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Anyone had a steroid shot before? Thoughts?
They are great, but only a “bandaid” it was actually in my shoulder and years later I was diagnosed w lupus. I’ll never take steroids again. It’s the drug from hell.
Does anyone else here also have vasculitis?
@A MyLupusTeam Member. I have vasculitis. Here's a pic. Awaiting results of biopsy. I'll let you know results. Be strong 😊
A year ago Aug, I was on Prednisone for 6 weeks for a flare and again in Feb I was on it 2wks for bronchitis. I also was taking a steroid inhaler for short time. As a result I developed Oral Thrush and was treated with 2 rounds of Nystatin (swish and swallow) I take Cell Cept, plaquenil and levothyroxin so I guess there was some concern due to immune suppression. At my last rheumy visit (4 months ago) I still had it so they gave me fluconizole tablets for 2weeks. I also did a two week herbal… read more
Thanks for the info. Going to doc next week. Will up my probiotic intake and hoping we can get to bottom of it.
Hello hope that stuff works for you it's a real drag have a nice day
Hi all,
Have any of you been experimenting / had success with diet-related integrative therapies for lupus? I am just starting out on the journey and was diagnosed 4 months ago, feeling like both scientist and subject and experimenting with foods, so it's too early to see consistent results! There's a lot of integrative work around gut-healing, and eating detoxifying and anti-inflammatory foods. These books describe specific protocols for diet:
The Medical Medium by Anthony William - http://ww… read more
I try wth the diet but ever doctor and article ground around gut health & inflammation so think any good anti inflammatory diet would help u along like they say stay away from certain shade veg/fruit… read more
I have gained weight the past few months and my stomach looks like I'm 6months pregnant does anyone else have this problem if so what is it and what can I do??
Yes i do i went from 112 to 140 bloated stomach pain.
Is there any type of special shampoo to keep hair from thinning and itching in the top?
I've found a system that I absolutely LOVE, I'd love to give you more info if you're interested!
Im suspose to start lyrica today bc gabipentin is working. Does lyrics work? Any advice
Has anyone found effective treatments for skin hyperpigmentation / scarring after skin gets inflamed? This is more common in darker skin tones, where skin tends to drop melanin after an active inflammation phase.
Mary Kay! Believe it or not their products have been amazing - worked and don’t irritate my sensitive skin! They have a tone corrector that helps my scarring and their skin care overall is really… read more
I have a friend who is newly diagnosed with lupus and she can't take any ibuprofen or naproxen. She's on blood clotting medicine. Her wrist and feet are super swollen. I don't know if ice would be good. I don't use ice ever but I don't have thin blood either. I'm not sure what to tell her. Any advice would be great please and thank you
Hi there, I also get swollen but I think it is due to the inflammation. I took water pills and it work. But speak to your dr . Gentle hugs