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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

What Is Systemic Lupus?

What Is Systemic Lupus?

posted January 6, 2015
A MyLupusTeam Member

Youtube has a very short video showing what SLE Lupus is. Systemic is just what it says your system your body will go in a massive hey wire. The organs of your body can be affected with systemic Lupus. I have SLE Lupus and my mom had it also and it affected her heart and her skin more than anything. I hope this has helped.

posted January 7, 2015
A MyLupusTeam Member

Go to Lupus.org and get some of the books.

posted January 16, 2015
A MyLupusTeam Member

So far I have only been affected to my skin. My head I am not sure not fully satisfied with my treatment from my rheumy. I keep having pain in my head and my neck feel like it want to drop off sometimes and pops. I can hear it popping. It bothers me cause it is a sharp pain and the lupus fog sometimes get really bad I get confused too often for me.

posted January 7, 2015
A MyLupusTeam Member

Thank you queen moon

posted July 14
A MyLupusTeam Member

It's been hot and humid in missouri having SLE has been a nightmare sun makes me get headache and my chest hurts and I drink alot of water and my osteoarthritis flares up so bad I find myself having pain all over my body face breaks out with bumps and I don't know what I'm gonna be able to deal with this pain

posted June 29

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