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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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Do Some Tests Take Longer For Results When They Are Positive?

Do Some Tests Take Longer For Results When They Are Positive?

When I had my initial testing done my ANA was negative and came back the same day, but years later when retested, it was positive and it took several day to get the results. I had new blood work done yesterday and 2 of the tests that have always been negative are not back. Previously, they came back the same day. All other results are in but these two which are the ones that I really wanted to know the result (anti-DsDNA and C3/C4). This is the first time that testing has been done when in a… read more

A MyLupusTeam Member said:

You test positive only when in active phase, hence it only takes one positive test to have Lupus, the darn thing loves to hide when it wants to

posted about 20 hours ago

Advice Please! On Rashes And Medication

Advice Please! On Rashes And Medication

I just got diagnosed with lupus and have mixed feelings about it. On one hand, it’s validating after years of doctors saying “I don’t know” but it’s also quite scary and I’m feeling very alone with it. I’ve been taking hydroxychloroquine now for a few weeks and I don’t feel any different yet. I still have a headache that just won’t go away, I’m so tired, and my body just hurts. Also I have had a rash on my legs and arms for over a month that won’t go away. They did a tissue sample which combined… read more

A MyLupusTeam Member said:

Im on the same medication as you and it depends that it can lessen the damage or lessen the symptoms.

posted 3 days ago

Has Anyone Experienced Low PROTEIN/CREATININE RATIO

Has Anyone Experienced Low PROTEIN/CREATININE RATIO

I have had lupus Sle but haven’t had issues in a while. My kidneys failed in 2009 but they came back after chemo treatment. I’ve had little flares here and there but I just recently started to feel exhausted, ulcers in mouth, migraines, brain fog, pain all over muscles and joints. Red flaky rash patches on face. I’ve also have been dealing with stomach issues for a while now that they can’t figure out. I got these test results and of course my doctor is closed. Does anyone have any experience… read more

A MyLupusTeam Member said:

sounds like the test was off big time, may not have been run correctly at lab or stored correctly. Re-test ASAP

posted about 20 hours ago

Possible Coffee Reaction

Possible Coffee Reaction

Hello all!

I just finished drinking a cup of coffee about 5-10 minutes ago with a little honey. A few minutes later, I noticed radiating pain around my lower back. Has anyone ever had this reaction before? If so, what did you do about it to help it go away? Feedback, please.

A MyLupusTeam Member said:

I switched to Organic Low Acid/no acid coffee. It is abit pricey at 16.00 for 12 oz bag, but i cut down consumption so i make it work

posted about 20 hours ago

Does Anyone Know If Plaquenil Prevents The Body From Creating Antibodies After Getting One Of The MRNA Covid Vaccines?

Does Anyone Know If Plaquenil Prevents The Body From Creating Antibodies After Getting One Of The MRNA Covid Vaccines?

A MyLupusTeam Member said:

Lupus in and of its self can block the making of antibodies also your cjildhood vax program has likely failed to maintain as well. I myself am sick of getting an MMR shot every 3-5 years cause i can… read more

posted about 20 hours ago

Antiphospholipid Antibody Syndrome, Infraction Of The Brain, Vasculitis

Antiphospholipid Antibody Syndrome, Infraction Of The Brain, Vasculitis

My MRI came suspicious of these three things.
I managed to book with rheumy before neurologist. What I should demand for besides my legs being checked for clots and baby aspirin?
Labs aren100% okay the doctor doesn't believe me.

A MyLupusTeam Member said:

It's the right ear! Medical services don't work well on the weekend.

posted about 10 hours ago

What Accomodations Could Be Helpful For Work?

What Accomodations Could Be Helpful For Work?

I am struggling to work right now with the pain and fatigue. I am up and down alot at my job I work in Medical Field so I am fitting patients with orthotic products as well as I am a Mastectomy Fitter so I do those fittings as well. I am trying to do my best to keep working and get through the days but I dont know what are reasonable things I could ask for as accomodations. I love my job but I am afraid I may not be able to keep up much longer.

A MyLupusTeam Member said:

Yes the foggy mind/ cant find the right words to come out! I feel you girl. My heart is with you.

posted 4 days ago

GABA

GABA

Do any of you use this as a sleep aid or for nerve pain? I asked my rheumy about it but she didn't know much.

A MyLupusTeam Member said:

If you find the right one she even goes into detail in the drop down menu how to figure out which ones you need

posted 3 days ago

Leg Pain At Night

Leg Pain At Night

Anyone have the same problem I have leg pain every night especially when it’s cold. I usually wear socks helps but not much . I wish you all Blessed night ♥️🙏. Thank you

A MyLupusTeam Member said:

I am also suffering from leg pains. I got Restless Legs Syndrome. Vitamin B (strong version with Pyrodoxine) helps a bit, but the best solution is to turn over at least FOUR times a night. If you… read more

posted 2 days ago

Why Am I Sleeping All The Time, And Can Barely Get Dressed Or Do Any Chores Anymore??

Why Am I Sleeping All The Time, And Can Barely Get Dressed Or Do Any Chores Anymore??

I've been suffering from Lupus for over 20 years now. I used to be able to work through the pain and all over exhaustion, but I can't anymore. Some days it feels almost impossible to get out of bed. Sometimes I even have to stay in my pajamas for the day. I live in chronic pain and exhaustion 24/7. I have Fibromyalgia, Chronic Fatigue Syndrome, Chronic Migraines, Degenerative disc and joint diseases, Osteoarthritis, and the list keeps going. It just keeps getting worse every day. Is there… read more

A MyLupusTeam Member said:

No ma'am I don't. I was told I needed one many years ago, 20 plus. I'm just extremely claustrophobic, so I told them that I couldn't handle it.

posted 4 days ago
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