Quick Links
Resources
About MyLupusTeam
Powered By
I have had a positive ANA for years since I have hashimotos. Back in 2016 I was having awful body pain and fatigue and was tested and had an elevated anti-ssdna and anti-sm. At that time, unknown to me, I was diagnosed with RA and was put on Prednisone for a short time. I only seen the rheumatologist for 3 visits back then. I then had weight loss surgery, lost 80 lbs and the pain and fatigue subsided. Flash to 2023 I am still nearly same weight loss and was experiencing pain and fatigue again… read more
Raquel, I agree with Nicholle and Marianne, too, although in 2019, the diagnostic criteria became updated from the previous "4 out of 11" rule. It's still based on a constellation of lab and clinical… read more
Dangerous infections have resulted from some contaminated brands, so please check this out if you use eyedrops:
https://health.ucdavis.edu/news/headlines/fda-r...
Hope it's a good day for everyone.
Thank You
I was diagnosed a few months ago and have always enjoyed hiking and camping or laying out in the park. Is there anyone still enjoying these activities? What do you do to prevent a flare? I have been testing the waters with going outside but am still nervous bc I got really sick a few weeks ago after going outside for too long.
Yes so right. Sit outside for short time and sick as a dog for god knows how long and more repercussions than ever before like you said. We wouldn’t be much better in colder climates either I believe… read more
I’m having trouble finding a family medicine practitioner who has experience with lupus. Has anyone found an MD they like in Charlotte?
Dr Neal Speight, Center for Wellness, Matthews, NC 28105. Pricey, but good
He takes time with patients, and looks at them as a whole person with multiple overlapping problems, rather than just a… read more
Hi Elayne
All this happens with lupus.
Definitely get to doc ASAP.
Need to know if it is infection or flare. Either way they can fix it.😊
Does anyone have trouble walking first thing in the morning? Not quite sure how to explain it other than when first getting out of bed my legs not exactly wanting to move. They feel so heavy and I cannot pick them up to go and have to stand in place a few minutes before shuffling and finally they give in and I’m able to walk normally.
Yes I have the same thing
Talked to my doctor about it and they did MRI on spine. Have arthritis in lumber spine and nerve damage in sciatica. Might be a good idea to mention it to your doctor next… read more
You may want to check with your doctor about whether your meds are contributing or if it's a metabolic problem, which labs will show. Acid reflux can cause it too, but it's worth getting labs if you… read more
I think it would be great to be able to respond individually with words not just hearts and hugs. Sometimes I feel like I want to say something to someone in particular. Maybe thank them for what they said. Or give them individual support or answer, and I have to scroll all over the place to try to figure out how to do it 😊❤️😵💫
@A MyLupusTeam Member try hitting the @ and type their name. Or if the answer symbol is there beside the heart click it and respond. Hope this helps
Lots of us do have secondary Sjogren's and chronic dry mouth. Are you seeing little white things in the back of the throat? It's wise to have your doctor look to make sure it's nothing worrisome, but… read more
We never share your personal information with anyone.
Continue with Facebook
Sign up with your email