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A MyLupusTeam Member asked a question 💭
Orem, UT

I'm not feeling well today. I was sitting in a rather cold building on campus and my hands felt really cold compared to normal. I take a look at them and my finger nails had turned purple. Now, it was different from like, sticking your hands I. Snow and then turning beet red. My fingers were very white ans my nails were a bluish purple. Any ideas?

January 6, 2016
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Answer Summary

Members quickly recognized the purple fingernail symptoms described as Raynaud's phenomenon, a condition where blood vessels narrow in... Read more

Members quickly recognized the purple fingernail symptoms described as Raynaud's phenomenon, a condition where blood vessels narrow in response to cold or stress, which is very common in people with lupus. Several members shared practical tips for managing it, including wearing mittens or leather gloves, using hand and foot warmers, placing hands under armpits or thighs, soaking in warm water, and asking a doctor about medications like nifedipine or amlodipine. A recurring theme was the importance of warming affected fingers quickly to prevent damage, always keeping extremities covered, and letting a rheumatologist know about the symptoms.

A MyLupusTeam Member

Just for clarification: Raynaud's syndrome is different than Raynaud's phenomenon. The phenomenon can be a symptom of lupus. The syndrome is a completely different diagnosis with a whole new set of problems.

January 6, 2016
A MyLupusTeam Member

It is Raynaud's Disease. People who have lupus will most likely get this disease if you don't have it already. There is no medical treatment for this disease. The only thing you can do is wear gloves. I suffer with this during the winter months mostly but I have gotten the white fingers where all the blood in your fingertips remains in the palms of your hands. It is very important to warm your hands up immediately because prolonged exposure can cause permanent damage almost like frostbite. I happened to have my first incident while I was in the hospital and I freaked out. The 1st and 2nd digits were completely white, numb and tingling and also can cause a lot of pain if you don't warm your hands and shake, rub and get circulation back to the digits that are affected. I have had this happen in the summer while in the grocery store or when I was rearranging the food in the freezer. I believe it started in my 15th year of lupus. It is most likely to happen to those who have SLE and rarely in discoid. Johns Hopkins University has a study that they did and you can find it probably by Google. It is extremely important to wear gloves and once it occurs to get your hands warm and blood circulation returned to the digits. So if you have SLE expect some day this will happen. I believe the odds were stated 93% of SLE will get this. Scarey but true. . . . .

January 6, 2016
A MyLupusTeam Member

Yep raynauds is what it is . Use gloves something as simple as grocery shopping can be painful. As if you are being frost bitten. Everyone gave great answers ! It's a lupus thing but considering other things it can be tolerated

February 22, 2016
A MyLupusTeam Member

What Are the Symptoms of Raynaud’s Phenomenon?
The body saves heat when it is cold by slowing the supply of blood to the skin. It does this by making blood vessels more narrow.
With Raynaud’s phenomenon, the body’s reaction to cold or stress is stronger than normal. It makes blood vessels narrow faster and tighter than normal. When this happens, it is called an “attack.”
During an attack, the fingers and toes can change colors. They may go from white to blue to red. They may also feel cold and numb from lack of blood flow. As the attack ends and blood flow returns, fingers or toes can throb and tingle. After the cold parts of the body warm up, normal blood flow returns in about 15 minutes.
Nondrug Treatments and Self-Help Measures
To reduce how long and severe attacks are:
Keep your hands and feet warm and dry.
Warm your hands and feet with warm water.
Wear gloves to touch frozen or cold foods.
Wear many layers of loose clothing and a hat when it’s cold.
Use chemical warmers, such as small heating pouches that can be placed in pockets, mittens, boots, or shoes.
Talk to your doctor before exercising outside in cold weather.
Don’t smoke.
Control stress.
Exercise regularly.
For More Information About Raynaud’s Phenomenon and Other Related Conditions:
National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS)
Information Clearinghouse
National Institutes of Health
1 AMS Circle
Bethesda, MD (Phone number can only be seen by the question and answer creators)
Phone: (Phone number can only be seen by the question and answer creators)
Toll free: 877-22-NIAMS (877-226-4267)
TTY: (Phone number can only be seen by the question and answer creators)
Fax: (Phone number can only be seen by the question and answer creators)
Email: [[email: [[email: (Email address can only be seen by the question and answer creators)
Website: http://www.niams.nih.gov

January 28, 2016 (edited)
A MyLupusTeam Member

yes, thats what it is . get hand warmers from the drug store and put them in your mittens, not gloves use gloves after your hands warm up.

January 6, 2016

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