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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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Anxiety

Anxiety

I have been having really bad anxiety attacks which is new for me . sometimes they happen during the day but mainly at night and I haven’t been sleeping . I read online that magnesium is good to take to help with anxiety and that it helps with sleep . Has anyone tried that ? Or have any suggestions please let me know . I would greatly appreciate it .

A MyLupusTeam Member said:

Dru is it ok to take wih kidneys?

posted about 16 hours ago

Flare Up Symptoms

Flare Up Symptoms

Does anyone else’s upper abdomen swell during a flare?
An attorney explain why lupus nephritis causes itchiness?

A MyLupusTeam Member said:

Thank you ❤️

posted 5 days ago

Hand /palm Pain

Hand /palm Pain

I am having pain . . . Not ache but in the palms of both hands. They are fully functional. The location of pain on both hands is the half of the palm opposite the thumb. Hypothenar eminence. There are times when it is a stabbing pain. It’s been going on for a week. Any thoughts? I appreciate your help.

A MyLupusTeam Member said:

I have pain also in the palm of my hands near thumb. My doctor said it’s RA. Use pain relief cream all day, warm compress helps. And soft hand brace. Feel better❤️❤️

posted 5 days ago

Rash Or Flushing

Rash Or Flushing

Each evening about 7 pm, I blush/flush over my cheeks. There is a burning feeling but it fades away. I notice see it when I’m standing in my bathroom under incandescent light. No bumps, pustules. Again, it fades away after 1/2 hour. Is this form of malar rash?

A MyLupusTeam Member said:

Hey, Goliath, yep, sounds like what I have. Thanks!

posted 4 days ago

Intestinal Methanogen Overgrowth

Intestinal Methanogen Overgrowth

Anyone suffer this as a symptom? Antibiotics help but followed by a very quick relapse.

Question About Muscle, Tendon, And Ligament Involvement With SLE LUPUS.Also Is Costochondritis Common?

Question About Muscle, Tendon, And Ligament Involvement With SLE LUPUS.Also Is Costochondritis Common?

November of last year I had surgery on my left foot to correct my toes curling under and my big toe going at a weird angle. That surgery went pretty well.

Ben March of this year I had to have it done on the right foot because it was extremely severe and I was having problems walking. And there had to be a minor correction done to the big toe on the left foot.

Now I am asking to go back in because the toes on the right foot had gotten so bad again I'm having a problem watching once again I've… read more

A MyLupusTeam Member said:

Thank you AMAZING Information

posted 8 days ago

Has Anyone Tried Benlysta Infusion Therapy?

Has Anyone Tried Benlysta Infusion Therapy?

To Treat Inflammation. My friend inflammation was so bad, her doctor put her in the hospital for IV treatments, and Benlysta worked wonders for her. My rheumatologist suggested this infusion therapy for me. My blood test showed inflammation.

A MyLupusTeam Member said:

@A MyLupusTeam Member Thank you…😘

posted 2 days ago

Do Any Of You Know Details About Anaphersis For Mutiple A I Diseases?

Do Any Of You Know Details About Anaphersis For Mutiple A I Diseases?

I do have several diseases and everything is going sideways. Haven't had a good day in a long while. After hernia repair, my doc. plans for me to have this. I read lots online but need first hand info. please. Sounds promising but tough to go through in my situation.

Red Eyelids

Red Eyelids

Every couple of months my eyelids get red, puffy, itchy, and they burn. Thought it was allergies but its not going away… been about 2 weeks now. I tried aquafor, benadryl, vaseline, lotion, and aloe but nothings working. I dont currently have a opthamologist.. should I contact my rhematoid or a regualr doctor. Does anyone know if this is lupus related

A MyLupusTeam Member said:

My eyelids get real pink (looks like I put on eye~shadow)
I put CeraVe healing ointment, or good ole Vaseline
Honey works wonders for everything, it's a natural antibotic.
Have a good Sunday, feel… read more

posted 8 days ago

Newly Potentially Diagnosed... Do Anyone Else's Flares Come On Suddenly And Heavy (like A Shock) And Then You Feel Horrible For Days After?

Newly Potentially Diagnosed... Do Anyone Else's Flares Come On Suddenly And Heavy (like A Shock) And Then You Feel Horrible For Days After?

My symptoms started in Jan 2022... with a sudden shock/burning feeling from the inside out all over my body followed by extreme nausea and muscle weakness for days(sometimes a day or two and sometimes two weeks). This has been happening sporadically since then. I have noticed recently the flare "shocks" have been feeling like they start in my neck and branch out to my head and rest of body. I have also noticed the tingly sensation (almost like an allergic feeling) is present more often than not… read more

A MyLupusTeam Member said:

So sorry to hear that. You do need a rheumatologist for sure. Take care and stay out of the sun as much as posdible. It causes a lot of problems. Good luck!

posted 9 days ago
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