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Wondering if anyone has Antiphospholipid syndrome, what anticoagulation you’re on and if you have had a clot FYI I was recently djagnosed with lupus and my lupus anticoagulant level has been elevated and has increased since last time so my rheumatologist put me on a baby aspirin daily.. Thx in advance for your help!!
I have been and I was on 365 coated aspirin until I had strokes and then Plavix which will not stop strokes then put on warfarin and still on warfarin and will always have to be due to having strokes.
I'm currently on cumidin but I'm getting ready to switch over to Eliquis 5mg 2 times daily.
Part of how I was diagnosed with Lupus SLE was from a blood clot that formed from my groin to my ankle in my right leg. I’m on Xarelto but the clot is not dissolving. It’s unchanged after 6 mos. My doctor keeps wanting to wait for my body to take up the clot. Im concerned about compartment syndrome. Anyone have experience with this?
Thank you for the advice! I did not know clots formed by lupus need more aggressive dosing. I did see that Xarelto won’t dissolve the clot. It just stops new ones from forming which it has done so… read more
So I have + antilupus antibodies, but was on Xarelto at time of testing. Will Xarelto give false positive? If no, is Coumadin a better choice when one has already had multiple PEs and DVTs?
Why won't my INR level out?
I'm on Eliquis now and I love it! It is working for me beautifully. No more fluctuations.
Yes, I get large unexplained bruises. I went to my PCP for this once and he said I have "capillary fragility". I think it's just my body.
@Coumadin and Colonoscopy -
In a few days I am scheduled to have a colonoscopy/EGD to look for the reason I am severely anemic. I am also on @Coumadin since I have Antiphospholipid Syndrome in addition to Lupus. The directions for the colonoscopy prep say to stop my @Coumadin 4 days before the procedure but I'm curious if I need to be put on Lovonox in the meantime. My PCP nurse says that I'll be taken off everything and then bridged back to @Coumadin with @Lovenox after the procedure but I… read more
Every time I have surgeries, I'm always taken off of it for many days. They will hook you up in the recovery. You'll be fine.
Does anyone take steroid injections or by mouth to just simply exist and be able to get out of bed? Please any experience or suggestions.
I am going to have a shoulder replacement and my orthopedist gave me 7 steroid infections in my shoulder!!! No sleep, bight red, and starving!!!
Is anyone able to share information on having APLS along with Lupus?
Thank you for this information. I never knew why I couldn't use the other meds for this. Happy I know now! Having a difficult time trying to stay at a theraputic level. Everytime I changed drugs for… read more
Besides being a sufferer of SLE for 40+ years, along with a myriad of other autoimmune diseases since the age of four, I was a medical school professor and was and currently am a research scientist. You can read the story in my thread if you like.
CN-SP is the acronym for combinatorial nutraceutical-super pill. I developed it in my research laboratory to stimulate adult-derived telomerase positive stem cells, that each of us have inside ourselves, to promote healing of damaged tissues. It is a… read more
Hi Henry: Checking in to confirm that you received my baseline tests? Thank you, Mary