Quick Links
About MyLupusTeam
Powered By
Been having Bad headaches and rheumy sent me to neurologist who says migraines and write a prescription Had a bad reaction to topomax( chest pains arm tingling it was awful-he says that it can’t be the Med that caused that-it’s a good Med) 🙄
so he prescribed inderal. I have read the side effects and I am not so sure about it. As well as my questions “is the only course of action to give me more meds?” His response “it’s all I can do”
Anyone ever have luck figuring out what triggers migraines… read more
My doctor will raise it for a few months when I'm having a lot of breakthroughs and when they are back under control after a couple of months he puts it back down. It works well for me.
Hello my friends, I suffer from chronic migraines and I need your help in sharing your experiences with meds. I can not take abortive triptans, NSAIDS or Depakote. Depakote was the worst drug ever for me. Help I am in so much pain and it is disabling. We don't need to discuss diet because I am already on an organic, low salt, low sugar, nitrate/MSG/sulfite free diet. I do not eat processed foods or drink alcohol! Please share your most helpful drugs and worst drugs for chronic… read more
I had the most success with Ajovy for migraine prevention and Maxalt for emergency relief. Ajovy is a monthly shot and just came out the summer before last. It is one of a few that are formulated… read more
Does anyone suffers from migraines? If so what do you recommend for the pain?. I've tried Extra strength Tylenol, Tylenol with codeine, Hydrocodone seems like nothing works. Benadryl seems to work but I just can't take it when I'm working because it makes me sleepy.
Chronically. Especially during flares. Prescription medication did me no help other than this one years ago, but it causes heart problems, which nobody with lupus needs. My life saver was Excedrin… read more
@A MyLupusTeam Member, all are natural supplements, including CN-SP, except for TP+SCs, which are your own stem cells
For prescription meds I am on Diltalizem for blood pressure, insulin for T1D, and… read more
Mine started about 10+ years ago and only recently moved up to my knees. So both lower legs are affected now. I am unable to walk more than a couple of feet at a time so I am in a wheel chair and… read more
Hi everyone! Does anyone have any suggestions for medications or anything they have had good luck with for severe headaches? They are so bad they make me want to rip my hair out. I feel like I have tried everything under the sun and nothing has worked for me, it's been 1.5 years and it's becoming completely unbearable!!
It does sound like migraines but I am not a doctor and sometimes they are hard to diagnose. I had migraines. I ended up in the ER and they found it was caused by an irregular heartbeat but migraines… read more
Does anybody else start sweating for no apparent reason what so ever? I'm mean I shower every day. This is a sweat of my hair completely wet like I just washed it. I went through change long time ago so it isn't that.
My wife had the sweating issue. Glycopyrrolate has helped keep the sweating under control much better.
Dose anyone else take topamax for any reason along with having lupus. I take topamax for migraines an have been on it for 5 years or so and it causes me not to sweat an overhead easy. I was wondering if anyone else has this problem because with lupus an being in the sun I notice I swell up like a sponge then the flood gates open an I almost pass out in a matter of minutes then I have to spend the whole day drinking water an sun sick . My doctor said it could be a combination of the meds an… read more
I just live with it! It's one of LUPUS things and also cortisone. Hugs
Lately i am suffering from severe headaches, when i was younger i used to get them alot. As i got older they subside so i was relieved, but now its just everyday and on top of that i get nauseous and stomach ache. I'm so tired of being ill and dealing with so many health issues. I thank god and my family everyday for being there for me, but sometimes its just so much to bare. What do you guys take for severe headaches, are they over the counter or prescribed?
I was diagnosed in my early 20's That I had Migraines. But they never diagnosed Lupus. Of course I assume they didn't know of such. I had too always go to the emergency for a shot. They told me that… read more
Magnesium