I can totally relate. It's like living in one big flair, never ending.
It seems like since this all started for me last August that things have never been normal at all. There is something weekly if not daily that changes or bothers me. I went from having just a Family Doctor last August to having 5 other doctors. My body and joints always seem to hurt. I have a lot of migraines, shortness of breath. I just want to feel like I did a year ago.
Sometimes it's confusing to know whether I'm having a flare or side- effects from medication.
Iv been to so many specialists here n Saskatoon that my family doc said " janis i think uv seen every specialist here n city " N everytime u see specialist i have tell them my life story of lupus ! Kinda getz to b a pain ! N all that ur given is more pillz ! Jeez i take enuff already ! I give up on docz ! I no myself itz the Lupus !"If the flares r so bad i jus gotta hsp !
Me to.