Does Anyone Else Have A Redness Over Their Cheeks And Nose That Comes And Goes?

Mine is not bumpy, just beet red when I have flares. As I get better it goes away. It's almost like blushing from a high fever but with no fever. The redness itself is warm to touch though.

I Used To Be Able To Consume Dairy, But Now Can’t Due To High Sensitivity!

Anyone here have that problem? I’ve been lactose intolerant but in the last couple of years, it got so bad it seemed as if I had an allergic reaction. I’ve noticed my throat would start to feel like it’s “clogged” or closing up and I immediately run to find my allergy meds to stop it. It’s been so hard and I’ve tried going the vegan route also. Almost everything has dairy in it and it’s a pain. The biggest issue is trying to find what I need… read more

Has Anyone Had A Reaction From Mederma?

I haven’t had a bad rash breakout since the end of summer. Sun worsens my condition. I started using Mederma on some of my disc” like scars. I hate that they look like I have ring worm. So two nights after using it I have a huge dotty sunburn like burning rash all over the tops of my upper arms. I didn’t think much of it (Had it many times before) until I look down and where a rubbed the mederma on my scar has the same breakout all over it. Which it’s been scarred and not… read more

How Much Vitamin D Do You Take Daily?

When I was diagnosed with Lupus, my D level was around 30. My doc put me on a short term scrip for vit. D and then wanted me to start supplementing with 2,000 ius daily. Last summer, I was checked and it was 47. I'd like to keep it around 50 if possible. I started taking 4,000 ius last fall in time for cold/flu season. At my last appt. it was 37. I'm considering boosting it again since I've read that it takes mega doses to get us into a good healthy level.

Bloating, Plaquenil, Pseudo-obstruction

Hello - I am nearly diagnosed and was told I have a pseudo-obstruction. They are thinking it is caused by lupus. I was started on plaquenil 200mg. My bloating gets really bad - I look quite big in my abdomen, it is hard, passing gas doesnt relieve the pain, etc. I have tried switching my food, etc. - but nothing really helps. I also have bad fatigue + tender joints. Been on plaquenil for 2months now.

My questions are

1) did anyone really notice that plaquenil makes a… read more

Costipation

I have severe constipation with Sjogrens. Anyone else? What do you take?

Burning Rash

I have had this burning rash on my cheeks and eyelids going on three days now. It feels like a sunburn. Its is worse than what my camera shows. Any ideas??

Do You All Have Exsessive Sweating? Its Driving Me Crazy! Any Suggestions Onhow You Handle This?

Sjogrens

Anyone with Sjogrens, does your parotid gland swell at all. Have googled and it states the swollen parotid gland can be a symptom of the disorder, or an autoimmune disorder. Suggestions

Has Anyone Taken The Covid Vaccine Yet? If So Did You Take Both Shots And Any Reactions? Trying To Decide..