Yes. It is so frustrating. The doc says everything looks fine, but you know you don't feel fine.
Yes. It seems so unpredictable. There's been times where I thought I was dying, but overall my blood work wouldn't look too bad at all. Then there have been times where I hadn't felt too awful, but my labs were in the toilet. Of course there were more times where my labs matched exactly how I felt. It can be so confusing and frustrating when labs don't reflect how you're feeling.
Story of my life!!! My test results show my levels are normal but I still have symptoms. It is frustrating. I recently started doing a log of my days. I plan to present this to my rheumy during my next visit.
If you havent seen a Dr who specializes in Lupus it can be hard to diagnose , tell tale rashes, if u have skin lesions have them biopsied. If you cant get any anwers, keep looking till you find them, Lupus can mimic alot of other diseases!
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