan for the first couple months or my diagnosis because I was in denial and didn't really believe it so I just recently started taking my medications again as prescribed (I was diagnosed October 2015).

The Plaquenil really upsets my stomach. I get acid reflux and it triggers my GERD and I wake up with a sore throat… read more

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A MyLupusTeam Member said:

I’m sorry to hear when things are not working out. I have been on plaquenil for 37 years. It has helped to keep me comfortable all that time. I have had… read more

posted 10 days ago
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Reading about Lupus

Reading about Lupus

New to this site :) This is not a question but rather a comment regarding the diagnosis of Lupus and it's symptoms. :)

When I was first diagnosed with Lupus, a ANA test and others I told the Physician, a GP that I would worry about "that" (meaning Lupus) if I ever had any symptoms.

Almost three years later I began having problems walking, using my hands, washing my hair, I lost tolerance to cold in my hands and feet and my cognitive function had really gone south. I went in a few times over… read more

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A MyLupusTeam Member said:

Lupus Convention in Edmonton, Alberta April 8/17 - informative, speakers, and THE BEST LUPUS BOOKS YOU CAN FIND available for lending - see read more

posted over 2 years ago
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Memory/dizziness

Memory/dizziness

I keep getting head spins and have noticed my memory seems to have just gone. I'll be asked to do something and 2 mins later, I've completely forgotten. Does anyone know if memory fog/loss is mainly during a flare up or does it come back?

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A MyLupusTeam Member said:

Mvmsplace >Melissa Lauro. So sorry that your Mom want understand..I think sometimes people say those things for they dont know what to say I do know… read more

posted 5 days ago
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What are the signs of Depression?

What are the signs of Depression?

Lupus and Depression: Knowing the Signs

Life with lupus can be challenging. With symptoms that come and go, disease flares and remissions, and the uncertainty of what each day will bring, it’s normal to experience feelings of unhappiness, frustration, anger, or sadness. It’s also normal to grieve for the loss of the life you had before lupus.

There is a difference between temporary negative feelings and negative feelings that become overwhelming and long-lasting, which may signal… read more

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A MyLupusTeam Member said:

After reading this I decided it was time for me to get off my you-know-what. When I am depressed I want to isolate and do as little as possible. Right… read more

posted 25 days ago
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What’s an ANA test?

What’s an ANA test?

The antinuclear antibody (ANA) test is commonly used to look for autoantibodies that attack components of your cells’ nucleus, or “command” center, triggering autoimmune disorders like lupus. 95% of people with lupus test positive for ANA, but a number of other, non-lupus causes can trigger a positive ANA, including infections and other autoimmune diseases. The ANA test simply provides another clue for making an accurate diagnosis.

For patients with a positive ANA, more tests are usually… read more

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A MyLupusTeam Member said:

What a great idea!

posted over 1 year ago
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Work through the burn or rest?

Work through the burn or rest?

I am new to the Lupie world and have a question. On the days, mornings, nights when you are not in a flare but, feeling extreme exhaustion and pain which is better? Do you push through the pain or rest til it passes? I am finding myself washing dishes with a dizzy head and shaking hands, doing laundry on the floor because I cannot stand to fold, and I have started to sleep downstairs more due to the stairs. On the days I'm pushing through I find myself praying that I make it through… read more

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A MyLupusTeam Member said:

I agree with you Vicki. You have to rest, if you don’t you will not only feel exhausted, you will be stealing spoons from the next day.

posted about 1 month ago
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Do you look at your pee? Kidney condition warning signs

Do you look at your pee? Kidney condition warning signs

Lupus Fact:
Up to 60% of all people with lupus will develop kidney complications.

BEING AWARE
Kidney disease often presents without obvious symptoms. Because of this, it is important to be on the lookout for the following symptoms:
1. Foamy urine
2. Blood in the urine
3. Dark urine
4. Changes in the frequency of urination
5. Water retention or weight gain throughout the body, including the legs and hands

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A MyLupusTeam Member said:

Many prayers to you,

posted 4 months ago
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Why is lupus an unknown disease?

Why is lupus an unknown disease?

Why is Lupus an UNKNOWN DISEASE?

What do you say when asked, “how are you?” or “why were you absent last week?” I always gave a vague rehearsed answer like, I’m fine thank you for asking or I was a little under the weather, knowing that I was having a monster flare. I use to feel like I didn’t want to burden anyone with my illness... I mean, do the majority of people really care? I believe they do!
Now I boldly say “I have a chronic disease called Lupus” if they’re interested, I… read more

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A MyLupusTeam Member said:

Hi Meggles , Welcome. How are you doing. Have any hobbies.Take care.Thanks for hug.

edited, originally posted 8 months ago
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Lupus Awareness

Lupus Awareness

Hi Warriors it’s Sydnee! I am a Lupus Advocate and will be attending the United States Lupus National Summit in Washington D.C. held before the Senate.
I’ve been active promoting Lupus Awareness with a booth setup and giving handouts at church bazaars and health fairs. Formed teams that collected thousands of dollars in donations for the Lupus Awareness Walks and I’ve made phone calls and wrote letters to our legislators in regard to Lupus Awareness.
I’m excited to attend the 2018 National Lupus… read more

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A MyLupusTeam Member said:

Thank You Sydnee for speaking up and advocating for us with this difficult illness Lupus....Very much Appreciated!

posted 8 months ago
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