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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 10 Search Results for "Topamax"

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What Is Your Favorite Migraine Medication?
A MyLupusTeam Member asked a question 💭

Hello my friends, I suffer from chronic migraines and I need your help in sharing your experiences with meds. I can not take abortive triptans, NSAIDS or Depakote. Depakote was the worst drug ever for me. Help I am in so much pain and it is disabling. We don't need to discuss diet because I am already on an organic, low salt, low sugar, nitrate/MSG/sulfite free diet. I do not eat processed foods or drink alcohol! Please share your most helpful drugs and worst drugs for chronic… read more

A MyLupusTeam Member

I had the most success with Ajovy for migraine prevention and Maxalt for emergency relief. Ajovy is a monthly shot and just came out the summer before last. It is one of a few that are formulated… read more

Does Anyone Suffers From Migraines?
A MyLupusTeam Member asked a question 💭

Does anyone suffers from migraines? If so what do you recommend for the pain?. I've tried Extra strength Tylenol, Tylenol with codeine, Hydrocodone seems like nothing works. Benadryl seems to work but I just can't take it when I'm working because it makes me sleepy.

A MyLupusTeam Member

Chronically. Especially during flares. Prescription medication did me no help other than this one years ago, but it causes heart problems, which nobody with lupus needs. My life saver was Excedrin… read more

Inderal For Headaches Anyone? Headache Trigger Help!!
A MyLupusTeam Member asked a question 💭

Been having Bad headaches and rheumy sent me to neurologist who says migraines and write a prescription Had a bad reaction to topomax( chest pains arm tingling it was awful-he says that it can’t be the Med that caused that-it’s a good Med) 🙄
so he prescribed inderal. I have read the side effects and I am not so sure about it. As well as my questions “is the only course of action to give me more meds?” His response “it’s all I can do”
Anyone ever have luck figuring out what triggers migraines… read more

A MyLupusTeam Member

My doctor will raise it for a few months when I'm having a lot of breakthroughs and when they are back under control after a couple of months he puts it back down. It works well for me.

What Kind Of Medications Are You All On For The Lupus
A MyLupusTeam Member asked a question 💭
A MyLupusTeam Member

@A MyLupusTeam Member, all are natural supplements, including CN-SP, except for TP+SCs, which are your own stem cells
For prescription meds I am on Diltalizem for blood pressure, insulin for T1D, and… read more

Severe Headaches
A MyLupusTeam Member asked a question 💭

Hi everyone! Does anyone have any suggestions for medications or anything they have had good luck with for severe headaches? They are so bad they make me want to rip my hair out. I feel like I have tried everything under the sun and nothing has worked for me, it's been 1.5 years and it's becoming completely unbearable!!

A MyLupusTeam Member

It does sound like migraines but I am not a doctor and sometimes they are hard to diagnose. I had migraines. I ended up in the ER and they found it was caused by an irregular heartbeat but migraines… read more

Does Anybody See A Neurologist ?
A MyLupusTeam Member asked a question 💭
A MyLupusTeam Member

Mine started about 10+ years ago and only recently moved up to my knees. So both lower legs are affected now. I am unable to walk more than a couple of feet at a time so I am in a wheel chair and… read more

Does Anyone Else Take Topamax
A MyLupusTeam Member asked a question 💭

Dose anyone else take topamax for any reason along with having lupus. I take topamax for migraines an have been on it for 5 years or so and it causes me not to sweat an overhead easy. I was wondering if anyone else has this problem because with lupus an being in the sun I notice I swell up like a sponge then the flood gates open an I almost pass out in a matter of minutes then I have to spend the whole day drinking water an sun sick . My doctor said it could be a combination of the meds an… read more

A MyLupusTeam Member

I just live with it! It's one of LUPUS things and also cortisone. Hugs

Info On Hydroxychloroquine
A MyLupusTeam Member asked a question 💭

I have started hydroxychloroquine today the headaches i am getting are unreal i usually get headache but i feel like someone is in my head stretching it!! Anyone know if this will ease the more i take them

A MyLupusTeam Member

A common side effect of hydrochloroquine is headaches. Not everyone will experience all or the same side effects. Those of us who are predisposed to getting migraine headaches are more likely to be… read more

Does Anyone Take A Specific Medication For Dizziness?
A MyLupusTeam Member asked a question 💭

I currently take Topamax for migraines & Plaquenil for MCTD - but the dizziness lately is extreme. Thank you!

A MyLupusTeam Member

Thank you! I hope you have a better day as well! Let me know what your doctor says! Hugs!

Plaquenil
A MyLupusTeam Member asked a question 💭

So my new rheumy plans to start me on this in August, do u all have any bad side affects from it or is there some things i should watch out for or be prepared for?

A MyLupusTeam Member

I take it and was able to wean off prednisone 60mg in two weeks. I think it depends on the person, as I’ve been having really good réponse to it and cellcet. I’m only taking what the doctor prescribes… read more