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A MyLupusTeam Member asked a question 💭
Clearwater, FL

Even tho I was DX a few years ago. I still don't know much about my illness. How do you know if you a rd e getting a flare up? What do you feel like before a flare?
Thanks

June 19, 2015
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Reactions
A MyLupusTeam Member

Fatigued, muscle pain , just an all over feeling like the flu.

June 19, 2015
A MyLupusTeam Member

yes, to all the above. Also, do not forget the inflammation.. and lungs, so very much, eyes and ears also

June 21, 2015
A MyLupusTeam Member

I am usually very fatigued (I don't have the energy to walk to the bathroom) and then my body starts hurting. This lets me know that something is going haywire inside and I usually have to take a day off and just sleep.

June 19, 2015
A MyLupusTeam Member

@ Bernadine you poor thing, how say that when your blood said different? Some doctors can be cruel:(. You know what I was thinking everyone as I lay here listening to my 2.5 yr breath and my poor joints are throbbing so bad:(. I wish we all lived in a community as one family ute and we could support each other on the good and bad days ie, help with household chores, have tea, coffee together and just someone to be there physically for us who understand our suffering. My husband try's his best but he works a lot and hence I'm alone a lot with with our daughter and not support as everyone works. On a day like day it's sucks. Our poor apartment is a mess. We need help badly but can't really afford to pay so mine to help clean etc. I'm so grateful for the group where I can vent with any judgement . Thank God for you all. If there's anyone here that would lime to exchange phone# I would be more than willing to do so. I know I'm miles away.

July 4, 2015
A MyLupusTeam Member

Lupus has many faces, but the main sympt L ms are fatigue, weakness, joint and muscle pain, skin rash, it may take the organs like liver, heart ,central nervous system, gastro, and kidneys. It may cause brain fog (forgetfulness of words, names), and may cause dementia.

June 21, 2015

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