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A MyLupusTeam Member asked a question 💭
Denver, CO

SLE - brain fog, cognitive dysfunction

June 20 (edited)
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MyLupusTeam

Yes, lupus can absolutely affect the ability to formulate and express thoughts. This is commonly referred to as "lupus fog" or brain fog, and it's a very real and frustrating experience for many people with SLE.

Brain fog can show up in several ways, including:

- Forgetting words mid-sentence
- Difficulty holding Show Full Answer

Yes, lupus can absolutely affect the ability to formulate and express thoughts. This is commonly referred to as "lupus fog" or brain fog, and it's a very real and frustrating experience for many people with SLE.

Brain fog can show up in several ways, including:

- Forgetting words mid-sentence
- Difficulty holding conversations
- Trouble processing information
- Poor concentration or focus
- Forgetfulness

As one MyLupusTeam member described it: "One minute, I'm talking and forming sentences just fine, and the next, I'm forgetting or stumbling over my words." Several factors can make this worse, including:

- Poor sleep – Between 55% and 85% of people with SLE experience sleep disturbances, which heavily impact cognitive function
- Lupus flares – Symptoms often worsen during flare-ups
- Chronic pain – Pain can affect memory, attention, and how quickly the brain processes information
- Medications – Some medications, like gabapentin, can slow word retrieval as a side effect
- Mental health – Depression and anxiety, which are common with lupus, are also linked to worse cognitive function The good news is there are ways to manage it. Prioritizing sleep, regular exercise, working with a cognitive therapist, and better managing lupus symptoms overall can all help. It's worth bringing up any changes in thinking or speech with a doctor, as they can help find the best approach for managing these symptoms.

June 20
A MyLupusTeam Member

Oh my gosh yes!!

June 27
A MyLupusTeam Member

I get brain fog and am slow to get my thoughts out. Its very frustrating.

June 21
A MyLupusTeam Member

Yes all the time which is very depressing for me because my work requires exact words and communication, the crazy thing is the words I type are the words I want to use just scramble not in the correct order I have to constantly use spell check it works some of the time

June 21
A MyLupusTeam Member

For me the brain fog isn't as nearly as bad as what it used to be, but speaking can be a challenge sometimes. On some days it's as though I have a mouth full of marbles.

June 21

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