Yes, I'm still having it. When I was diagnosed I applied and was approved for disability the same year. But I was in denial. Like you, I'd work feel good and days I just didn't want to get up. Since then, I've been blessed to find work at home and make my own schedule, but I'm still having those days. After working for over 20 I don't think it will ever go away. You are not alone. Our brain tells us we can do it but some days our bodies say, just let me lay down and rest. You are not alone.

I am on disability but still occasionally work. I get depressed and want to work more but then when I do I get bad flares. I feel like I paid all this money for my education and can't use it. I could make all this money if my body would just be normal. Then when I have a really good week I think I can't be on disability anymore I feel better and need to work. Then work a few days and...flare...nope I was wrong I can't work like others.

I struggle everyday to get up and go to work. Once I'm here I'm in pain but I can bear it. As soon as I get home I'm drained my body collapses. I often pray that God gets me through one more day which turns into weeks, months, years, and etc.

Working from home is a blessing. I too work at home and can rest whenever need be. Thank God for that.

It is so hard dealing with the fatigue one day and then the next week you feel just fine. Your coworkers who don't understand what is going looks at you as if you are faking or it could not be that bad. Having Lupus is so hard to deal with and explain to others who don't understanding!!! If you feel like it is too much working full-time maybe you maybe you may want to go to part-time,