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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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Does Anyone Else Have A Redness Over Their Cheeks And Nose That Comes And Goes?

Does Anyone Else Have A Redness Over Their Cheeks And Nose That Comes And Goes?

Mine is not bumpy, just beet red when I have flares. As I get better it goes away. It's almost like blushing from a high fever but with no fever. The redness itself is warm to touch though.

A MyLupusTeam Member said:

I truly did not know it would come and go; thought once there always there. Thanks guys!!

posted about 2 hours ago

I Used To Be Able To Consume Dairy, But Now Can’t Due To High Sensitivity!

I Used To Be Able To Consume Dairy, But Now Can’t Due To High Sensitivity!

Anyone here have that problem? I’ve been lactose intolerant but in the last couple of years, it got so bad it seemed as if I had an allergic reaction. I’ve noticed my throat would start to feel like it’s “clogged” or closing up and I immediately run to find my allergy meds to stop it. It’s been so hard and I’ve tried going the vegan route also. Almost everything has dairy in it and it’s a pain. The biggest issue is trying to find what I need… read more

A MyLupusTeam Member said:

I am on a diet built specifically for me based on the allergy results I took at a Naturopathic doctors office. I have tried a few “fad” diets like AIP,… read more

posted 3 days ago

Has Anyone Had A Reaction From Mederma?

Has Anyone Had A Reaction From Mederma?

I haven’t had a bad rash breakout since the end of summer. Sun worsens my condition. I started using Mederma on some of my disc” like scars. I hate that they look like I have ring worm. So two nights after using it I have a huge dotty sunburn like burning rash all over the tops of my upper arms. I didn’t think much of it (Had it many times before) until I look down and where a rubbed the mederma on my scar has the same breakout all over it. Which it’s been scarred and not… read more

A MyLupusTeam Member said:

We have to Stand Our Ground & We Won't Back Down.
(Gotta love Tom Petty, RIP)
X

posted 2 days ago

How Much Vitamin D Do You Take Daily?

How Much Vitamin D Do You Take Daily?

When I was diagnosed with Lupus, my D level was around 30. My doc put me on a short term scrip for vit. D and then wanted me to start supplementing with 2,000 ius daily. Last summer, I was checked and it was 47. I'd like to keep it around 50 if possible. I started taking 4,000 ius last fall in time for cold/flu season. At my last appt. it was 37. I'm considering boosting it again since I've read that it takes mega doses to get us into a good healthy level.

A MyLupusTeam Member said:

I take 1000 mg daily

posted about 10 hours ago

Bloating, Plaquenil, Pseudo-obstruction

Bloating, Plaquenil, Pseudo-obstruction

Hello - I am nearly diagnosed and was told I have a pseudo-obstruction. They are thinking it is caused by lupus. I was started on plaquenil 200mg. My bloating gets really bad - I look quite big in my abdomen, it is hard, passing gas doesnt relieve the pain, etc. I have tried switching my food, etc. - but nothing really helps. I also have bad fatigue + tender joints. Been on plaquenil for 2months now.

My questions are

1) did anyone really notice that plaquenil makes a… read more

A MyLupusTeam Member said:

Take anti-histamines because Plaquenil, some others meds and healthy foods can cause histamine buildup in sensitive ppl. I have hayfever/ pollen… read more

edited, originally posted 1 day ago

Costipation

Costipation

I have severe constipation with Sjogrens. Anyone else? What do you take?

A MyLupusTeam Member said:

I don’t know about constipation caused by Sjogrens. But with Fibro caused IBS or regular constipation then foods rich in Fiber like veggies, fruit and… read more

edited, originally posted 1 day ago

Burning Rash

Burning Rash

I have had this burning rash on my cheeks and eyelids going on three days now. It feels like a sunburn. Its is worse than what my camera shows. Any ideas??

A MyLupusTeam Member said:

Thanks I'll have to get some probiotics I mean I've been wanting to get some but Drs I have don't tell me anything

posted 1 day ago

Sjogrens

Sjogrens

Anyone with Sjogrens, does your parotid gland swell at all. Have googled and it states the swollen parotid gland can be a symptom of the disorder, or an autoimmune disorder. Suggestions

A MyLupusTeam Member said:

What’s your treatment for it, do you have sjogrens and lupus, it’s a bummer, but thanks for answering

posted 1 day ago
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