You don't have to have all of the blood marker for lupus positive for the diagnosis. Keep pressing your rheumy. My values for the usual markers, including ANA, Anti-Double stranded-DNA, Sed Rate (ESR), C-Reactive protein, C3 & C4 complements, Smith Antibody, on and on, are all over the map. Usually, my values all high only when I'm having a flare. Your doc should re-test. Ask him/her about a Comprehensive Metabolic Panel as well. That will show if you have any organ involvement.

http://www.lupus.org/answers/entry/lupus-tests

http://www.mayoclinic.org/diseases-conditions/l...

J Rheumatol. 1979 Sep-Oct;6(5):534-40.
Seronegative systemic lupus erythematosus.
Bohan A.
Abstract
The diagnosis of systemic lupus erythematosus (SLE) often depens on positive tests for antinuclear antibody, LE cells, and antibody to DNA. In fact, the presence of such serological markers is virtually required for the diagnosis of active disease. This report describes 5 well-studied patients with SLE who initially presented with negative serology despite active multisystemic disease. When followed from 10 months to 7 yr, negative serologic markers, including the ANA, LE cell test, and anti-DNA were seen to change from negative to positive, analogous to the seronegative rheumatoid patient who may become seropositive. In a few cases of lupus, therefore, negative serologic tests do not always exclude SLE, and serial testing at periodic intervals may be indicated.
PMID: 93147 [PubMed - indexed for MEDLINE]

Yes, it just means that you are having a hard time getting a diagnoses and that over time you should be able to get one. Getting a firm diagnosis is one of the hardest parts. Just try to be patient. I know it is frustrating but most of us have to go through it. Feel better.

It's frustrating for me also. I have an ANA 1:160. All other tests are negative for lupus.

I also have Lupus SEL with scleroderma /crust syndrome. At one point in a doctors visit he said to me well if you going to have Lupus this is the best one go have because it's nor that serious and I'm setting there in so much pa in looking at him with disbelieve and thinking to myself this insensitive little prick that was the last time I seen him I asked for him to be removed from my Medical team. I was diagnose with Lupus SEL and Crest syndrome, scleroderma in 1995. As the years passed by was diagnose with Fibromyalgia, Gastroesophageal Reflux disease, Gastric Ulcers, Raynaud Disease, Esophageal Reflux disease, Beretts esophagus, osteoporosis, depression, and a few more. And for the last 4 years I've been fighting to get disability and I been denied 3 times my lawyer file for court date on October of 2014 well I finally got my court date this month and I've been praying that I get a judge that understands lupus and scleroderma /crust syndrome and rules in my faver.