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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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Still Quarantining?

Still Quarantining?

I was wondering if you guys are still quarantining? I'm vaccinated with an extra Moderna shot but I'm still afraid to leave the house. I haven't seen my friends or family in so long. It's really wearing on me. Has everyone else on here started venturing out?

A MyLupusTeam Member said:

@A MyLupusTeam Member yeah i do plan on getting it sometime in Feb hopefully. Covid really spiked up in. My neck of the woods due to the holidays so waiting for the wave to go down so i can go get… read more

posted 1 day ago

Is It Normal For A Person With SLE To Get UTI With E Coli In It?

Is It Normal For A Person With SLE To Get UTI With E Coli In It?

I've had a low grade fever off and on for a month +. Then boom I had severe pain and foul urine. My immediate urine test came back positive for an UTI. Then I got my lab test showing the e coli. My stomach is swollen and I'm still having abdominal pain. I've been on antibiotics since Wednesday.
Is this normal?

A MyLupusTeam Member said:

I got both my moderna shots and a booster and still got covid . I was very sick. So I feel that the shot didn't do any thing for me really. I did get really sick after receiving the shots each time.

posted 3 days ago

Covid?

Covid?

Hi All,
Has anyone ever tested neg for covid, have bronchitis symptoms and can't see a Dr because you have Covid symptoms? I've had to miss 7 different appointments including my benlysya infusion and everyday is a little worse. I'm not sure what to do.

A MyLupusTeam Member said:

Susan1960, take the covid home test.

posted 4 days ago

Rheumatoid Arthritis: Did You See This Article Part 2?

Rheumatoid Arthritis: Did You See This Article Part 2?

Mood Changes
RA is tied to depression, anxiety, and other mood problems. That’s because the disease causes pain, fatigue, and stiffness that make it harder to do the things you enjoy. Depression and anxiety could also come from inflammation
Some people with RA get fibromyalgia. This illness causes muscle pain and often leads to depression and anxiety. Stress makes all of your symptoms worse
If your mood changes seem to take over your life, talk to your doctor. Depression and anxiety can become… read more

A MyLupusTeam Member said:

My biggest problem right now is my T9 and T10 vertebrae are fused together with spinal stenosis and bulging disc. This is my neck as we’ll. I also have Chiari Malformation.

posted 3 days ago

Rheumatoid Arthritis: Did You See This Article Part 1?

Rheumatoid Arthritis: Did You See This Article Part 1?

https://www.webmd.com/rheumatoid-arthritis/cm/d...
Rheumatoid arthritis can have many symptoms. The most common are stiff, painful joints and fatigue
But this disease causes inflammation in many body parts, so you may have symptoms that you don’t realize are related to RA. Some are signs of serious complications that put your organs, or even your life, at risk
If you have any of these symptoms, don’t try to deal with them on your own. Call your doctor right away.
Broken Bones
Both RA and… read more

A MyLupusTeam Member said:

Thank you so much it was all very helpful. God bless you and stay safe

posted 4 days ago

Stopping Birth Control And Lupus Flare

Stopping Birth Control And Lupus Flare

I was wondering if i stopped using birth control if that would cause a flare. I was diagnosed about 6 years ago and i have been on bc for many years before that. I dont know if the change in my chemistry might bring out a flare? Has this happened to anyone? Thanks for your time!

I Was Wondering If Anyone Else Has Had This Problem. My Throat Gets Painful Then My Soft Palate And Uvula Droops For The Day.

I Was Wondering If Anyone Else Has Had This Problem. My Throat Gets Painful Then My Soft Palate And Uvula Droops For The Day.

Sometimes its only one side but in the mirror it looks like the interior of a roof on an old car. It lasts for hours and is incredibly painful. I am going to see an immunologist because my doc and rheumy dont know what it is and think it might be an allergy? I was wondering if anyone else has come across this? Thanks for your help!

A MyLupusTeam Member said:

I was diagnosed with bells'palsy at one time

posted 5 days ago

C Reactive Protein

C Reactive Protein

For the past year, my inflammation markers have been off the charts. Can’t seem to get them down and now my rheumatologist is scared. Anyone else have a c reactive protein of 38. I know a normal number would be under 3, and 10 being an indicator of a cardiovascular event such as a heart attack.

A MyLupusTeam Member said:
posted 2 days ago

I Recently Had Covid. With Having Chronic Fatigue Already And A Long Recoup Ahead To Regain Strength Back, How Can You Keep Your Morale Up?

I Recently Had Covid. With Having Chronic Fatigue Already And A Long Recoup Ahead To Regain Strength Back, How Can You Keep Your Morale Up?

This summer I was involved in an accident where someone t boned me on my driver side door. My 17 yr old was uninjured thankfully, but I suffered a broken neck and almost died. Being laid up all summer I came down with covid. I got over it, got the all clear from the doctors to finally take neck brace off after 4 months at end of September only to have a deeper depression and anxiety. Then middle of October, my dad contracted covid too. He did everything right to remain healthy, but even after… read more

A MyLupusTeam Member said:

Sorry to hear you are having a hard time. Sorry for your loss it’s ok to feel what you are feeling. You been through a lot. You should get a good therapist to help you through this

posted 5 days ago
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