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My Child's Questions On My Being Sick....
This is the third time my 5 year old has come to me about his concerns.....
My son and I are very close and open with each other. He asked me "what is going to happen if I die"? He does know
Mommy doesn't feel good a lot. He knows the name of mommys disease, Lupus. He is such a great helper to me. He is always helping, holding my hand,
to help me stand up and walking. He knows I don't walk very good and lose my balance. He is always giving me hugs and kisses!
We'll, last night he cried and… read more
Aww I know it is is difficult and kids are so in tune to our fears. Just keep reassuring him that right now mommy is fine and am here for you always, don't worry about that when we can have so much fun today loving and being with each other. My son was like that and still is and he is 17. But when he was younger I would just hug him and encourage him to keep loving me as I will him no matter what happens. It helped my son with our faith and a positive attitude. I would have to secretly go in the bathroom and cry because honestly I was afraid too.
@A MyLupusTeam Member I have been through similar things with my kids. I rely on my son to help quite a bit. The thing I always try to do is 1 - Let them know that they are the most important thing in my life, 2 - Having them brings me the most comfort and joy, 3 - They are not responsible for me. Even though I am sick I am a grown up and they are kids and cannot control what happens to me. I have tried to find things that I can do and make them "larger than life". Believe me I sometimes get down in having them have to live like this. But then I think about how I grew up, and I am more involved in what is happening in their lives then what I had. We do our best! This article helped me a lot recently when I was feeling badly for not being able to do everything I want with them... http://www.cfidsselfhelp.org/library/grieving-y...
Sending you love!
My son has always been sensitive to my health issues. He's 22 and autistic. He's very high functioning but worries a lot. His need to be reassured increased tremendously over the last 18 months after his father passed away unexpectedly and then his sister, almost exactly a year to the date of their father's passing, left her husband and left the country without as much as a good bye.
We recently came to an agreement. He understands that my life is not what it was. I have limitations but I'm going to keep going. When/if there comes a day that some new symptoms come my wa6, I will be open and honest with him about it.
I know my son is older, but I hope this helps a little.
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