I am a 46 y/o female
Since 2019, I have been diagnosed with Fibromyalgia, Hashimotos, Sjogrens, and Raynauds.
I have been experiencing symptoms that concern me, because many I look up talks about RA, and most I look up talks about Lupus. An acquaintance (who has Lupus) has seen the redness on my face and discussed some of my symptoms, and she insists I have Lupus (no, she's not playing doctor, she's concerned and wants to help).
. Excessive ear wax (my rheumatologist said he had never heard… read more
Due to the different medications I take, fatigue is a regular part of my day. It seems as though the steroids I have been taking is doubling down on my fatigue. It has been debilitating. What do you do when the fatigue gets to that point?
I feel sunburned all over and full body neuropathy for a month now. In addition to joint, muscle inflammation and fatigue. Been on 5 mgs. Pred. And HBP med (for years) When this began. No topical allergies. Help what could this be?
Hi dear warriors,
I have been doing some research about the issue, and strangely enough it is not rare for people with lupus who is under treatment to get TBS . I just think that this info should be more discussed. Included here in our forum. TBS can be deadly to someone under imunossupresor. So, please talk to your… read more
I was wondering if anyone experienced their skin burning and feeling swollen. I have these tiny red bumps everywhere and they look like nothing but I feel like my bodys so swollen and is on fire. This has been happening every two weeks, I dont know whats going on. Its never spread past my face before but now its all over my body like wverywhere. I’ll attach pictures just in ase anyone can help, I just took two benadryl and i’ve been prescribed prednisone for tomorrow but I feel like somethings… read more
Does anyone know what EfGR>59 means? My last lab work showed>60. Has there been kidney damage maybe since my last lab work?
I just got the second dose of Pfizer and was wondering how soon after did you all start doing your normal things ? I have read you are considered fully vaccinated 2 weeks after the second dose.
So I'm still learning about lupus and to be honest i try to read online and i guess my brain ain't working i just can't understand what a flare is. Like how do I know I'm having a flare or when does it stop. Like isn't that what the medicine is for so it helps with your symptoms? Does everyone get a butterfly rash from the sun i haven't noticed i get one so does that mean i eventually will. Like sometimes i stand to do the dishes and my legs and feet feel tired is that a flare or is it just from… read more
Initially I was told that it was Interstitial cystitis but from the medical journal articles I read it seems more like lupus nephritis… please let me know if you have taken this med and have had results.
My rheumatologist said my bloodwork looks good, no damage to my organs. She told me that lupus should oul be the last thing on my mind. It made me think she must think I’m a hypochondriac. Am I?