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A MyLupusTeam Member asked a question 💭
Toronto, ON

Hello My Friends,

Have any of you experience extreme thinning and hair loss? If so, how many strands and how did you cope? I'm currently dealing with this issue. Would love to hear people's experience.

November 1, 2015
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A MyLupusTeam Member

I have lost 3/4 of my hair volum I found Mame n Tail shampoo and conditioner by Straight Arrow to slow down the process, I also smear my head in coconut oil once a week to keep it softer, I think our hair just breaks off, and also Bamboo Silica really helps. My hair is no longer falling out.

November 1, 2015
A MyLupusTeam Member

When my hair started falling out and thinning I starting using extensions and wigs. Did this for about 4 years. These last 5 months I've been putting coconut oil/olive oil in my hair and not putting anything extra in my hair besides that. My hair grew back slowly but nice. Maybe that will work for you! I try not to do anything to my hair at all if I don't need to. The slightest bush/comb, scalp itch, rubbing against something or extremely bad flares my hair falls and falls and falls. But the coconut oil really does help(for me at least), if you do happen to use it try to by organic oil only :)

November 2, 2015
A MyLupusTeam Member

I'm having that problem too. I just got a prescription for Clobetasol Propionate. Since I've only used it two days I can't offer an opinion but it's an idea for you to explore. Good luck!

November 6, 2015
A MyLupusTeam Member

my hair has become much more dry and brittle, it falls out more but it doesn't fall out to the extent where i have large bald patches. If you do have lots of hair loss try using ovation, I have had friends who had cancer and lost all hair, they swear by it.

November 2, 2015
A MyLupusTeam Member

I also started using coconut oil weekly. It has made my scalp feel a bit better.

November 1, 2015

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