Lupus

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Has anyone else removed an IUD or stopped their birth control then had crazy hormones?

Has anyone else removed an IUD or stopped their birth control then had crazy hormones?

I'm currently 15 days late but the pregnancy tests are negative including a blood test, they told me to take another test next month but the hormones have made me embarrassingly fat. How long does a hormone crash last? Thank you!

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A MyLupusTeam Member said:

What did you stop taking ? I thought birth control made you have more hormones and make you more bloated and stopping them should make you lose the… read more

edited, originally posted about 14 hours ago
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dsDNA levels?

dsDNA levels?

I'm newly diagnosed in November, and my dsDNA levels keep climbing every time they test them, currently at 23, was at 16 on first test. Is this really high? What are other's levels? I read somewhere that increase of dsDNA of more than 25% can be indication of a flare, even before c3/c4 show, and greater risk of kidney issues, but i have no sense of how high my levels are compared to others with Lupus. Thanks.

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A MyLupusTeam Member said:

Depends on the scale used and the way the lab tests for it , all scales are different , some scales have to be over 330 to be considered positive , I… read more

edited, originally posted about 13 hours ago
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ANA suddenly Negative?

ANA suddenly Negative?

I've been treated for lupus/uctd for the last 7 months. I'm on Plaquenil and gabapentin for neuropathy. I started with a 1:640 homogenous ANA. I tested negative for DsDNA and all specific antibodies related to Sjogrens, Lupus, etc. So its been a wait and see kind of situation. I don't have classic symptoms of lupus but certainly something autoimmune (or so we thought..), so my rheumy started me on Plaquenil and go from there. I had some blood work done yesterday for the VA and suddenly I am… read more

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A MyLupusTeam Member said:

Ana can be high from other illnesses or frim medications or even from an infection etc , or the plaquenil May have helped to lower the ANA

edited, originally posted about 13 hours ago
8 medium

Exercise?

Exercise?

What do you guys do for exercise if any? When I was in high school I ran cross country and I stopped because I hurt my ankle really bad. I am not sure if my body will allow me to do that again. So I was wondering what exercises are best?

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A MyLupusTeam Member said:

Run , box , weights

posted about 13 hours ago
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Depression Medication

Depression Medication

For those of you who have been diagnosed and are being treated for depression and anxiety, what medication has your doctors prescribed? I was on wellbutrin last uear before my diagnosis but it seemed to do nothing for me. I have an appointment tomorrow to try to figure something else out.

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A MyLupusTeam Member said:

I take Viibryd but it is not enough

posted about 9 hours ago
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Scalp burning

Scalp burning

Does anyone else have scalp issues? My scslp has always burned in random patches after I wash my hair but this time the burning hasn't gone away and sores (some rash looking) form in the spots that burn.

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A MyLupusTeam Member said:

Wow, i have the same problem this is the first time it has happened and i didn't know what it was its . only one one side of my head i even got… read more

posted 1 day ago
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Is there any doctors, researchers or rheumatologists who know what we lupusites really go through!!??

Is there any doctors, researchers or rheumatologists who know what we lupusites really go through!!??

Is there any doctors researchers rheumatologists out there that have lupus and know what we lupusites really go through!!!???

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A MyLupusTeam Member said:

I truly believe your point. They really don't.

posted about 1 hour ago
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Does anyone here use CBD for their ailments?

Does anyone here use CBD for their ailments?

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A MyLupusTeam Member said:

@A MyLupusTeam Member I had that experience with some strains as well. I just received my order from a dispensary and I noticed a HUGE difference… read more

posted 1 day ago
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Alcohol

Alcohol

Do any of you drink alcohol? Wine, anything? How does it affect you? I cant have one glass of wine without swelling up!!!

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A MyLupusTeam Member said:

Yup I swore off alcohol when I got diagnosed.I can't even drink a glass of wine because I'll flare really bad

posted 2 days ago
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Reynauds?

Reynauds?

The air conditioning at work hurts my hands, but my joint pain has been flaring with the recent rain. My co-worker commented on the color of my fingertips. Those of you that experience reynauds is this perhaps what is happening? The pictures I have seen are more definitive so I am not sure if its its anything to be concerned about.

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A MyLupusTeam Member said:

That happens to me regardless of the temperature. I hope the gloves work.

posted 2 days ago
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