When I had my initial testing done my ANA was negative and came back the same day, but years later when retested, it was positive and it took several day to get the results. I had new blood work done yesterday and 2 of the tests that have always been negative are not back. Previously, they came back the same day. All other results are in but these two which are the ones that I really wanted to know the result (anti-DsDNA and C3/C4). This is the first time that testing has been done when in a… read more
I just got diagnosed with lupus and have mixed feelings about it. On one hand, it’s validating after years of doctors saying “I don’t know” but it’s also quite scary and I’m feeling very alone with it. I’ve been taking hydroxychloroquine now for a few weeks and I don’t feel any different yet. I still have a headache that just won’t go away, I’m so tired, and my body just hurts. Also I have had a rash on my legs and arms for over a month that won’t go away. They did a tissue sample which combined… read more
I have had lupus Sle but haven’t had issues in a while. My kidneys failed in 2009 but they came back after chemo treatment. I’ve had little flares here and there but I just recently started to feel exhausted, ulcers in mouth, migraines, brain fog, pain all over muscles and joints. Red flaky rash patches on face. I’ve also have been dealing with stomach issues for a while now that they can’t figure out. I got these test results and of course my doctor is closed. Does anyone have any experience… read more
I just finished drinking a cup of coffee about 5-10 minutes ago with a little honey. A few minutes later, I noticed radiating pain around my lower back. Has anyone ever had this reaction before? If so, what did you do about it to help it go away? Feedback, please.
My MRI came suspicious of these three things.
I managed to book with rheumy before neurologist. What I should demand for besides my legs being checked for clots and baby aspirin?
Labs aren100% okay the doctor doesn't believe me.
I am struggling to work right now with the pain and fatigue. I am up and down alot at my job I work in Medical Field so I am fitting patients with orthotic products as well as I am a Mastectomy Fitter so I do those fittings as well. I am trying to do my best to keep working and get through the days but I dont know what are reasonable things I could ask for as accomodations. I love my job but I am afraid I may not be able to keep up much longer.
Do any of you use this as a sleep aid or for nerve pain? I asked my rheumy about it but she didn't know much.
Anyone have the same problem I have leg pain every night especially when it’s cold. I usually wear socks helps but not much . I wish you all Blessed night ♥️🙏. Thank you
I've been suffering from Lupus for over 20 years now. I used to be able to work through the pain and all over exhaustion, but I can't anymore. Some days it feels almost impossible to get out of bed. Sometimes I even have to stay in my pajamas for the day. I live in chronic pain and exhaustion 24/7. I have Fibromyalgia, Chronic Fatigue Syndrome, Chronic Migraines, Degenerative disc and joint diseases, Osteoarthritis, and the list keeps going. It just keeps getting worse every day. Is there… read more