Hi- if you're open to sharing.. what current medication are you on to control your lupus and what dosage are you taking?
The doctor just put me on prednisone for the 1st time about a week ago but it's not a long term dosage? It's 40mg for 1 week and now I'm down to 20mg for a week- then 10 for a week...
I am on myfortic - plaquinil- oroxine -tramadol and antihistamine and
10mg prednisone daily
When a flare arises I am to up the prednisone to 40mg for 3 days then 20mg for 3 days then back… read more
So my whole body has been swelling randomly- my doctor knows this. My legs and feet swelling randomly- the doctor knows this. Tonight my legs and feet are swelling up bad for the first time since the doctor put me on prednisone. I've been on 40mg for 7 days- then today it started to taper me down and I'm taking 20mg for a week. Then it will be 10 for a week... idk what to do? Do I need to tell them the swelling is getting worse ?
The rheumatologist told my daughter today that it could be an adrenal issue and prescribed hydrochlorthiazide and told her to make an appointment with her primary care Dr. Just passing along this… read more
I want to try supplements to lose some pounds I’ve gained since I’ve been diagnosed. I don’t want to get too heavy, I know my rheumatologist told me to eat healthy but I feel like that’s not enough for me.
I'd avoid any diet pills, for sure, Neek. Good luck.
I spent my time yesterday in the hospital thinking I was having a heart attack😳. The pain was really intense and not being able to move without pain made me panic like crazy. Turns out I have costochondritis. Has anyone ever had it and how do you deal with it?
What is it? Not heard of it.
Would anyone like to share something s thar hard for them now more details
Mostly jount pain. My right hand knuckle is swollen. Right now can't write long with my left hand because sometimes hurts. For me weather is the biggy.
I get so much rage and am so irritable when I'm very tired and hurting. I can't seem to control my anger. It really scares my family sometimes. I have been researching lupus psychosis and I'm beginning to think that my lupus is attacking my brain during these times.
An interesting article about lupus and the brain
I have the exact same symptoms have tried every eye drops over the counter Systane eye drops were doing the job for a few years but it seems that as I get older I have brand new symptoms and very dry… read more
When in March my levels were perfect. Now that I am in the height of a massive flare, they are all over the place. I’m in between finding the right combination but the rest of my blood work came back normal besides my Calcium being high. Usually I tend to have high blood cell counts and white blood cell counts but they are normal at the moment. It’s so confusing and frustrating at the moment because my primary doesn’t know as much as my rheumatologist.
I’m so sorry you had to go through all of that! I was born with alpha thalassemia so my numbers with blood cell counts are never right or where they are supposed to be but my thyroid function is… read more
The longest I've managed to hold down a job is 18 months- this is due to the miles long list of symptoms I've had in the last several years. I feel like I'm going to be stuck for the rest of my life doing random odd jobs for short bursts. Lupus prevented me from graduating and I have no college degree to get me any better work. Thankful for my husband that I am not in "need" of work- but I'm bored and feel pathetic.
Hi Lady. It can get very depressing. I had a time feeling the same. Had to rely on family til I picked up and hated every
moment of it and like you
felt absolutely pathetic.
Glad Niranjana has… read more
I avoid being out in the sun as much as possible which makes me quite isolated. I wear long loose fitting clothing, suncream reacts with my skin. I currently have small blister type rash on hands, arms, feet and chest and I know from experience it's here to stay until summer is over. This is my first time posting on here
And all the best to you Anarikard. And good luck.
Hope things feel better for you soon.🦋