Lupus

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Lyrica or Gabapentin

Lyrica or Gabapentin

I just got back from my rheumy appt. Today was a follow-up from some x-rays taken last month on my sacrum and hips. He didn't see anything concerning that could be causing my nagging pain between the two. Says it must be Lupus messing with my muscles and tendons. He prescribed me gabapentin a few months ago and I didn't like the spacey/disconnected feeling it gave me. He wrote me a prescription today to try Lyrica. I'm desperate for some relief from the nagging pain of my hips and random… read more

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A MyLupusTeam Member said:

Hi, I have Lyrica and it is all that works for me for the nerve pain.
I have lower back/spine pain too.
In the beginning I found there was weight gain … read more

posted 3 days ago
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Does anyone get numbing in their hands and twitching?

Does anyone get numbing in their hands and twitching?

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A MyLupusTeam Member said:

Please have it checked out, as the possible reasons are many, besides lupus affecting the nervous system. Let us know what you learn.

posted 1 day ago
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Pregnancy

Pregnancy

Have anyone been pregnant with lupus or has tried to conceive with a lupus diagnosis? My obgyn thinks that it would be a little risky but rheumy says a lot of people have had great pregnancies and actually go into remission while pregnant. Im asking because my husband brought up the conversation last night as he wants to try for one more, i just want to know my odds

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A MyLupusTeam Member said:

I’ve had 5 pregnancies with Lupus and have 5 healthy young adults.

posted 1 day ago
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Is there one test to diagnose lupus?

Is there one test to diagnose lupus?

I've read conflicting things bout the diagnosis of lupus. Sum saying there is no one test and others that just a blood test can confirm it as well as it doesnt always show in blood work. I also heard having a possitive ANA means nothing as it has a 1 in 10 chance of a false possitive. Any clarity would be greatly appreciated thanx

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A MyLupusTeam Member said:

To my understanding there isnt one blood test, its like a puzzle and you have put the pieces together my Rhematigoist said. Your tests have to align,… read more

posted about 7 hours ago
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Myositis

Myositis

If you've dealt with it, can you tell me about your experiences with myositis and diagnosis?

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A MyLupusTeam Member said:

I feel pretty lousy. This lupus flair has been going on for a couple of years now, always with pain and weakness. I'll definitely call you. Thank you so… read more

posted 4 days ago
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Anyone have bloodwork for hepatitis A,B orC come back as reactive once then non reactive ?

Anyone have bloodwork for hepatitis A,B orC come back as reactive once then non reactive ?

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A MyLupusTeam Member said:

I feel the same way. One minute (labs) we're positive for something & another day we're not! Where does that exactly leave us? Dang.
Blessings to… read more

posted 2 days ago
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Has anyone noticed an increase in fungal skin infections?

Has anyone noticed an increase in fungal skin infections?

So, I think that I might be going through a lupus flare now. I've noticed more joint stiffness in my hands. The fatigue has increased as well. Also, I think that I may have a fungal infection near the groin area. Currently, treating it with some prescription fungal cream. I will be seeing my PCP and rheumy in the next couple of weeks and my derm next month.

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A MyLupusTeam Member said:

Wow LenaB! That all sounds like it was a nightmare! So glad u survived it all! Not knowing what was wrong had to be agony!

posted 1 day ago
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Sle lupus

Sle lupus

I was wondering if anyone ever has had pictorial muscles problems from lupus.Im in so much pain when this happens,I could scream at the top of my lungs

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A MyLupusTeam Member said:

Yes I guess it really does,,,,,have a wonderful day

posted 1 day ago
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