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Anyone Have Lupus Nephritis??? How Important Is It To Be Truly Diagnosed And Has Treatment Helped Swelling?

Anyone Have Lupus Nephritis??? How Important Is It To Be Truly Diagnosed And Has Treatment Helped Swelling?

I have had pain in kidney region, mostly right, on and off for years. I always have blood in urine. I have swelling below the knees almost constantly. My doc has never mentioned Lupus Nephritis?! hmm

A MyLupusTeam Member said:

My daughter has had blood in urine, microscopic, you can't see it. She has had it since December 2013 and was diagnosed with Lupus in March 2014. We were told it was from the Lupus, Our Urologist and Rheumotologist talked about it since all her urology test were normal, no infection, her kidneys and liver are fine. I was told that since Lupus is an autoimmune deceas, and is inflammatory, any inflammation causes tissue to swell and there for bleed, not huge amounts but enough to be counted in a Dip stick or microscopic. She is also Anemic and her iron binding capacity is high, and since she is unable to bind the iron, or absorb it what ever she does take has to come out in her urine,her hair smell like Iron or blood sometimes, I was told it was related.

posted over 6 years ago
A MyLupusTeam Member said:

Go to another dr quick ! When I was diagnosed the first dr did no kidney testing and my symptoms got worse . By the time I saw the second nephrologist I had severe kidney involvement. Had one kidney transplant 13 yrs ago and now need a second transplant.

posted over 6 years ago
A MyLupusTeam Member said:

I do not have Lupus Nephritis but have cared for patients who do. It is very important to get diagnosed and treated, we're talking dialysis kinda important. The Lupus Foundation of America @ Lupus.org has good easy to understand info. If you are having blood in your urine it is important to have it looked into, it may not be Nephritis and something like asymptomatic UTI etc but that is dangerous as well. It is diagnosed with blood and urine labs and possibly a biopsy. Make sure you follow up with your doc and let him know that this is something he must look into. If he refuses then I suggest a referral to a new rheuma. Your kidney health is not something to take lightly.

posted over 6 years ago
A MyLupusTeam Member said:

Get to a nephrologist ASAP. I was missed diagnosed in the beginning with just Lupus. I don’t want to scare you but kidney involvement is very serious. I’ve had 2 kidney transplants. Good luck 🙏

posted about 2 years ago
A MyLupusTeam Member said:

@A MyLupusTeam Member I have Lupus nephritis with swollen ankles and toes. My Nephrologist increased my Lasix(Furosemide)to 40 mg twice a day.

posted over 6 years ago
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