Thank you ladies both for reaching out. You both have such beautiful souls & fighters for sure! Have added you both to my team. My meds will definitely be changing over the next month. Dermatology wants me off the plaquinil it's making my skin turn grayish & discoloration on the face too. RA mentioned Cellcept I think a few months back but because of my anemia issues they were hesitant. Might have to do some more research before my appts so I am as informed as I can be on some of the med choices. The side effects of some of these meds seem to do just as much damage as the disease. I appreciate the help & support :) glad we all have each other.

Iam taking 4 of those pills a day 3 Prednisones 2-3 water pill 2 vitamin d pills and blood thinner pill 1 anacide pill so yeah I can definitely relate to your symptoms that your are having and yes we going to get threw this .... I know the pill are nasty but I try to have a set time in the morning for some and the afternoon for the rest ....

I too am at stage 3-4 also and it is quite frightening for me as well...maybe we can grow together with this aspect of Lupus...I am taking Cellcept...right now trying to tolerate 1500 mg and having a really hard time with this med...ultimately my Rheumy and Renal docs want me do @A MyLupusTeam Member do you mind telling me how much Cellcept you're taking for the Nephritis...
Storm

Mentioned Users

A MyLupus...

Well Iam between stage 3-4 but don't worry as long as you take your meds you will be fine eat the right foods drink water and a vitamin d pill....

Thank you so much I needed to hear that your words touch the inside of me and I thank you again ....