passing on the lupus antibodies caused scaring of her av node of her heart at the time there were only 98 children in the country with the defect, we were treated at Cleveland clinic and did experimental treatment through john Hopkins. most of these children don't survive they go into heart failure in utero and are still born, the hope behind the treatment was that it would reverse the heart block but while on the medication she seemed to be doing well. they wanted me to stop the treatment when… read more
My heart block baby turned 16 yesterday
I'm glad to hear you stuck with your instincts. I'm sure that made all the difference for her surviving to full term. Congratulations to both of you.