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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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Cutaneous Discoid Lupus Rashes And Lesions

Cutaneous Discoid Lupus Rashes And Lesions

Does anyone have any recommendations for controlling discoid rashes on the back? I have used Clobetasol on my scalp in the past and that was effective, but I'm really breaking out in red spots on my back recently. Also, does anyone else have mouth lesions that won't go away?

posted 3 days ago
A MyLupusTeam Member

Also, regular clothing provides very little SPF protection--just a few degrees! So we need to protect our whole body!

posted 20 hours ago

Does Anyone Have Bruise Shadows Lasting For Many Months?

Does Anyone Have Bruise Shadows Lasting For Many Months?

posted 3 days ago
A MyLupusTeam Member

Did your doc ever have explanation for these? I’m working on my list of questions for my appointment.

posted 2 days ago

Heart Involvement?

Heart Involvement?

Has anyone had Pericarditis/Pericardial Effusion as a result of lupus that won't go away?

posted 3 days ago
A MyLupusTeam Member

Anytime

posted 2 days ago

Insomnia And I Keep Waking Up!

Insomnia And I Keep Waking Up!

I need help for insomnia / staying asleep. I have to take Ambien and it works within 10 minutes but I still wake up at 2am every day wide awake. Bed is at 9 with no screens.

posted 3 days ago
A MyLupusTeam Member

It's best to avoid sleeping medicine, if at all possible! Are you able to get in a daily walk or some exercise? That along with relaxation techniques, therapy, etc. can help a lot!!! If our body isn't… read more

posted 19 hours ago

Does Everyone With Lupus Have To Have A Booster Shot

Does Everyone With Lupus Have To Have A Booster Shot

posted 3 days ago
A MyLupusTeam Member

Yes, it's definitely a good idea.

posted 2 days ago

What Helps With Aching Sore Painful Joints For You?

What Helps With Aching Sore Painful Joints For You?

Between my elbows, all the joints in my hands, and spine.. they're hurting so badly. I can't even tell you all the time! Makes it hard to grasp anything. Makes it hard to stand a lot of the time. Any suggestions would be very much welcome. Thank you

posted 4 days ago
A MyLupusTeam Member

Are you on plaquenil? One thing I find helpful is icing and resting the joints when they're swollen. If they're not swollen but just achy, KEEP MOVING as much as possible! Heat can help if you're… read more

posted 2 days ago

Does Anyone Have Severe Backpain From Lupus?

Does Anyone Have Severe Backpain From Lupus?

Including how often it happens and what you do for treatment?

posted 4 days ago
A MyLupusTeam Member

Nandi, check my post on Q&A, it increases healing better than just blueberries
With respect to vitamin-K2 MK-4, it’s specific function is to sequester free unbound calcium into bone. Sources for the… read more

posted 12 hours ago

I Was Diagnosed With Lupus Around 2.5 Months Ago. I Am Suffering More Now Than I Was When I Was Diagnosed. Why?

I Was Diagnosed With Lupus Around 2.5 Months Ago. I Am Suffering More Now Than I Was When I Was Diagnosed. Why?

It has gone from my shoulders and knees to also my elbows, my hips, my wrists, ankles and my feet. I hurt 24 x 7. Help! Please!

posted 4 days ago
A MyLupusTeam Member

Thanks 😊

posted 18 hours ago

Weight Loss And Digestive Issues!

Weight Loss And Digestive Issues!

Is anyone dealing with lack of nutrients absorption and digestive issues? What can i do take naturally to help with maintaing calories and just wanting to eat. I am so over it with Dr's and their "take this pill" ! 🤔 lets just try Jesus....omg anyone out there with some wisdom wanting to share.... please help! Positive vibes only! ✨️ Thanks!

posted 4 days ago
A MyLupusTeam Member

I had to switch to the "Oat" milk, which is nondairy.
I can't take dairy that much.

posted 1 day ago

New Med

New Med

Has anyone being on leflunomide 10 mg ? I’m on it now and wondering what should I expect , how soon it starts working and etc . With my constant flare ups and dizziness and nauseous all the time and losing my appetite my rheumatologist thinks that hydrochlorquine isn’t working well and upgraded me to different stronger drug. I could use any advice and help from my team warriors. Greatly appreciated

posted 4 days ago
A MyLupusTeam Member

I won't take any meds for any of my diseases,
been there, done that. If it's not a cure, I don't
want it in my body/mind.
Blessings to you in finding your way in your journey.
X

posted 1 day ago
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