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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Answer Summary

Members responding to the question about word-finding and concentration difficulties overwhelmingly confirmed that 'lupus fog' or 'brain fog'... Read more

Members responding to the question about word-finding and concentration difficulties overwhelmingly confirmed that 'lupus fog' or 'brain fog' is one of the most common and frustrating experiences in the community, affecting teachers, nurses, writers, and many others in their daily lives and careers. Several members shared practical coping strategies including writing everything down, using sticky notes and phone reminders, doing crossword puzzles and word games, slowing down speech, and using humor to lighten the moment. A recurring theme was relief at learning this symptom is tied to lupus rather than early dementia, and members offered each other encouragement to laugh it off, advocate with doctors, and never feel alone.

A MyLupusTeam Member

I did a search on WebMD for lupus brain fog and found some very sensible tips on coping strategies. Y'all may want to check that out. There are a few small changes I think I can make that will help me personally. Just a suggestion.

January 14, 2015
A MyLupusTeam Member

I've only recently started to experience this. It is frightening for me. So much of my job is communication and when I can't think of a simple word, I panic.

January 11, 2015
A MyLupusTeam Member

Yes, I sometimes forget what I was talking about. Then I will remember a few minutes later. It is the fog from the lupus.

January 11, 2015
A MyLupusTeam Member

@KristinMYes! I begin to speak and what I was going to say escapes me. It is so frustrating.I have found myself completely dumbfounded and unable to remember.

January 11, 2015
A MyLupusTeam Member

It's horrible
I was a 4.0 science major at an iv league school and 7 years after graduating and 3 years into my diagnosis I can barely get through a chapter of an immunology book without my brain feeling tired and shutting off. It's quite depressing. Does anyone know of a medicine to counter this? Aderal or vyvase?

January 11, 2015

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