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To all Lupus singles!

To all Lupus singles!

I’ve seen quite a few single ppl with Lupus in North america that are looking to find partners. And some single parents here too (not sure if they’re looking?). But I’m thinking wouldn’t it be easier to have support when raising children?

So why don’t all of u guys start a Lupus match and matrimonial place? I’m European so unfortunately I can’t help u with a lot since I barely know canadian or american geography even.

You can do it!!!! Come on guys!

A MyLupusTeam Member said:

Bless you and your children.

posted 1 day ago

Looking to get back into dating how do some of you tell someone you're interested in bout your medical issues

Looking to get back into dating how do some of you tell someone you're interested in bout your medical issues

Afraid to tell woman about my different medical conditions and she wouldn't want to go out with me.

A MyLupusTeam Member said:

Hello Jay, I have found myself in the same situation as yourself. I was afraid to date, but being alone just isn't how I want to spend my life. So, I… read more

posted about 2 hours ago

Flares

Flares

How often do you have flares? I work full time in a stressful job. Even using plaquenil I'm having flares about once a month. I'm curious if that is common. I'm considering making a work change.

A MyLupusTeam Member said:

Too little sleep is worse than stress. Most sick ppl forget they could need up to 9-10+ hours for their bodies to heal while sleeping.

posted about 4 hours ago

Why does my hair fall out in

Why does my hair fall out in

Every time I take a shower lots of hair fall out even when I brush it is there anything I can do so I won’t go bald

A MyLupusTeam Member said:

You can also go to Sally Beauty Supply store and fine hair grease that's good for breakage of your hair. That's what I use in my hair stop breaking so… read more

posted 1 day ago

Ways to stave off a cold-what do you do when you were sick?

Ways to stave off a cold-what do you do when you were sick?

Because of needing immume suppressed we cant really have immunity boosters and im trying to stave off a cold. Ive been told that gargling vinegar? Maybe some zinc? I definitely know about honey? Honey and tea?

A MyLupusTeam Member said:

Oh we were planning on a disneyland trip but havent gone yet. Its a lot of planning involved we'll see! The last few vacatoons ive been on ive been sick… read more

posted 3 days ago

Atovaquone

Atovaquone

Has anyone been prescribed atovaquone/Mepron/anti parasite as an immune booster? I was wondering if you had any tips on covering the bad taste or best practices

Anyone else in this group on blood thinners

Anyone else in this group on blood thinners

I'm on blood thinners because I am prone to throw blood clots because of my lupus and I have to have a very invasive surgery and they are asking me to get off my blood thinner otherwise they won't do it has anyone else experienced this problem if so please explain?

A MyLupusTeam Member said:

Anyone going in for surgery has to stop taking blood thinners for some days beforehand so they don't bleed to death on the operating table. It's… read more

posted 1 day ago

Schleroderma/ MCTD

Schleroderma/ MCTD

I’ve noticed I had a few symptoms of Schleroderma/mctd like reynauds , esophageal motility problems , telangiectasis, vascular issues etc.... my Rheum says most of my symptoms can be explained by lupus so I may have it but let’s just focus on what we know which is lupus . However , the collagen overproduction with Schleroderma always confused me, should I not put things on my skin that produce collagen, should I not get fillers that make you grow collagen with time , should I not take… read more

A MyLupusTeam Member said:

I’ll take medications if they actually Make sense and would work , so far all meds for lupus have made me worse , Schleroderma has no treatment .. I… read more

posted 1 day ago

Ear pain

Ear pain

Does anyone’s ears hurt? When I flair my ears hurt so badly. And I get knots in my jaw joints. Under my skin all around my ears and jaw hurt so bad especially when pressed on. Wondering if anyone else has this issue. I suffered from a lot of ear infections as a kid. I’m wondering if this is why.

A MyLupusTeam Member said:

Extremely and they itch. Steriods are the only thing that stopped it.

posted 4 days ago

Lupus and esophagaus issues

Lupus and esophagaus issues

My throat has been bothering me for the past couple days . My espophgus hurts bad roght now . When i drink it doesnt go down the right pipe or my food . The oncall dr said i could need another dialation. I have a history of dialation procedures. I thought it was a sore throat but its not .

A MyLupusTeam Member said:

I have been having trouble with swallowing and sore throat. I never really thought about it being part of lupus. Wow if its not one thing its another… read more

posted about 3 hours ago
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