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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyLupusTeam Member asked a question 💭
Huntingburg, IN

Curious how many have been diagnosed with NPSLE?

November 14, 2014
 · 
Reactions
A MyLupusTeam Member

I also take mycophenolate 2000mgs a day and plequenil but I am curious do you have a constant headache and what do you take for that? I haven't found a doc that knows much about this and my neurologist is running out of things to try. And not one of my 4 doctors want to say I'm disabled but I can't do hardly anything I used to do.

August 5, 2015
A MyLupusTeam Member

I am going for extensive testing. I will find out the results in January, however, I have severe depression. I know that it is related to my lupus because Ibuprofen cures it.
Not antidepressents. Also fish and greens help.

November 21, 2014
A MyLupusTeam Member

I was diagnosed at age 14

February 7, 2019
A MyLupusTeam Member

Yes, I was diagnosed with NPSLE in November 2014. I take Mycophenolate 2g per day, which has stopped the disease from progressing (i.e. no further brain lesions), but hasn't made the active lesion inactive.

July 29, 2015
A MyLupusTeam Member

@A MyLupusTeam Member Very interesting info. They all sound like food that aren't restricted because of medicine or medical conditions! Lol and they're foods I like! Looking forward to researching this new angle.

November 22, 2014

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