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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

What Is Systemic Lupus?

What Is Systemic Lupus?

A MyLupusTeam Member said:

Youtube has a very short video showing what SLE Lupus is. Systemic is just what it says your system your body will go in a massive hey wire. The organs of your body can be affected with systemic Lupus. I have SLE Lupus and my mom had it also and it affected her heart and her skin more than anything. I hope this has helped.

posted almost 7 years ago
A MyLupusTeam Member said:

Go to Lupus.org and get some of the books.

posted almost 7 years ago
A MyLupusTeam Member said:

So far I have only been affected to my skin. My head I am not sure not fully satisfied with my treatment from my rheumy. I keep having pain in my head and my neck feel like it want to drop off sometimes and pops. I can hear it popping. It bothers me cause it is a sharp pain and the lupus fog sometimes get really bad I get confused too often for me.

posted almost 7 years ago
A MyLupusTeam Member said:

Thank u for sharing big hug !

posted almost 7 years ago
A MyLupusTeam Member said:

I have it too. It has affected my heart, brain, had to have a hysterectomy and has affected my muscles.

posted almost 7 years ago
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