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I am really trying to make the decision to modify my work load or not. I am having to miss more and more days here and there. Almost everyday after work I am just exhausted. I feel like my family is suffering because I'm always so tired. I am faced with working less and having a better quality of life but cutting my families income and being down all the time. This is a hard spot to be in and I just want some advise from others on what you've done and any advice. Some say i should check into… read more

February 1, 2016
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A MyLupusTeam Member

I've had to go on Disability after 30 years as a teacher/guidance counselor due to so much time out due to lupus issues, depression, ptsd

February 3, 2016
A MyLupusTeam Member

I hear you. And don't be offended but you made me laugh because I know how you feel about experiencing a "normal" tired or how it would feel to wake up and your body not feel like you went 8 rounds with Mike Tyson. You ever need to vent or cry or both know I'm here. I won't pity, or feel bad for you. We are in this fight together and I "get " it. Chin up my friend I got you!!

February 2, 2016
A MyLupusTeam Member

The same thing happened to me and when I went to work I was let go for ino good reason. I was an excellent and had documentation to support it. so, my husband says it was gods way of telling me I can't work so I am not working now and have applied for disability .

February 9, 2016
A MyLupusTeam Member

I am about to return to work. Befor I was sick I really liked my job and had things pretty good. In my mind I want to return to everything I had befor but suspect my managers may have a different idea. I don't feel like I can't do as much as I did befor but I guess I will find out.

February 9, 2016
A MyLupusTeam Member

So I gave in and modified my work schedule just a small amount for now but I feel like it was a huge step for me. So, I work patients up in a busy medical practice so what I did was agreed to work patients up in the mornings and do administrative (aka desk) work after lunch. I do realize this may seem minor to some but it's pretty huge for me. I love my job and I can't be a bit of a control freak when it comes to my department. So.....today was the first day, I'll report back later in the week. Hope today has been great for you all!!

February 8, 2016

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A MyLupusTeam Member asked a question 💭
Vancouver, BC