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Top 10 Search Results for "Myfortic"

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Treatment Options For Lupus Nephritis

Treatment Options For Lupus Nephritis

Hello, I have been on a bumpy road with treatments for my kidney disease. In 2011, when I was 16, I was diagnosed with SLE. One year later I was told I had Lupus nephritis. I was taking Cellcept and things seems to be under control for a few years. In 2017 I was told that I needed to go on chemo as I was failing Cellcept and so I was given Rituximab. My lab results showed no improvement. So we switched to Cytoxan. I started Cytoxan on January 2018, and I just finished my last infusion last… read more

A MyLupusTeam Member

I was dx with SLE, 6 months later Nephritis- they now have me on Benlysta infusions 2z month. Might have seen a tiny improvement, or maybe it’s the thought that summer is around the corner.

Cellcept

Cellcept

I am being switched from Methotrexate to Cellcept, and then to add 200mg of Plaquenil back in in a week if I tolerate cellcept. Going slow with cellcept 250mg twice a day. Rheumatologist feels I have a CTD with an underlying myositis and lupus because of my elevated CK. Prednisone has brought it down, now only on 7mg. All my warriors give my the scoop on cellcept, the good,,bad, ugly, and has it helped your symptoms, if so, in what ways.

A MyLupusTeam Member

Hope u r feeling ok!! Cellcept made my underlying daily nausea & reflux worse so they changed me to Myfortic ( which is coated Cellcept and supposedly has less nausea). I can do ok with Myforticread more

Is Anyone Taking Mycophenolic Acid?

Is Anyone Taking Mycophenolic Acid?

My doctor has just started me on Mycophenolic Acid because she said she has noticed her patients with SLE have gone into remission much quicker using this drug. Is anyone taking this? If so, what side effects are you having using this drug? My hair had become much thinner and feels like straw since I have started this.

A MyLupusTeam Member

Myfortic does upset my stomach from time to time. But its benefits outweigh this side effect. Hope everything goes well.

Myfortic= Nausea/micranie?

Myfortic= Nausea/micranie?

I'm taking Myfortic since May2019. I'm not sure if it is connected with that, but I'm often having strong headache (cervical) with severe nausea. I've always suffered from migraines since I was a child, but never had it with nausea and vomiting...it's getting wroste and every time it takes long to recover...I'm thinking it could depend on Myfortic.... Anyone with similar experiences? :(

A MyLupusTeam Member

Had Botox two weeks ago for the 3rd or 4th time. Doesn’t help my migraines.

Does Anyone Take Myfortic?

Does Anyone Take Myfortic?

I've been taking Methotrexate for more than 3 years. But now my transaminase's level got too high. So, my doctor wanted me to change therapy, taking Myfortic (2pills per day)
I would love to hear your experience about it!

A MyLupusTeam Member

I have been on myfortic for 2 1/2 years I take 2 x 500mg tablets twice a day I haven’t had any side affect in the beginning I found it helped with the pain but now I have to take paracetamol and… read more

When You Are In A Flare And The Dr Prescribes Prednisone Along With The Plaquenil What Kind Of Dosage Does He Give You?

When You Are In A Flare And The Dr Prescribes Prednisone Along With The Plaquenil What Kind Of Dosage Does He Give You?

My iron is extremely low so he doesn't want me taking any NSAIDs and has me on 5 mg 1 per day of prednisone. I have never been in so much pain and nothing helps. He did prescribe tramadol but that doesn't help at all.

A MyLupusTeam Member

That sounds good for pain.

Extreme Fatigue With Myfortic.

Extreme Fatigue With Myfortic.

Hello, My wife has been on mycophenolate for several years now to treat her Lupus. Recently she had stomach issues with taking it and was switched over to myfortic. The stomach issues have subsided but now she is experiencing extreme fatigue, muscle / joint pain and anxiety issues from the myfortic. I'm aware that all of these are common side effects of taking Myfortic. I'm posting to see what others experiences with this drug have been, similar fatigue issues and how long until the side effects… read more

A MyLupusTeam Member

I was recently on CellCept. I have been off of it for about a month and I went through similar side effects nausea vomiting diarrhea. The worst part of it for me was the cognitive issues forgetting… read more

Has Anyone Had Luck With CellCept?

Has Anyone Had Luck With CellCept?

I have been on Prednisone since December, Plaquenil since February. My symptoms are getting worse. I was recently put on CellCept this week. I’m getting married in June and trying to lower my steroids ASAP to try to lose some of the steroid weight. How long does it take for CellCept to start working? I am currently on 35 mg of the prednisone and waiting to lower it until the CellCept kicks in.

A MyLupusTeam Member

The combo of Cellcept and Plaquinel along with high dose antihistamines and anti inflammatory meds finally got my worst (visible) symptoms under control enough so I could stop prednisone.

Benlysta

Benlysta

Hi! Has anyone been on Benlysta recently. I am unable to handle Cellcept due to it making me itch so bad until I get very irittable. Im very nervous about Benlysta. How was your experience with being on Benlysta?

A MyLupusTeam Member

Hi Neka
Yes I’ve been on Benlysta for nearly a year now. I inject myself. Lower doses once a week. No side effects. I do have several tiny tiny hard bumps on both arm itch a lot but I don’t think it’s… read more

Medication For SLE

Medication For SLE

Does anyone take hydrocortisone for SLE? I am currently taking prednisone to control my SLE but It's causing horrible side effects. I heard that hydrocortisone is not as strong as prednisone and thought that maybe it would be a good alternative to talk with my rheumatologist about.

A MyLupusTeam Member

Hi There 🙋🏻‍♀️, unfortunately been on Prednisone for 15 years. Every time I try to reduce the dose to wean off something goes wrong and I'm back at square 1 with it all. I must admit though, it's… read more