Psssst, the doctors are as perplexed with lupus as we are, probably more so!

yes,lots of things doctors haven't heard of with lupus doesn't mean its not happening, i was on prednisone daily and it made my legs weak, but my rheumatologist said he had never heard of it and that was not a side effect of it, but it was for me and others as well.

Welcome, @A MyLupusTeam Member. We're all in this together. I saw a recent survey that said we lupies understate the pain and suffering we endure (70+%), and 80+% of doctors don't understand how difficult lupus is on we lupies. I'll try to find it again. Sad, huh?

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A MyLupus...

That's sad part so many people going for answers and spending tons of $$. And still no answers ya gotta be ur own advocate that's for sure that's why these blogs r great the one U sent is awesome no doc talk English we understand thanks Tom 😊😊😊

Thanks Tom this disease is like a zig saw puzzle lol 😊😊😊