Hello, I have been on a bumpy road with treatments for my kidney disease. In 2011, when I was 16, I was diagnosed with SLE. One year later I was told I had Lupus nephritis. I was taking Cellcept and things seems to be under control for a few years. In 2017 I was told that I needed to go on chemo as I was failing Cellcept and so I was given Rituximab. My lab results showed no improvement. So we switched to Cytoxan. I started Cytoxan on January 2018, and I just finished my last infusion last… read more
I am being switched from Methotrexate to Cellcept, and then to add 200mg of Plaquenil back in in a week if I tolerate cellcept. Going slow with cellcept 250mg twice a day. Rheumatologist feels I have a CTD with an underlying myositis and lupus because of my elevated CK. Prednisone has brought it down, now only on 7mg. All my warriors give my the scoop on cellcept, the good,,bad, ugly, and has it helped your symptoms, if so, in what ways.
My doctor has just started me on Mycophenolic Acid because she said she has noticed her patients with SLE have gone into remission much quicker using this drug. Is anyone taking this? If so, what side effects are you having using this drug? My hair had become much thinner and feels like straw since I have started this.
Myfortic does upset my stomach from time to time. But its benefits outweigh this side effect. Hope everything goes well.
I'm taking Myfortic since May2019. I'm not sure if it is connected with that, but I'm often having strong headache (cervical) with severe nausea. I've always suffered from migraines since I was a child, but never had it with nausea and vomiting...it's getting wroste and every time it takes long to recover...I'm thinking it could depend on Myfortic.... Anyone with similar experiences? :(
Had Botox two weeks ago for the 3rd or 4th time. Doesn’t help my migraines.
I've been taking Methotrexate for more than 3 years. But now my transaminase's level got too high. So, my doctor wanted me to change therapy, taking Myfortic (2pills per day)
I would love to hear your experience about it!
My iron is extremely low so he doesn't want me taking any NSAIDs and has me on 5 mg 1 per day of prednisone. I have never been in so much pain and nothing helps. He did prescribe tramadol but that doesn't help at all.
That sounds good for pain.
Hello, My wife has been on mycophenolate for several years now to treat her Lupus. Recently she had stomach issues with taking it and was switched over to myfortic. The stomach issues have subsided but now she is experiencing extreme fatigue, muscle / joint pain and anxiety issues from the myfortic. I'm aware that all of these are common side effects of taking Myfortic. I'm posting to see what others experiences with this drug have been, similar fatigue issues and how long until the side effects… read more
I have been on Prednisone since December, Plaquenil since February. My symptoms are getting worse. I was recently put on CellCept this week. I’m getting married in June and trying to lower my steroids ASAP to try to lose some of the steroid weight. How long does it take for CellCept to start working? I am currently on 35 mg of the prednisone and waiting to lower it until the CellCept kicks in.
Hi! Has anyone been on Benlysta recently. I am unable to handle Cellcept due to it making me itch so bad until I get very irittable. Im very nervous about Benlysta. How was your experience with being on Benlysta?
Does anyone take hydrocortisone for SLE? I am currently taking prednisone to control my SLE but It's causing horrible side effects. I heard that hydrocortisone is not as strong as prednisone and thought that maybe it would be a good alternative to talk with my rheumatologist about.