Quick Links
About MyLupusTeam
Powered By
My body feels like it is on fire, my joints are burning, high fevers for about three weeks and low grade fevers started about three days ago?
Thank you Jennifer. I think I might just have to switch back to just plant based. When I was going full vegan doctor said I wasn't getting enough nutrients and protein so I was getting sicker. I have… read more
Always hot. Like I’ll become really hot my body will feel hot but everyone around me is fine. Or when they feel me they say my body feels normal.
Omg, i feel like my blood is boiling and i drink ice water like im in a water drinking contest! Lol
I have been getting intense waves of heat going through my body all day. It happens sporadically throught the month. It feels like my blood is on fire or something. I've already gone through menopause so its not that. Has anyone else experienced this and, if so, can you tell me what's happening?
posted 14 minutes ago
I am tagging @A MyLupusTeam Member. She suggested an OTC nasal spray that would inhibit mast cell release. In case your hot flashes are caused by inflammation from a systemic histamine release.
I have a nice sitting are out back but even in the shade I feel like I could catch on fire at any moment and I am pretty sure I am not a vampire!
I get so hot I feel like I am standing in a oven. Lotions make me hotter I love it outside. The light In church hurt my eyes . I don't go to church I leave a sweat puddle wherever I sit. I have eye… read more
Ever since starting Plaquenil I have really bad hot flashes. Doctors did hormone testing and all of them are fine. Not sure whats causing it. The only thing they found was elevated serotonin....not sure if this is from Lupus....going to endocrinologist in March. Anyone else with hot flashes know if this is from lupus or plaque nil? Tips?
I have had All the hormone test and Doctor said it was the lupus Making me sweat I have to get more blood work done for the specialist . I get heat rash from the sweat I don't have a life because of… read more
Does anyone feel like cold wind is blowing and
Inside of your body feels very cold and your tired all the time just want to sleep after being up for a few
how do you deal with fatigue
Hi gang,
Discovered several small bruises on my body today. They are not in the high traffic typical areas. I have 4 on the underside of my right forearm and a few more on my left upper thigh. I have been ill the last couple weeks and thought it was a flare but all of my recent labs appear stable, the only noticeable change is that I started Cymbalta 2 weeks ago.
Anyone deal with this?
@jean5236 I’ve got them down the back of both lower legs (for three plus years). Not on prednisone or other lupus meds and they started before hydroxychloroquine 🤷🏻♀️
I have been on Benlysta for about two and a half years, but last month I switched from the IV infusions to the subq autoinjector. Last night, on my fourth injection, I ended up having an unusual reaction compared to my normal. From what I understand, they are common side effects for Benlysta, I just have mostly only experienced tiredness and only occasionally the slightest bit of nausea
Immediately after the injection last night, my skin turned red in a big circle around the injection site.… read more
I'm only on my second subq injections. I've had some cramping and some pain after the injection and even sometimes out of the blue. And extreme tiredness. I hear a lot of people say their side… read more
Yes. Sometimes I can’t stand even a blanket touching me. It’s like my entire body is sore to the touch